This actually happened a few months ago – she was fired from a nearby college on May 24th. It’s only now hitting larger news outlets because there are now three state-level civil rights complaints, trying to get her re-instated. I read about it in the newspaper while at work, yesterday.
She was treating transgender students who came to her with a previous diagnosis. She was definitely qualified to do so, having gone through many hours of training in trans-health care, attending a conference sponsored by WPATH (World Professional Association for Transgender Health), etc. She was doing this at the college’s expense, which just makes it seem like it was condoned by the college, right?!!
WPATH’s stance is, “With appropriate training, …hormone therapy can be managed by a variety of providers, including nurse practitioners, physician assistants, and primary care physicians.” Apparently, this was outside the scope of what the Student Health Center did, but this was never communicated to her. The termination came from out of the blue.
Hormones are prescribed for other reasons at the health center, with no problem. Birth control, ovarian disease, and low testosterone are all treated regularly.
Interestingly, the information on the Student Health Center’s website changed two months after her firing: While it had said, “comprehensive primary care,” and “continuity of care,” it now says, “basic primary care” and has no mention of continuous care. At least they’re being accurate about the downgrade???
This just angers me to no end because this doctor took it upon herself to step it up and become well versed in an area that, for whatever reason, makes so many medical professionals so squeamish and stand-offish. And if this was something she did of her own volition, and it was well within the standards of care, then back it up! What was the university afraid of? There are standards in this field, despite the fact that the medical professions are grotesquely behind the curve with this, in general. A bunch of transgender students were left in the lurch.
The college’s associate vice president of student wellness was quoted as saying, “We are fortunate to be situated in [city], where there is a strong medical community rich with resources.” As if to say that students can just go elsewhere. I’ve tried “elsewhere” around here, as an adult, and it was a super-frustrating process. If I think back to who I was at age 18 or 19, disrupted care at the on-campus center in this regard would have definitely sent me into a tailspin and/or mental health crisis. I would have felt like I didn’t have the means or psychic energy to find out another path. I would have felt deeply cut, in a personal way, by my institution’s sudden change in policy.
It just seemed like this college was at the forefront – it could have laid the groundwork for other area places of higher education to follow. And then it just took a huge leap back into the wrong direction. One step forward, two steps back sometimes I guess, right?
I had a bunch of problems with getting continuous care. I was first getting hormones from a sketchy-ass doctor. I finally felt so disgusted with his practice that I sought out another path. I went to one specifically because she was listed as being LGBT friendly and knowledgeable. That ended up being wrong basically – she told me she didn’t know how she had gotten on that resource list. I had to have a pretty heated conversation with her – her stance first was that I could come to her for primary care, but I should continue to get my hormone prescriptions through that other doctor. I told her I wasn’t going to do that. She told me this was beyond her scope and if she had a male patient with low-testosterone, she would not even monitor him for that reason.
We finally landed on a compromise. She would continue to prescribe what I was already at, and she would monitor that. If I wanted to make any changes though, I would have to do that through other means.
When I did want to make other changes, I first got on a long waiting list for an LGBT-specific clinic. I kept hearing negative stories about the quality of care there, so I decided to also try another approach: an endocrinologist. I had to get on a long waiting list for that, as well. I’ve been going there since January, and so far, I’m happy because I don’t have to deal with the PCP anymore. Getting an endo was not like adding yet another medical professional and another series of appointments. It was more like, instead. Unless I get like, a rash or something, then I’d go back to my PCP.
All of this was hard enough, and I am an adult who has worked really hard at advocating for myself. Thinking back to who I was as a student I would have withered under this kind of stress. Students need to be able to access trans-specific care on their campuses. Period.
A note about the lack of specifics in this post: I left out the doctor’s name and the name of the college, city, etc. because that’s been the way I’ve always operated with this blog, in order to keep some anonymity. I’m not sure anymore whether it’s all necessary, but I’m not about to try to figure that out here-and-now. If you’d like specifics and the names of the sources I got a lot of this information from, just leave a comment, and I’ll get back to you!
I can’t believe there’s still so many intense conversations to be had! Why does it take forever?!
In general in our neighborhood, my spouse and I don’t have a rapport with people. Like, at best, I watched our next-door neighbor’s cat one time, and we went to a backyard fire at her place twice, like two summers ago.
We also have a neighbor a few houses down who borrows our lawn mower a lot. This is the guy I’m talking about today – I ran into him yesterday, off our street.
I was walking on a major road nearby, to a coffee shop to write some letters to friends. (I am still out of work on medical leave right now.) He saw me first, from across the street. We probably have only seen each other once or twice since last summer. He’s always super friendly, so he was shouting, “Hey, hey, how are you?” and crossing the street at the same time. I steeled myself (slightly), and returned the greeting, meeting him partway to shake his hand and ask how he’s been, what he was up to.
He was walking home after buying his lotto tickets, etc. but that’s neither here nor there. We talked about past neighbors that he’s kept up with, and about his plans for retirement. I told him my spouse was going back to school in the fall for a master’s program. (Oh, hey, PS: blog-friends, my spouse is doing this big thing coming up. Grad school!!!)
Then I told him that I legally changed my name to Kameron. And that I got my passport and driver’s ID and everything changed over. He asked me if this was a good thing, and I said, yeah, yeah it is. Then I realized he just has no idea, so I spelled it out – I said, “I’m transgender, I’m actually more in the middle, not like I am going to become a man. But like, at work and my friends and family, I use male pronouns, ‘he/him/his.'”
He started to get it then, and as soon as he did, he started apologizing. For being invasive, or something, I guess? I just kept repeating, “No, you’re fine. It’s not personal. This is a part of who I am. So, like my parents are all good with it, everyone’s all good. It just took me a long time. There’s a lot of discrimination. Like, say, fifteen years ago, it wasn’t even OK just to be gay. Things are changing though.”
He definitely got that. It immediately sunk in. He said, “Oh yeah, like you might have been depressed and now things are better for you? I bet people deal with suicides and stuff, right?” I said “Yes, and even bullying and hate crimes and everything. It’s bad. I mean, I don’t like to be negative, but yeah, it can be bad.”
He then proceeded to ask about operations and surgeries, and I just said, “Well, that part of it is personal. So, I mean, I’ll figure that out as it comes. But for now everything is all good.” He does not need to know about my top-surgery status or anything else of that nature, for sure!
He started apologizing again, haha.
I shook his hand again and said he was free to borrow our lawn mower if he needs it. We exchanged more pleasantries and parted ways. I felt really good about it. He kept referring to my spouse as my girlfriend, but hey, I can’t correct the man on every little detail. He got the gist of the most important stuff for now, and that’s more than fine by me! It felt like another tiny weight lifted off. Dang, how much extra “weight” am I actually carrying?! That’s still a mystery that is becoming just a little bit clearer…
Tonight at 10PM (9PM central time), PBS is screening a documentary called Real Boy. If you’re hanging at home tonight, check it out!!
I had the opportunity to see this film twice now:
Last fall, my neighbors and I went, as part of the annual LGBT film festival where we live. I’d have to say that I was a little bit jaded at that time – here is yet another story about young, white, binary, trans-masculine people. Seen that / heard that!!!
The parts about his (Ben’s) mom, and family dynamics were what held it together for me. My neighbor was really touched by it in a different way – there was a lot about singing/songwriting/creativity, and also about recovering from substance abuse and other destructive behaviors.
Then, two weeks ago, I went with my spouse and her parents. It was a free showing, and the two main “characters” were there in person to answer questions and play some of their music as well. I felt really happy that we all saw it together – we then went out to eat and talked about how we related or didn’t, with the movie. Awesome conversations.
I would say that, for me, the second time’s the charm, haha. For one thing, closed captioning was on, so we could all listen and read the dialogue simultaneously, which was kinda necessary because some people mumble more than others. I got a lot more out of it – the way that Ben’s navigating his new life / roles / perceptions as a very young person (I can’t imagine transitioning at that age!!! Hormones are already on full alert and then to mix it up so drastically, must be stressful – both positive and negative stress.) And the male bonding that was going on between the characters felt a lot more touching to me this time for some reason. He has a mentor / protegee dynamic going on with an older musician, and then a housemate / brotherhood with a trans-guy he met through mutual friend.
In terms of content notes, I would give this warning: Topics that are potentially sensitive to those in recovery are brought up: mostly grappling with drug and alcohol abuse, as well as self-injury and family issues / rejection. Also, we follow along as Ben and his housemate move forward with getting top surgery with Dr. Garramone in Florida.
I’d say catch this movie if you can! Although it didn’t really speak to me the first time, I came around to really like it!
I was in the hospital for psychiatric reasons, for a week in mid-May. It went so much smoother than my two other “stays.” (Those occurred in 1999 and 2015). I attribute that smoothness to:
– Having a complete social network around me for the first time in my life
– The fact that even though I had never been to THIS hospital, I was able to draw from my experience in 2015, and use that blueprint to (semi)-successfully navigate my way through, this time around.
– I was already on meds that were working pretty well, for the first time ever. This means that my psychiatrist wasn’t just taking a shot in the dark. She was just tweaking what was already working. (For me, specifically, this meant getting my Seroquel (anti-psychotic) increased from 200mg, to 600mg, dispersed into three 200mg doses throughout the day, and discontinuing the Wellbutrin (anti-depressant), at least for now.*
So, what were my priorities?
1. Getting on an adequate sleep schedule.
2. Eating the hospital food without having too many digestive issues (this included not relying too heavily on food visitors brought me, even though I was so grateful that they were doing this.)
3. Interacting as opposed to shutting down: Unless I was knocked out on meds, I was up and about, talking with people (sometimes shouting at them), pacing the halls (“going for a walk”), coloring with different medias and different methods / trying to do number puzzles (figuring out what was feeling more “right brained / left brained”), marking my turf / territory in ways that may have been specific to me (this, right here, would be a post unto itself… I’ll leave that for another day…
Some peripheral priorities / goals that I tackled / attempted and had some success with was:
1. Watching out for other people, checking in to see if they felt safe.
2. Micromanaging free-dance party / art times.
3. Getting other people condiments and other things they might need / want.
4. Modeling my behavior off of others / acting as a role model.
5. Pushing for Gym Time and Therapy Dog visits.
6. Reinforcing privacy vs. getting help. Also reinforcing quiet hours and other scheduled parts of the day.
7. Taking a shower every day (night) at the same time (10pm).
8. Dispensing important information.
I realize this post is a pretty vague sketch of some important things – this might serve as just an outline for me to fill in more interesting details / experiences / stories…
*I was also administered a shot, which I refer to as a “Haldol Cocktail.” 5 parts Haldol, 2 parts Ativan, 50 parts Benadryl. Plus, of course, my Testosterone shot – 50mg.
Content note: This post might not make a whole lot of sense unless you really like 70’s and 80’s music and/or gender. And writing and the English language…
In my city, there are two chain-type places to go to get an average oil change within about a half-hour wait. One also sells it’s brand of oil (nationwide? internationally? not sure). The other is more of a gas station / car wash place.
For the sake of anonymity, I’ll call them:
LV – the oil specific place
SD – the gas station
I almost always go to SD because my parents give me coupons for free oil changes there, every xmas. And also because there is one on my way to / from work. About 3 years ago, I started trying LV a couple of times, but I concluded that it was too expensive, and I switched back.
I was overdue for an oil change, but I didn’t want to go to the SD in the suburb where I work, cuz I don’t really want to be seen out and about, while I am out of work for medical reasons. So I went to one in a further away suburb. I had been there once before, and it was kind of anxiety provoking (in my head, at the time).
Why? Because the style was Drive Thru, as opposed to giving the mechanic your keys and sitting in a waiting room. “Drive Thru” is one of my longest lasting fears, almost bordering on a phobia before I reigned it in a few years ago. This included parking garages, anything with a “gate,” car washes, etc.
Anyway, I made it through no problem, but I was noticing all these little “masculine touches” / masculine underlying communications, body language, etc. Stuff that’s barely worth paying attention to. Stuff I generally am not around because normally I’d be sitting in a waiting room. An example would be a giant truck in line honking, just because he(?) wanted to get an attendant to come over ahead of time for some reason. (As opposed to reading signs to find out the information). These are all assumptions, of course, but I’m just saying I was in tune to things in a different way than I normally would have been. And I was the opposite of anxious.
While waiting in my car, I was listening to a mix CD that a friend gave me in our early 20’s. Before he hardly knew me. And now he’s one of my longest-lasting, solid friends here locally.
While hypo-manic currently, I’ve been spending most of my time at home organizing and cleaning and catagorize-ing things. One thing I uncovered was this mix CD, which he had titled, “A DRUM IS A THING IS A DRUM,” (all caps.) which, for me, is reminiscent of Wire’s album (one of my favorite albums ever,) “A BELL IS A CUP UNTIL IT IS STRUCK” (all caps.) The song that stood out the most, from the others was:
T-Rex – Jeepster. So GLAM / FLAMING / FLAMBOYANT!
When the CD ended, I could overhear what was playing in the garage / mechanic dock. It was:
Elton John – Benny and the Jets. SO GAY!
Anyway, I got the oil change and then went to this place that used to be called The Stereo Shop. It’s now called something like, “Digital audiophile visual environments.” I wanted to go there because there was a used cd / record store in the back of this high end Hi Fi Sound Equipment store. When I got there, I asked the guy at the front about the cd store, and he said it wasn’t there anymore. It had moved. I asked if he could write it down for me, and he did. I don’t think any music was playing in there, or if it was, I didn’t pick up on it.
Back in my car, I was listening to a station that claims it is the only station that matters (that’s their “tag line.”) A song came on that is unusual for their roster, and also happens to be a song I sing along with / almost know by heart. That would be:
David Bowie – Diamond Dogs SO GLAM!
I got to the new location, and realized they didn’t open for another 45 minutes. So I went down the road to another record store. When I walked in, what happened to be playing?
THE CARS – MOVING IN STEREO!!! In my book, it doesn’t get any more classic / fabulous than that.
I was really just browsing, not looking for anything in particular. A bunch of stuff popped out to me as “must have’s.” I got a handful of 7-inches, and a couple of records.
I’d recently started thinking I need to upgrade a few records, if I come across copies in better condition, because I am a DJ (That’s a Bowie song!), and it sucks to play crappy sounding vinyl.
Five days prior, I’d told a friend that I probably need a new copy of Culture Club’s “Colour by Numbers.” Me ‘n this record have a loooooong history together. It doesn’t get any more basic than that. Sure enough, at this record store, they had two options!!! Either:
An original, still factory sealed, for $9.99, or
An original, still with the plastic plus promo stickers saying “Grammy Nominee,” and “All New Songs!” (and then it listed 4 song titles. This one was $10 even.
I went with the one with bonus stickers!
(PS – $10 is pretty much the most I’m willing to spend on a record, and it better be pristine and/or hard to find!)
Another exciting find was:
PETE SHELLEY* – HOMOSAPIEN* (Elongated Dancepartydubmix) !!!
Anyway, back to the story: So I bought this stuff and went back to the music store I had really wanted to check out. It was small and quiet (I think he was playing music, but I have no recollection of anything playing!) and there were just a couple of older dudes coming in and out, with special requests and just to shoot the breeze. I was only there for about an hour, but I left with a HUGE HAUL. I spent more on records and cds than I ever have before (meaning within one store at one time.) Almost everything I found was $5 or under, and it was an extreme pick-through type situation. Meaning, don’t go looking for anything in particular, just start looking at everything!
I had a nice conversation with the owner while he rung things up (in a way so as not to distract him, haha, he was super methodical with his calculator and his mechanical receipt machine.) I told him he’s got lots of great obscure stuff, and I might be back within 6 months or a year or whatever. He asked me if I live here or am passing through. I said I went to his old store with my mom a lot and he then seemed to maybe remember me. I said I do live here, I’m a DJ, I like 80’s music, etc. It took him a long time to ring everything individually, so I started browsing to pass more time. Found 3 more cds to buy, and then, as a last minute thing, the “DAVID BOWIE” category within the records popped out. There were two records in there:
DIAMOND DOGS* (pristine and currently hard to find) for $15.98 and
LET’S DANCE* (pristine and currently hard to find) for $9.98
I bought Diamond Dogs because that more or less completes my Bowie On Vinyl collection (no new pressings or record store day garbage, haha.) I left Let’s Dance behind because I already have it, but, hey everybody,
LET’S DANCE, everybody, DIAMOND DOGS and BENNY AND THE JETS included! We’re all HOMOSAPIENS, we’re all JEEPSTERs, MOVING IN STEREO, sex and drugs and rock ‘n roll…
*All Capital Letters
This is, by far, the longest post I’ve ever written.
Does the song “Bye Bye Love” by The Cars have 3 F-Bombs in it? Also, are they saying, “It’s OMG Style.”???
Pete Shelley was the lead singer of original English punk-rockers, The Buzzcocks.
Another exciting find was TWO copies (one for me, one for my friend) of a pink marbled vinyl original 7″ EP by The Stranglers from 1977, one of our fave bands! They were $4.00 each. (Hugs Work!)
I’m listening to The Cars S/T debut while I write this.
If you haven’t yet, check out the music video for “Hello Again.” It’s prob on youtube or some shit.
Oh, hey, dang, I’ve been absent for a while. I was in the hospital, again because I was manic (the time before that was January, 2015). This time it was a week: from May 15th-22nd. I’m currently out of work until June 19th. I’m sure once I’m feeling up to it, I’ll be writing a lot in the upcoming weeks. For now though, I’m thinking I’ll have a handful of short, somewhat abstract updates to this blog. The first one being:
I am a transgender person and I was hospitalized for mania and my blood was tested, and I was administered my testosterone shot, but my T-levels in my bloodstream were not monitored at any point in time during my stay.
I feel legitimately angry, like, about as angry as I am capable of getting, about this. Because I experienced some really really bizarre symptoms while there, that I would chalk up to hormonal issues, but there’s nothing for me to measure that against.
I was shouting A LOT. Like, I am not a shouter. I was SUPER vocal, the entire time I was there..
My menstrual cycle came back in a super condensed, concentrated form, for about 3 days…
Sex drive?? Zero
I called people out in their shit, in real time (generally something might occur to me later, what I should have said)…
I was actually able to keep my anxiety in check this time…
Smells and tastes were all over the place…
Blah! When will it sink in, that transgender people face different challenges, and these need monitoring too!
Lately, I’ve felt an increased breadth of emotionality, and I’ve been wanting to embrace that and document it. At this point, I’ve been on injections for about 2 months. I’d say I could first recognize this about a month ago – I saw the film, Moonlight, and I felt choked up / on the verge of tears a couple of times. This was no small event: I haven’t cried or even come close for a very very long time.
About two years ago, I was seriously depressed for a year. It’s definitely different for everyone, but whenever I’ve been depressed in that way, I do not cry. I don’t have any emotional experiences, really, other than fear and panic and deadened mental capabilities. And physical pain, but not in the way where I want to cry. Then, after about a year of trying different meds, I got on one that I actually like, for the first time ever. It helps me sleep. It helps me not think in obsessive ways. It helps me absorb new information and changes and take those things in stride. I’ve had some serious high notes, in this past year. This drug has actually helped with that, perplexingly. I’ve also had a couple of anxiety attacks, but they were extremely few and far between, and related to stressful times.
But I had not felt sad, or any of those nuanced pallets / ranges within the emotion called “sadness.” Until I started (again) on testosterone – which is kinda interesting because the more likely narrative is “once I started T, I couldn’t cry anymore.” I have yet to actually cry, but the sensation is there, and I welcome it.
Today, I was listening to a podcast, and I felt overwhelmed with emotion. Like I said, this has been so rare, that I embraced it. It was “This American Life,” the episode called, “Ask the Grown Ups.” Tig Notaro was giving some advice to a teenage girl who’s mom had recently passed away. It was so moving that the world around me changed, temporarily.
Also, I’ve recently been seeking out music that I listened to while I was depressed, 2 years ago. (There’s not much at all to uncover because I listened to so little music. It’s basically 2 albums by Royksopp, something by The Notwist, and, probably a couple more I could track down if I really wanted to dig…) It’s been… interesting. There have also been big changes in my life lately, mostly at work, that has triggered some images of violence to flash before my eyes. I’m all too familiar with this, and in the scheme of things, it’s been super mild. But, yeah, haven’t experienced that in a very long time. Instead of acting on it or obsessing on it though, I just came home, took my pills, and went to bed early. I feel sooooo grateful that that’s all I have to do. And then the next day it is not too bad. What???!!! It’s true!
So, essentially what I’m saying is that I have felt some intense emotions over the past couple of years, but very rarely did that involve any form of sadness. Which, is pretty bizarre if I think about it. And that’s been due to depression and medication. And then, this higher dose of T opens back up a world I have not been able to access. It includes nostalgia and emotional connectedness and feelings associated with the weather and isolation and the season and the environment, etc. etc.
As long as I’m not continuously bawling my eyes out, it’s all good.
Game changing significance was loaded on top of more and more significance, this past week. On Monday the 7th, Leonard Cohen passed away. Then, of course, the upsetting election results. My spouse woke me up to tell me the news. I was in a hazy half-sleep, largely induced by my medications (I think), and I just replied, “Ohhhhhhh,” and immediately fell back asleep. It was a surreal half-consciousness, and, in a way, I continued on in that space for a long time after, even now, as I try to wrap my head around it.
She also texted me later that morning saying “Happy anniversary of our ‘legal’ marriage today.” I had completely forgotten about that. We have much more meaningful anniversaries between us; this one is not a big deal. But, interesting that it happens to fall on this same date. Plus! It was the one year mark of the launch date for the radio station I am a DJ at. Also on this day, a friend’s father passed away. The next day, my spouse’s sister proposed to her boyfriend!
The following day, I heard word that two pride flags had been burned in our neighborhood. Talk about being hit close to home! More on that in an upcoming post. We attended a rally on Saturday morning with some friends, and the spirit of that event was totally incredible.
Also, around this time, 17 years ago, I was hospitalized for 19 days, and was traumatized by the process, for a very very long time. I take a moment every year to think about this and reflect. (In the past, it’d been much more than “a moment” to reflect. For too long, it had felt like constant rumination.)
Three years ago, I wrote about how I finally gained access to the medical records from my hospital stay, and how I started to process things differently with the help of my therapist: Continuing to work through a specific trauma.
Then two years ago, I wrote about finally bringing that record into therapy and how it felt to have her go through it. I was starting to realize that maybe I didn’t need to pick it all apart; maybe my perspective was shifting naturally, over time: That specific trauma is still there.
Last year, I wrote about how much time has changed things, and it no longer felt like a big deal. The fact that I had been hospitalized again, that year, surprisingly helped me find ways to heal, rather than adding more baggage onto the feeling of it: That specific trauma is no longer a big deal.
This year, this personal matter has simply been buried underneath all this other stuff going on. I don’t have the capacity to think about it and write about it right now. I don’t see that as a problem. It’s not like I am grieving the loss of space and emotional energy to be with this thing. It was a thing. And it gradually became not as much of a thing. It is OK.
I also experienced an upswing this week. Probably galvanized by the shitty stuff going on. I cancelled a doctor’s appointment that I didn’t want to go to. I called my grandpa and talked to him about different ways to save for retirement. I solidified plans for my spouse and I to take a trip to Washington D.C. for her birthday – right around Martin Luther King Jr. Day, and just in time to get the fuck out of there before the presidential inauguration. We are going to go to the National Museum of African American History and Culture, part of the Smithsonian, which just opened a few months ago.
I also submitted my stuff to legally change my name! Finally! I did this yesterday. (This might also be a separate upcoming post.) I also emailed a lawyer to see if he would be willing to work with me toward gaining legal non-binary status. I haven’t heard back yet, and I realized that the timing is shit. This is such a low priority right now, as transgender people scramble to get their Social Security card, passport, etc. in order before the Trump take-over. And I know this lawyer in particular is probably swamped with going above and beyond to help people with this. So, I’m going to wait on it.
But a time will come. I know it.
I made a decision that I’d like to get on testosterone injections, temporarily. I’ve thought on-and-off about it for a while, and I think the idea solidified over the summer, like, once I’m back to normal after recovering from surgery, I’m going to look into it. Unfortunately I knew I couldn’t just get this from my Primary Care Physician – she had been OK with maintaining my androgel dosage, but not comfortable with changing / increasing anything.
On September 26, I called the local LGBTQ+ health clinic and explained what I’m looking for. They said they could get me in on January 25th. I said, OK set the appointment, but in my head, I was thinking, this is a ridiculous amount of time to wait. (And, I know, I know, relatively speaking, it’s not at all, especially looking at it from a global perspective. But, if I think I can do better than that, why not try?)
From there, I looked up endocrinologists in my area and what types of care they covered. I found one that hypothetically seemed like a good fit, and I posted about it on the local transmen Facebook page. I got one comment that yeah, she and her staff are good, and a few more comments agreeing with the inefficiency of the clinic. In terms of vetting, that seemed good enough.
I called her office on September 27th and was told I’ll need a referral from my Primary Care Physician, and then once that’s in, I should hear back within a week. I called my PCP’s office, and they said they’d send that over right away. I then waited 10 days before calling. I was told the referral didn’t get received, huh, not sure, can you have them send it again? Got that done, this time with a confirmation plus I got a copy, and waited another few days. I got a call from my PCP’s office, saying that the endo needs an additional referral, from a psychiatrist. GATEKEEPING at its finest. I would have been super pissed, and probably would have stopped trying to go this route, if it weren’t for the fact that I actually do have a psychiatrist right now. So although I hate that I had to do it, it wasn’t actually much of a hassle.
I emailed my psychiatrist (she was already aware that I was pursuing this), summarized the nature of the referral from my PCP, and asked her to also write a letter. I said that including pertinent information, like the fact that I’ve been on a low dose before, that I’ve had top surgery, and/or that I identify as non-binary would be great. She replied that she could write the dates she’s seen my, my diagnosis (meaning my mental health diagnosis), medications she prescribes, and mental stability status. “OK?”
I replied, “OK that’d be great, thanks.” Guess I didn’t want to argue or push it.
I then waited another 8 days (by this point, it was Oct. 25th, a whole month later and I still hadn’t secured an appt.) and called the endo’s office again. I was given a wishy-washy answer by the administrative assistant. That the endo is still in the process of finding more information, and she is currently booking out till January – they can get me in for January 10th. But at the same time, she can put me on a waiting list to get me in sooner. I asked, if I were to call and check my status, would that help me “jump the line”? (I didn’t actually use this phrase.) She implied that sure, that could help.
At this point, I took a step back and thought about what’s happening. So far, the endo got a referral from my PCP, and that didn’t include any history of care: just Female to Male transgender person (F64.1), chronic. In addition, they got information from a psychiatrist that I am bipolar, that I have been seeing her for 9 months, and that I’ve been stable during that time (relatively, this is such a short amount of time; it’s kind of implying that the rest of my “bipolar disorder” time is a wildcard.) I don’t want to get too paranoid, but this collection of information is not working for me at all. That plus the fact that it’s straight up inaccurate.
Feeling like the system is working against me, I decided to pull from my bag of tricks and email my therapist. If there’s anything that could help this stalemate, it’d be her. I relayed this whole series of events and asked her if she could also write a referral, actually filling in the background information. She replied in 10 MINUTES – such a refreshing change! and said crazy that this is so hard, and sure she’d write a letter, and is there anything else I’d want to make sure she includes?
So she’s writing a letter. My intent is, essentially, that this is not a new diagnosis, coming out of nowhere. That I’ve already been on T in the past, I’ve had top surgery, I’m in the process of legally changing my name, etc. So, this should be a continuation of ongoing care (timely, please!). I’m not starting from square one here. I imagine this endo has access of my medical records (?? not sure how that works), so if she looked into it, she’d find this stuff. I’m just having my therapist bring it to the forefront, which will hopefully change something?
Because, I feel like if it went the other way – my doctor sending the referral first on my behalf, instead of me going backwards to get this stuff covered, I would have been given an appointment within a more reasonable window. Not sure if that’d be true or not – there could be dozens of reasons outside of my control – maybe she’s just really busy. But, I gotta try…
I never before realized that these days are consecutive! Oh hey, these are the two most frequent topics of this blog!
In the past, I haven’t observed either through writing here, but I currently have a lot to say about both; this’ll probably end up being one of my more personal posts, at least as of lately.
First just real quick – a little bit of background / information about both:
World Mental Health Day (Oct. 10th) was first celebrated in 1992 at the initiative of the World Federation for Mental Health, a global mental health organization with members and contacts in more than 150 countries. This year’s theme is “psychological first aid.” My first thought was that it refers to how to handle someone who is in a mental health crisis, but it actually refers to being a support to someone who just witnessed or experienced a terrible tragedy. There is a world of difference between the two, even though there’s also overlap; of course, learning about both types of situations is going to be important.
Nat’l Coming Out Day (Oct. 11th) was founded in 1988 by Robert Eichberg and Jean O’Leary. Oct. 11th was chosen to commemorate the anniversary of the 1987 Nat’l March on Washington for Gay and Lesbian Rights. It is observed in the spirit of the personal being political and the idea that homophobia cannot thrive once people know someone personally who is LGBT+.
(Information is coming from the World Health Organization website and wikipedia.)
Last night, I saw an amazing documentary called Strike A Pose, which just came out last year. It’s about the seven young male dancers from the NYC underground (the origins of voguing) who were personally selected by Madonna for her tour. They also ended up starring in a behind-the-scenes documentary at the time, called Truth or Dare. Madonna was very outspoken about AIDS, gay rights, safe sex, and of course, Expressing Yourself! [Spoiler Alert:] What was most interesting though, was that at the same time these young men were embodying those messages on her behalf, they were not all on board or comfortable with it. Three of the men had been diagnosed with HIV prior to the start of the tour, and they all were silent about it to the extreme, not even telling friends or loved ones. Also, one of the men sued Madonna after the tour, for forced outing, partially spurred by a coerced kiss with one of the other dancers in the Truth or Dare doc. He was not ready or willing to be that person, to be making that statement.
So, I guess what I’m saying with all that is that Nat’l Coming Out Day is great and celebratory and everything, but in order to actually be empowering, it has to be on each individuals’ own terms. Once I outed a friend (about something totally unrelated to being LGBT) as part of a joke, and then I felt really crummy about it. I just let time wash over that one, but it’s still a prominent memory.
So where am I at? I still have a fair share of coming out to do. I’m not doing any of it today. It does feel imminent though – I’d say within the next 6 months. I look forward to the day that my driver’s license, signature, little plastic rectangle on the custodial office, Facebook page, the words out of teachers’ and co-workers’ mouths, and everything else, all say the same thing! As of now, I have 5 different names going on in different places, and none of them are the full name I actually want to go by!
Here’s something I wrote that really captures this feeling (I wrote it almost exactly 2 years ago. Dang, that is a long time!): Fractured identity and fragmented feelings
Moving on to mental health:
My mental health has improved by leaps and bounds within the past 9 months, and I have not written about it. Actually, the most recent thing I did write was 9 months ago, here: A full year later / Making major changes. I was hopeful but tentative. I had had 23 good days in a row (an anomaly), due to starting yet another drug. I am still on that drug, and I am still having good day after good day after good day (other than not so great days due to a cold, a handful of really bad days during the stress of surgery).
Overall, I am more stable and happy than I ever have been before, BY FAR. And I feel certain that I can attribute that to a drug, something I never would have thought possible before (I’ve been on lots of drugs over a span of many years, and did not have a good experience with any of them. I had gone off medications completely for 10 years because I thought it was hopeless. I always downplayed the usefulness of psychotropic drugs. When I was younger, I thought I was the only one who had this reaction; now I know it’s fairly common to have to go through a trial and error period, searching for something that will actually be a good match.
During those 10 years I was not taking medications, I focused on other things to improve my well-being. Most of that was social in nature – focusing on not isolating, focusing on positive connections with people, focusing on emotional intimacy. It worked. To an extent. I started to think that getting back into therapy would probably help. That worked too. It felt miraculous for a while at first, actually. But as the years went by, kinda only to an extent. I found myself in a situation where I HAD to get back on medications, and I was not happy about that at all. In fact, I recall thinking a lot about when I’d be able to get off of them (maybe 6 months? I was thinking…)
In the end, it has worked out better than I ever could have imagined. I am neither pro-med nor anti-med. It’s way too personal, and different for each individual, to have a general feeling about it. But I can say that I used to be anti-med, and now I feel that, for some people, it can be that one game changer that makes all the difference.