Specific trauma feels so far awayPosted: November 11, 2022 Filed under: mental health, Writing | Tags: anniversary, anxiety, bipolar disorder, depression, emotions, hospitalization, memoir, mental health, psychosis, ptsd, stress, therapy, trauma Leave a comment
For as long as I’ve had this blog (9 years!), I’ve written annually around this time of year, about a hospitalization I went through at age 17. I was there for 19 days; it was voluntary but quickly became involuntary once it was clear I wasn’t actually based in reality.
This year, I wasn’t sure if was going to write anything. I’ve been thinking it over for the past few days. What else is there to say? I mean, there’s a lot, but is it worthwhile? Do I want to get back into the headspace? I’m not even sure if that’s possible anymore (which is mostly a positive thing.)
I started by opening a tab for each post I’ve made about it, so far. Rereading it all. I’m not sure why, but I think I want to try to plot out a timeline, even if it’s hazy and incomplete.
November 12 – December 1, 1999 – hospital
Spring of 2001 – wrote down everything I could remember, for a college course
Next 10+ years – continued to get blindsided by the emotional intensity of this trauma, all the time, but especially mid-November
Spring of 2012 – talked a lot about it, tentatively, in therapy, which really started to help
2013 – got a copy of the medical records. Was disappointed at how boring and repetitive they were. There were some nuggets though, for sure. First wrote about it on my blog.
2014 – brought the records to therapy. Watched my therapist zero in on the paperwork as if she were working out a puzzle. She kinda tore it apart, actually! This was both alarming and calming. Something was definitely lifting.
2015 – I got the records back from my therapist (she had been hanging on to them for me). I had been hospitalized earlier in the year, for the 2nd time for the same reasons, and it started to sink in that I might actually have bipolar disorder, type 1, might have had it this whole time.
2016 – didn’t dwell on it. Lots of other things were going on.
2017 – I was hospitalized for a third time, and the traumatic event was starting to be re-contextualized as just, one of the times I was hospitalized.
2018 – This is where I really started to rework things. I’m not sure how to distill that down into a sentence; it’s just pretty amazing to be able to look back on this journey.
2019 – This was the 20th anniversary of my first hospitalization. I wrote that I thought all this writing might serve a future purpose; I just wasn’t sure what yet. I included a photograph of a re-working of different photos I did for a college project, in the spring of 2002.
2020 – I wrote about starting work on a memoir, and the raw material from that college course in 2001 factors into it, but I couldn’t get myself to revise that stuff; make it more cohesive. I was working hard on everything else surrounding it.
2021 – I had gotten past that block and had reworked the writing quite a bit.
Earlier in 2022 – I was clearing out a lot of old stuff from a storage area in my parents’ house, this spring. I save everything. In sorting through all that stuff and reorganizing it to bring to my house, I found a hand-written letter my mom had given to me while in the hospital. I had been looking for this ever since then! I even asked her about it; I was at a loss for where it might have gone. It was in response to a letter I wrote her – that piece is still a mystery, but it was so healing to finally find this thing.
Present day (my 10th time posting about this) – I’m stuck. My memoir is off track and I’m sad about it. I started to revise it drastically in a whole different direction for a long time, but it doesn’t feel like it’s mine anymore and so I stopped. I haven’t touched it for over 6 months. Instead, I’ve been doing a lot of journal writing, emailing my therapist, the usual. Recently, I started on ideas for a 2nd memoir. I’m starting to feel a little more serious about writing overall; I think I have three different stories to tell. Working on this other memoir has felt rewarding, but it’s not the story. I want to get back to this traumatic event and the events surrounding it. I feel like I might be on the cusp of getting back to it…
In those early posts about the hospitalization, I kept ascertaining that I didn’t need to be there, that it was extreme, and I didn’t actually lose a grip on reality until I got there. I see it much differently now. I definitely was going to need to be there – it was more a matter of when? If I hadn’t gotten my mom to get me there, I would have eventually had to go some other way. I know that now. And I could have ended up doing a lot more long-term damage. It’s kinda incredible that at 17, I had enough insight to know I needed to get there. Somehow, I saved myself. (In looking back over all these posts, I realized I wrote something very similar in 2018. For me, writing and recording and reviewing and revisiting all overlap and blend into each other. I’m starting to feel like maybe I am a memoirist? And trying to understand this one experience could be the impetus that has been pushing me there?)
Working 9-5Posted: August 7, 2021 Filed under: mental health | Tags: bipolar disorder, Janitorial work, medications, mental health, stress, work Leave a comment
Last Wednesday, I asked my supervisor if I could work from 9am – 5:30pm for the rest of the summer, and he agreed. And then it struck me all over again that I’ve never worked this standard shift before in my life – I’ve worked almost everything except, spanning from super early to super late (excluding overnights). I’ve been with this school district for 19 years so far, first as a painter, but mostly as a janitor. It’s a full-time job, Monday-Friday, but my times have varied greatly.
I’ve joked with people before that my job is the antithesis of the 9-5 office job, and I like that about it. Generally, I work a B-shift, which I am a big fan of. But when kids are on break from school, including over the summer, I have to come in super early, and it is extremely hard for me to adjust, every time. My current supervisor is aware and he’s been accommodating for the most part. He set it up so I can come in at 8am instead of 6am like everyone else.
But this summer has been extra stressful in a lot of ways. We have lots of contractors in the building doing renovations. And my supervisor is leaving for a month, soon. And I have trouble working with my co-workers, since I’m used to the solitude of the job when school is in session. Oh also, lots of questions about how we will be adjusting to the pandemic coming up this fall. Lots of unknowns.
Due to all this stuff, I had a hypomanic episode earlier this summer, including being on the brink of a break from reality. I caught myself in time and course corrected, but recovery has been slow. I was out of work for a week and a half, and coming back has continued to be a struggle.
In talking to my therapist, she suggested I ask for a change in hours. Coming in later has always helped me feel like more of a person, but I didn’t want to ask for something too late – it wouldn’t make sense right now. She said, why don’t I ask for a 9am or a 9:30am start time. I laughed and told her we don’t do that. We don’t work 9-5. No one has. We do everything but. But then I let it sink in… Why not though?!
So, in talking with my supervisor, I was more upfront with him than ever before, citing that I need to take time off for therapy appointments, and that I am on medication that makes it difficult to get up early. Prior to this, I was always evasive as to WHY, exactly, I needed time off and why I hated mornings, only saying, “I have an appointment,” and repeating over and over again, like a mantra, “I don’t like mornings.” He was accommodating enough, and because of long absences due to hospitalizations, he probably had more than a clue about it. I just never said it out loud. It felt good. It felt like I was advocating for myself, and I was being accepted for this aspect of myself.
So in two days, I get to wake up at like 7:30am, which isn’t my favorite but seems actually do-able, short-term. Gonna join the masses, gear up for rush-hour traffic, enjoy a happy hour or two. Until school starts, that is, and I get to return to my favorite shift of all time, 1-9:30pm. That shift fits me like a part of my identity.
Edit: I only got to work 9-5:30 for one day! Blah! My supervisor wanted to negotiate further, and we agreed on 8:30-5pm. The 9-5:30pm shift remains elusive.
20th anniversary of a specific traumaPosted: November 11, 2019 Filed under: mental health, Uncategorized, Writing | Tags: anniversary, anxiety, bipolar disorder, depression, emotions, mental health, psychiatric hospital, psychosis, psychotic break, ptsd, stress, therapy, trauma, writing 6 Comments
For 20 years, I’ve been churning and mulling over, obsessing and ruminating about, writing and re-writing the events surrounding my first hospitalization which happened around this time of year in 1999, when I was 17. Up until the age of 30, it had a hold on me in that way that trauma can stay with a person: it was my biggest source of shame and fear, I felt like it defined my past and if only I had avoided it, maybe my mental health wouldn’t have gotten so derailed for so long. It was a super sore spot that for some reason I just kept picking at, revisiting, but wasn’t getting anywhere with.
I’m 37 now, and I’ve been seeing it much differently, with the help of my therapist. It was extreme and drastic, for sure, but it led to me getting real help that I desperately needed – without that help, my mental state could have festered and bubbled badly for much longer, in a much darker place; who knows what might have happened. Not that I didn’t suffer for way too long regardless. I did! But some systems were in place that helped me feel not so alone, even through those times where I despised those systems.
I’m writing kinda vaguely here… I voluntarily admitted myself to a psychiatric unit because I thought I was bipolar and I stopped being able to sleep, and things were getting wonky. I was indeed diagnosed with bipolar disorder, as well as having gone through a psychotic break. I was there for 3 weeks, even though I kept thinking I could leave at any minute, if I could just figure my way out. I was put on medications, and later on, different ones and different ones and different ones. So many different ones. I got disillusioned with drugs and eventually weened myself off of everything because they ultimately didn’t make any sense. They did do me some good at some points in time, but not much.
The thing that helped more than anything else, ever in my life, was getting assigned a therapist. I was required to attend 20 sessions after my hospitalization; I ended up going so many more times than that; if not specifically with her because she moved away, then to the therapist she referred me to. In fact, I’m still seeing this therapist (with a break of a bunch of years in between, during that time where I wrote off meds and all other psychological interventions).
I was talking recently with a friend about therapy, (It seems like all of my friends are currently in therapy…) and I referred to the fact that my parents facilitated me being in therapy from such a young age (and by young, I mean 18) as “early intervention.” I know that term usually refers to 3-5 year-old’s who might be on the spectrum or might have a learning disability or a speech delay. But, sadly, when it comes to emotions and figuring out how to communicate them, age 18 is still pretty much “early intervention,” in my opinion. Things are definitely getting better, but not fast enough! And when I said that out loud to my friend, it hit me how lucky I was. I always went to therapy willingly – at some times, it felt like the only thing I had to look forward to. Usually it felt like the progress was not quantifiable. Was it doing anything? What good was it? Was it worth it? I still pretty much always loved going, even if logically I wasn’t so sure.
My therapist has told me that among her clients who have gone through psychosis, I’m the only one who has ever wanted to revisit it (for me, there are 3 instances). Everyone else just wants to put it behind them. I don’t understand that; and I’ve ended up doing a lot more than just revisiting it. I think there’s a lot of worth there. It feels like a gold mine in an alternate universe. The more I write, the more I can mine it later, for future purposes. I’m not sure what those purposes are, exactly, yet, but I want the raw material to be intact as much as possible.
In the spirit of that, here’s one short snippet, that I first wrote in 2001:
“I’m going to be leaving tomorrow,” I announced at our afternoon community meeting. I figured that since I wanted to come here, I was allowed to tell them when I wanted to leave. I was getting sick of this charade. The day before, I had told the nurse that I wanted to go home, expecting to find my parents there when I woke up. When nothing came of that, I panicked, but then I realized the key was for me to get myself out. I was going to have to stand up to everyone and announce my intentions. I had to take control. Everyone, including the staff workers, stared at me without saying a word. That made me uneasy, especially when my statement went untouched, and the meeting continued with staff member Bob saying, “If no one has anything else to say, it’s time to go to the gym.” It’s alright, it’s alright. They’re just testing me.”
There’s a lot more where that came from. Maybe one day I’ll share it with a wider audience.
Two year anniversary of my most recent hospitalizationPosted: May 15, 2019 Filed under: mental health | Tags: anniversary, anxiety, bipolar disorder, depression, emotions, hospitalization, mania, mental health, psychiatric hospital, psychosis, transgender, writing Leave a comment
I’ve been hospitalized a total of 3 times for mania and psychosis; for some reason, the anniversary of this one, this time around, is hitting me pretty hard. Every year in November, I make a post to remember and acknowledge my first hospitalization, because it was so traumatic, and it’s stayed with me even now, 20 years after the fact. These two other, more recent ones were much easier to get past / work through. In fact, I’d even say that this most recent one was even cathartic, in a positive sense (not so much for my loved ones, I know!) But personally, it helped me heal from the other two times. And the fact that I didn’t boomerang into a deep, dark depression afterward… that I was able to take as much time off as I needed and kind of come back around gradually, organically, meant the world to me.
It’s been a very rainy May so far. It reminds me of looking out the windows of the hospital; it was rainy a lot of the time then too. It was my brother’s birthday, and then Mother’s Day, and right after that, I was admitted to the hospital. The Lilac Festival was going on; there are lilacs in bloom right now. We have a lilac bush; I can see the flowers from our dining room window.
Last year during this week, I was preoccupied with a trip to Massachusetts to visit our friends. I didn’t think about the fact that we’d be away during this week. It occurred to me while we were on the trip, I think. I remember being hyper-aware of everything blooming at that time, exactly. We smelled lots of flowers while we walked around different parts of Boston and Salem. Things weren’t in bloom when we left, but suddenly, bam!, they were, when we got back.
I’ve been super stable, mental health-wise, for a long time now. I’d say I re-stabilized by September of 2017, and I’ve been good since then. Great, even. Super productive with creative projects. Anxiety has been at an all time low. I have energy. My mood is very very very even-keeled. Iike, maybe a little too much. Meaning, there’s so little variety in how I feel, from day to day. But… I’ll take it. I haven’t felt any compulsions. I haven’t been having obsessive thoughts. The only down-side to my mental landscape, in an ongoing way, is that I sleep a LOT. And I have trouble waking up in the mornings. I usually sleep 10-11 hours a day, on average. Which is most likely a side effect of the medication I’m on. (Seroquel.) But, also, as the years have gone on, I’m also realizing it just might be how much sleep is actually optimal for me. I generally slept that much, if I was able to, long before starting this medication. And I used to beat myself up about it, like I was being lazy and unproductive. And whenever I’ve had to get on an earlier schedule, such as during summers, for work, my mood, energy levels, and motivation have always suffered. Probably because I wasn’t sleeping as much as I seem to need to.
So I’ve decided to give myself a break. It works out much better if I let myself sleep as much as I tend to need to (as opposed to how much I think I should want to, I guess?), life goes much more smoothly.
Huh, I went on an unexpected tangent about sleep! I meant to write about my most recent hospitalization. Actually, I’ve already written, in a word document, as much as I could remember from my week-long stay. It was jam packed with activities; it was action packed. So maybe I’ll just cut and paste a slice of life from that time. …I just pulled it up to find an excerpt I could put here, but it’s total nonsense! No one paragraph makes any sense within itself. Also I burst out laughing a bunch of times. I think it’s not quite ready for consumption yet. But it might be, one day, as part of a larger project…
Thinking about traumaPosted: November 11, 2018 Filed under: mental health | Tags: anniversary, anxiety, bipolar disorder, depression, medical treatment, mental health, psychiatric hospital, psychosis, psychotic break, school, stress, The Handmaid's Tale, trauma 3 Comments
Every year around mid-November, I tend to think back and reflect on a defining period of time in my adolescence. And for as long as I’ve had this blog, I’ve written something about it, annually. When I was 17, I voluntarily admitted myself to a psychiatric unit. I envisioned I’d be there for a day or two; in the end I was there for 3 weeks, with everything quickly no longer becoming my choice. It was both good and bad that I went voluntarily – On one hand, I didn’t resent anyone else for making that decision, and I may have made some things easier for calling that shot so early-on in my downward spiral. Specifically, I could have been walking around in a mild/moderate psychosis for a long time without giving off any glaring red flags, which could have been much more damaging in the long run, led to me slipping back into that state easier and more frequently as the years went by. On the other hand, I couldn’t forgive myself for the longest time, and I blamed that traumatic experience on being just the start of all problems and struggles that came after it. If I hadn’t gone to the hospital, everything would have been different, I thought. If I hadn’t gone to the hospital, I wouldn’t have lost my mind, I thought. Now though, 19 years later, I don’t think those things anymore. Instead, I think that I was an incredibly self-aware teenager, and I acted out of self-preservation.
When i was in the hospital, it was expected that I keep up with my schoolwork, or at the very least, try. In Humanities class, we were just starting to read The Handmaid’s Tale. Instead of my school-issued book arriving for me to read, a copy was sent from the Central Public Library, which made me immediately suspicious. I was paranoid that we were being force-fed, brainwashed, and doped, and every little detail just added fire to that flame-in-my-brain. I started reading it anyway, but I didn’t get far. On pages 3 and 4, phrases such as,
“A window, two white curtains. …When the windown is partly open – it only opens partly…” “I know why there is no glass, in front of the watercolor picture of blue irises, and why the window only opens partly and why the glass in it is shatterproof.”
really freaked me out!! All I could think about were the parallels. The decor in my own hospital room, the panic and the dystopian surrealism of it all. This part especially has always stayed with me:
“It isn’t running away they’re afraid of. We wouldn’t get far. It’s those other escapes, the ones you can open in yourself, given a cutting edge.”
I’m pretty sure I did eventually finish the book. But I dropped the class. I dropped a bunch of classes when I got back to school, out of necessity. In order to graduate and have as little stress as possible while doing so. In order to try to put some of my mental health issues behind me and to look forward to college…
My spouse and I just finished watching The Handmaid’s Tale, up through season 2. So depressing and distressing. Just a really jarring portrait of where we could end up, some of it hitting way too close to home – not so much on a personal level, but in a collective consciousness kind of way. Hauntingly horrifying.
I got the book out of the library again – my local branch this time, not the Central Public Library… Gonna attempt to re-read it.
Here’s what I wrote in the past, on the topic of being hospitalized:
2013: Continuing to work through a specific trauma
2014: That specific trauma is still there
2015: That specific trauma is no longer a big deal
2016: Anniversaries, traumas, deaths, and name-change
2017: As that specific trauma dissipates further…
Recent books I’ve read with mental health contentPosted: January 29, 2018 Filed under: mental health, Writing | Tags: anxiety, bipolar disorder, book review, books, depression, emotions, media, medications, mental health, psychiatric hospital, psychiatry, stress, writing 8 Comments
Back in November, I lamented about not being able to find much writing out there that really portrays what can go on in someone’s head while they are in the middle of a psychotic episode. In the past few weeks, two such books sorta fell into my lap, so I want to mention them!
My spouse picked up a book called Mental: Lithium, Love, and Losing My Mind from the library last weekend. They pointed it out to me, like, eh? You’ll want to read this! This weekend, I was super sick, and I binge read it in 2 days, while trying to stay warm on the couch. It was compelling for so many different reasons, one major one being that I could relate to so much of it. The author, Jaime Lowe, was also hospitalized for a good chunk of her senior year of high school, and she also just took the pills without much reflection for years and years. Like, it’s something that is a thing now. (Although, for me, it was Depakote, and not Lithium.) She had another manic / psychotic episode when she tried to get off Lithium at age 25. I successfully(?) did get off all my pills in my early 20s, and that was my new normal for a long time, until I had 2 subsequent manic / psychotic episodes in my 30s. She had to switch off of Lithium because it was killing her kidneys, and she had a really hard time stomaching Depakoke, but she finally did get through it.
Having to switch sent her on a spiritual journey to learn about Lithium as not just a psychotropic drug but as an element, super common in nature. Which made the book encompass much more than just her mental health trajectory. The best thing about it though, was how thoroughly and deeply she gets back into that headspace of being so completely out of her mind. The slightest suggestion toward a minuscule thing could send her on an all-day (or longer) journey to do and/or be that thing. She devastated every aspect of her life that second time around. I was surprised by the fact that everyone around her wanted to keep her out of the hospital for a second time because she was no longer an adolescent and the adult ward was apparently to be avoided at all costs. As a result, she was in that state much longer – days, weeks… I was brought to the hospital like, BAM! So fast my head didn’t get a chance to spin out too far too fast with too many repercussions.
The second book I’m reading with a portrayal of a breakdown is called The Petting Zoo, by Jim Carroll (of The Basketball Diaries fame). He wrote this book in 2010, and according to the forward by Patti Smith, he died at his desk while writing. He had finished it at the time of his death, but it was still in the editing process. A few people had their hands in trying to edit as close to Jim’s style as possible. It’s fiction. It’s hard for me to get through (probably largely because it’s fiction – I almost always gravitate toward non-fiction and memoir). The book opens with the main character, Billy, in the midst of a manic frenzy. I didn’t know the book would be about that at all – nothing about that on the back cover summary – I bought it on a whim from a record store that was going out of business. So it was interesting to get thrown into that unexpectedly, but I gotta say it felt lacking in… something.
Billy has some kind of crisis over an art opening at the MET and how what he saw of this one artist affects how he’s approaching his art for his own upcoming show. He careens off down the steps, on his own, into the Central Park Zoo, more specifically a side spectacle, an outdated petting zoo. From there, he flees down the street, in his tuxedo and fancy shoes, to a building that reminds him of an Aztec temple. He then hits his head and his eye on branches or something and starts shouting something about a knife. He has a momentary black-out and the cops pick him up. At which point he comes back to reality, and that’s it. Although the aftermath ends up taking longer, red tape and everything. He has to stay overnight in a mental ward, which is just kind of looked at as a novelty, a curiosity, a stop-over.
In conclusion, real life is zanier (or at least more compelling to me) than fiction.
As that specific trauma dissipates further…Posted: November 11, 2017 Filed under: mental health, Writing | Tags: anniversary, anxiety, bipolar disorder, depression, emotions, hospitalization, medical treatment, mental health, psychiatric hospital, stress, therapy, trauma, writing 2 Comments
Every year around this time, I revisit the first time I was hospitalized, which was Veteran’s Day weekend in 1999. It used to feel like the worst thing that ever happened to me. And, in terms of fallout, I still think that it was – it just no longer feels that way.
Two years after this hospitalization, I wrote an essay for a class, including every little thing I could remember about the experience. A few months ago, I gave that document to my therapist to read over. I didn’t necessarily want to delve into it or have her probe me about it. I just wanted for her to have read it. And she really only said one thing: “There were always questions about whether you had been in a psychotic state or not. This definitely shows that you were.” And, strangely, I was satisfied with that. As if I could lay to rest whether I needed to be there or not. For the most part…
I’m currently giving my most recent hospitalization (from 6 months ago) the same treatment, as best as I can remember. I’m up to 2,500 words so far, and only about 15% done. I don’t have any plans for it other than just something that I want to do for myself. We’ll see. I feel like there’s not much writing out there that really portrays what can go on in someone’s head while they are in the middle of psychosis. (If anyone has any recommendations, let me know!) That does not mean I have lofty goals for where I could take this writing; it’s just a motivating factor, something that pushes me to try to capture it as best as I can.
I just did a cursory search, and a couple of books that stand out as worth checking out are:
Stress Fracture: A Memoir of Psychosis and Brain on Fire: My Month of Madness
Here are the other posts I have made, yearly:
Continuing to work through a specific trauma – Four years ago, I wrote about how I finally gained access to the medical records from my hospital stay, and how I started to process things differently with the help of my therapist.
That specific trauma is still there – Three years ago, I wrote about finally bringing that record into therapy and how it felt to have her go through it. I was starting to realize that maybe I didn’t need to pick it all apart; maybe my perspective was shifting naturally, over time.
That specific trauma is no longer a big deal – Two years ago, I wrote about how much time has changed things, and it no longer felt like a big deal. The fact that I had been hospitalized again, that year, surprisingly helped me find ways to heal, rather than adding more baggage onto the feeling of it.
Anniversaries, traumas, deaths, and name change – Then last year, I wrote about how other things were going on, and I really didn’t have the space or time to reflect. Which was perfectly fine. Between the election results, working on getting my name legally changed, and other emotional markers, it just didn’t come up.
This year, I am thinking about it, but it is more in terms of “one of the times I was hospitalized,” rather than, “a traumatic event – the worst thing that ever happened to me,” etc.
I’ve been thinking of all the little occurrences that go into the bigger story. Like, for example, in that state, my mind was so malleable and adaptable that it seemed like, theoretically, anything could be true and just as easily, not true all at once. Which is one of the reasons I avoided watching any TV. (There were two TVs on the unit – one played music and had legalese constantly scrolling, in both Spanish and English – like a “know your rights” kind of thing. The other TV had a remote and listing of channels, and we could watch whatever we wanted, 24/7.) At one point I did sit down, and there was a documentary on about pineapples. (Er, rather I’m sure the documentary was on something more broad, but I saw the pineapple part. I started yelling about the unlikelihood about these pineapples growing. Don’t pineapples grow on trees like sensible fruits? What were these miniature pineapples growing up from fronds in the dirt?! A patient who knew-all immediately matched the intensity I was spewing, and argued for the realness of these pineapples.
A few months later, my spouse’s aunt was visiting from Hawaii, and sure enough, she grows pineapples on her property and sure enough, she had pics to prove it. I can now accept it fully.
World mental health day / Nat’l coming out day 2017Posted: October 12, 2017 Filed under: coming out, mental health, name change | Tags: androgyny, bipolar disorder, coming out, depression, gender identity, genderqueer, lgbtq, non-binary, queer, school, trans, transgender, work Leave a comment
These days occur consecutively every year – October 10th and 11th. It’s a good chance to kind of look back and take stock. And to see where I was at; here’s what I wrote last year:
World mental health day / Nat’l coming out day 2016
Before talking about this year, I just want to note that last year I said, “I’d say within the next 6 months I’ll be out at work and everywhere else. I look forward to the day that my driver’s license, signature, little plastic rectangle on the custodial office, Facebook page, the words out of teachers’ and co-workers’ mouths, and everything else, all say the same thing!” I’ve reached that point!!! Well, everything except that little plastic rectangle, but that is in-process (see below)!
This past year in my mental health landscape: I thought I was stable in a way that couldn’t be rocked, but actually I ended up back in the hospital again with another manic / psychotic episode. I know my loved ones went through a lot of stress and strife, but, in comparison to past episodes, this felt like a breeze, and it even felt healing in many ways. I do want to try to write about this, but I’m not quite there yet. Hopefully soon. I spent two months out of work, I got raised to triple my prior dose of Seroquel (a drug I continue to like a lot – a first for me), and now I’m down to double my prior dose. I’m off of any antidepressants right now. I’m worried I will lapse into another depression, but so far, so good. I’m starting to finally address the issues I’m having with oversleeping. But, to be honest, if oversleeping is the worst thing to come out of being in a really good place mentally otherwise, then so be it, I guess… For now at least.
In terms of National Coming Out Day, coming out is happening all the time, and I’m glad to be in a place where I’m neither invisible nor fearful of having to come out again and again and again. I love every opportunity. Take yesterday for example: I didn’t realize it was National Coming Out Day until that night when I went on facebook after work. And during that day, I had two instances of coming out. While I was working in the cafeteria during lunch, a kid asked me, “Are you a boy?” I replied, “I’m neither. I’m a little bit of both.” He replied, “Really?!” And I said, “Yeah!” I had a big smile on my face. Then later in the afternoon, I realized that my new boss(?) got his plastic rectangle with his name “engraved” and it was now on the custodial door, and I’ve been waiting for mine since January, when I changed my name. So instead of getting worked up about that, I just wrote down on a piece of paper what I wanted (so there’d be no confusion) and explained to the administrative assistant that Mr. [last name] has his on the door and I’ve been waiting for mine. She apologized for forgetting to include mine in the order, and said she would go ahead and order mine. I gave her the paper: It said, “Mx. [last name].” She verbalized that back to me to make sure it was right, and I said, “Yep.” I should have that up hopefully within a couple of weeks, finally. This feels like such a victory!
There’s one other thing I want to mention regarding mental health: I started listening exclusively to a new-to-me podcast. By this, I mean, I listen to podcasts every day while at work. And previously, that would be somewhere between 5-8 different ones at any given time. Right now, for whatever reason, I’m just listening to one, all day every day. I’m sure I’ll get tired of it and get back to some of my other ones, but for now, it’s pretty mesmerizing. If you’re interested in checking it out, it’s called the Mental Illness Happy Hour. It is definitely not for the faint of heart. The host jokes that he does not give advanced notice for triggers because he would have to stop every couple of minutes to announce another Trigger Warning. And it is absolutely true. There is a lot of stuff about abuse of all kinds, dark secrets and shame, both sexual in nature and just like, the kinds of stuff that randomly pops in your head and you hate yourself for thinking it. The host lightens things up by being in turns uplifting and darkly humorous. Each show is somewhere between 2-3 hours (!?!), and he’d read people’s surveys they’ve sent in anonymously, and he will also interview one person per show. He’s doing all this seemingly on his own, and he’s making a living off of it. I’m kinda obsessed right now.
I’m doing something I dreaded, and it’s not so badPosted: September 12, 2017 Filed under: Janitorial work | Tags: anxiety, back to school, bipolar disorder, depression, emotions, janitors, manual labor, mental health, school, stress, testosterone, work Leave a comment
At the school I work at, there are two main sections to be cleaned – upstairs and downstairs. For the vast majority of my time there, I’ve always cleaned the downstairs. The water fountain was better. It was cooler in hot weather. There were more people to interact with. The rooms were cleaner (for the most part). I was closer to things that I needed to access: receiving room with supplies, dumpsters, the custodial office.
About 2 years ago, I cleaned the upstairs for roughly 6 months. It was not my choice – things were rough in a lot of different ways, and this was just one more thing. One more really big thing though, in my head. I was in and out of work a few times, due to a serious depression. When I was up there, it felt as if I could barely do the tasks, and the fact that they were recurring forever and ever was intolerable. I was rushing myself, always feeling like I didn’t have enough time to do everything. I was at a loss as to what to do about all the recycling, which for me is a “must do.” I just felt like I did not belong up there. I was trying to pop in and out of areas before kids were out of school, and then backtracking, which felt totally inefficient but seemed to be the only way to keep busy. Just being felt painful. And the fact that the being was on the second floor made the pain feel compounded so tightly within itself that I was struggling beyond belief.
By about mid-October of 2015, I was told I was switching back to the first floor. Apparently my co-worker wasn’t doing a great job, there were complaints, it was more important to be clean on the first floor than the second floor. ?? Anyway, at that time, I was sooooooo relieved. It was a visceral feeling. All the negativity was left up on the second floor, and although I was still struggling, I fit right back into the first floor. A few months later, I got on a medication that really started working for me, and the next two years went really well for the most part.
Sometimes a little too well: As I’ve mentioned before, I went through a manic episode in May, and I was out for two months, recovering from that. In a good way though – so far so good on the avoidance of a rebound depression. However, I lost my status at work. When I got back, it was clear that the new guy was now the new second-in-command.
In the past, this would have felt devastating, and I would have clung onto whatever control I did have, to the detriment of myself, only, really. I know because I’d already put myself through all that, big time. This time around, I decided to take it all in stride, as best I could. Instead of arguing about how I couldn’t do the second floor or anything like that, I spent time “staking it out,” I guess you could say? Just, spending time up there visualizing this or that and getting accustomed to the idea, before kids came back.
Now that school is back in session, I am IN IT. And it’s not actually bad. So far it has felt preferable, in fact. I’ve made some changes to my routine that really feel like they’re making a difference. Instead of bringing my cart plus mop bucket plus garbage barrel to each and every classroom, I am “sweeping through,” first with the garbage and rags to wipe everything down, then with the vacuum for all the area rugs, and then with the dust mop. I am taking WAY more steps going through multiple times instead of going room-by-room, but it’s feeling good. Feeling faster, even.
And the weather has not been too hot. And there’s a new drinking fountain up there as of a couple months ago – the kind where you can easily fill up a water bottle from, and it says how many plastic bottles you are saving by doing so. I love it! And I like the fact that the teachers clear out early up there, for the most part. And the rooms have been clean thus-far.
Best of all, I have my own “room” to store stuff, up there. That’s new. So while things are kinda turbulent with co-worker dynamics, I am so glad to have all my stuff and activities separate from theirs, more-so than ever before.
All the negative associations I’ve held about the second floor have pretty much melted away. A lot of that has to do with mental health and coming out at work. I don’t feel like I’m trying so hard to get in and out of places. I actually feel like I belong. When I talk with people, I like my voice. When I walk and do all this physical work, more muscle mass is making it feel much more effortless.
The only thing I’m dreading now is “gym use.” Coming soon will be screaming children using the gym for their cheer-leading practice, from 6-8:30pm. And once that’s over, it’ll be basketball all winter-long. We’ll see how well I can adjust…
Priorities, at my most vulnerablePosted: June 4, 2017 Filed under: mental health, Writing | Tags: anxiety, bipolar disorder, genderqueer, hospitalization, lgbtq, medical treatment, mental health, psychiatry, queer, schedule, time management, trans, transgender 1 Comment
I was in the hospital for psychiatric reasons, for a week in mid-May. It went so much smoother than my two other “stays.” (Those occurred in 1999 and 2015). I attribute that smoothness to:
– Having a complete social network around me for the first time in my life
– The fact that even though I had never been to THIS hospital, I was able to draw from my experience in 2015, and use that blueprint to (semi)-successfully navigate my way through, this time around.
– I was already on meds that were working pretty well, for the first time ever. This means that my psychiatrist wasn’t just taking a shot in the dark. She was just tweaking what was already working. (For me, specifically, this meant getting my Seroquel (anti-psychotic) increased from 200mg, to 600mg, dispersed into three 200mg doses throughout the day, and discontinuing the Wellbutrin (anti-depressant), at least for now.*
So, what were my priorities?
1. Getting on an adequate sleep schedule.
2. Eating the hospital food without having too many digestive issues (this included not relying too heavily on food visitors brought me, even though I was so grateful that they were doing this.)
3. Interacting as opposed to shutting down: Unless I was knocked out on meds, I was up and about, talking with people (sometimes shouting at them), pacing the halls (“going for a walk”), coloring with different medias and different methods / trying to do number puzzles (figuring out what was feeling more “right brained / left brained”), marking my turf / territory in ways that may have been specific to me (this, right here, would be a post unto itself… I’ll leave that for another day…
Some peripheral priorities / goals that I tackled / attempted and had some success with was:
1. Watching out for other people, checking in to see if they felt safe.
2. Micromanaging free-dance party / art times.
3. Getting other people condiments and other things they might need / want.
4. Modeling my behavior off of others / acting as a role model.
5. Pushing for Gym Time and Therapy Dog visits.
6. Reinforcing privacy vs. getting help. Also reinforcing quiet hours and other scheduled parts of the day.
7. Taking a shower every day (night) at the same time (10pm).
8. Dispensing important information.
I realize this post is a pretty vague sketch of some important things – this might serve as just an outline for me to fill in more interesting details / experiences / stories…
*I was also administered a shot, which I refer to as a “Haldol Cocktail.” 5 parts Haldol, 2 parts Ativan, 50 parts Benadryl. Plus, of course, my Testosterone shot – 50mg.