At the school I work at, there are two main sections to be cleaned – upstairs and downstairs. For the vast majority of my time there, I’ve always cleaned the downstairs. The water fountain was better. It was cooler in hot weather. There were more people to interact with. The rooms were cleaner (for the most part). I was closer to things that I needed to access: receiving room with supplies, dumpsters, the custodial office.
About 2 years ago, I cleaned the upstairs for roughly 6 months. It was not my choice – things were rough in a lot of different ways, and this was just one more thing. One more really big thing though, in my head. I was in and out of work a few times, due to a serious depression. When I was up there, it felt as if I could barely do the tasks, and the fact that they were recurring forever and ever was intolerable. I was rushing myself, always feeling like I didn’t have enough time to do everything. I was at a loss as to what to do about all the recycling, which for me is a “must do.” I just felt like I did not belong up there. I was trying to pop in and out of areas before kids were out of school, and then backtracking, which felt totally inefficient but seemed to be the only way to keep busy. Just being felt painful. And the fact that the being was on the second floor made the pain feel compounded so tightly within itself that I was struggling beyond belief.
By about mid-October of 2015, I was told I was switching back to the first floor. Apparently my co-worker wasn’t doing a great job, there were complaints, it was more important to be clean on the first floor than the second floor. ?? Anyway, at that time, I was sooooooo relieved. It was a visceral feeling. All the negativity was left up on the second floor, and although I was still struggling, I fit right back into the first floor. A few months later, I got on a medication that really started working for me, and the next two years went really well for the most part.
Sometimes a little too well: As I’ve mentioned before, I went through a manic episode in May, and I was out for two months, recovering from that. In a good way though – so far so good on the avoidance of a rebound depression. However, I lost my status at work. When I got back, it was clear that the new guy was now the new second-in-command.
In the past, this would have felt devastating, and I would have clung onto whatever control I did have, to the detriment of myself, only, really. I know because I’d already put myself through all that, big time. This time around, I decided to take it all in stride, as best I could. Instead of arguing about how I couldn’t do the second floor or anything like that, I spent time “staking it out,” I guess you could say? Just, spending time up there visualizing this or that and getting accustomed to the idea, before kids came back.
Now that school is back in session, I am IN IT. And it’s not actually bad. So far it has felt preferable, in fact. I’ve made some changes to my routine that really feel like they’re making a difference. Instead of bringing my cart plus mop bucket plus garbage barrel to each and every classroom, I am “sweeping through,” first with the garbage and rags to wipe everything down, then with the vacuum for all the area rugs, and then with the dust mop. I am taking WAY more steps going through multiple times instead of going room-by-room, but it’s feeling good. Feeling faster, even.
And the weather has not been too hot. And there’s a new drinking fountain up there as of a couple months ago – the kind where you can easily fill up a water bottle from, and it says how many plastic bottles you are saving by doing so. I love it! And I like the fact that the teachers clear out early up there, for the most part. And the rooms have been clean thus-far.
Best of all, I have my own “room” to store stuff, up there. That’s new. So while things are kinda turbulent with co-worker dynamics, I am so glad to have all my stuff and activities separate from theirs, more-so than ever before.
All the negative associations I’ve held about the second floor have pretty much melted away. A lot of that has to do with mental health and coming out at work. I don’t feel like I’m trying so hard to get in and out of places. I actually feel like I belong. When I talk with people, I like my voice. When I walk and do all this physical work, more muscle mass is making it feel much more effortless.
The only thing I’m dreading now is “gym use.” Coming soon will be screaming children using the gym for their cheer-leading practice, from 6-8:30pm. And once that’s over, it’ll be basketball all winter-long. We’ll see how well I can adjust…
I have a mild case of trichotillomania. It’s come and gone during different times in my life, and it’s always been specific to the hair on my face, not on my scalp.
Trichotillomania, to paraphrase wikipedia, is an impulse control disorder, also known as “hair pulling.” It’s generally triggered by anxiety and stress, and is usually treated with CBT (cognitive behavioral therapy.)
In the past, I have honed in on eyebrow and eyelash plucking, using my thumbnail and pointer finger-nail as tweezers. It hasn’t been bad over-all, like I still have eyebrows and eyelashes, it’s just that my left eyebrow is a little bit sparse. It’s barely noticeable.
I also would get chin hairs, from time to time, starting in adolescence, and I would pluck those too, with my fingers or tweezers. This was, apparently, “pro-social” behavior, because I was socialized as a female, and therefore, it’s necessary to eradicate any hint of a mustache or “chin whiskers.” ??? I mean, there’s a whole industry just devoted to that – bleaching the “mustache,” laser-hair removal, waxing, etc. Blah!
Still though, I keep pulling those hairs out not as a gendered statement, but rather because I liked the sensation of getting at them from the follicle, that very specific and very minutely visceral feeling of a “pull” away from something rooted underneath some of the layers of the skin. It’s much more satisfying to get them with my fingernails, but I also use tweezers, so I can get ’em all! The reason I’d say it’s within the realm of “trichotillomania” is because I will do this out in public and I can’t seem to get myself to stop. It’s not just in front of my bathroom mirror. It’s during break at work, with people sitting in the same vicinity. It’s during a meeting, because I am bored. It’s during a movie with a stranger sitting two seats away. Etc. Honestly, it doesn’t feel like a big deal. It’s a rough life to be constantly conforming to societal standards, at least in my opinion…
Facial hair, for me, is a hard limit. I do not want a beard. If I have a shadowy mustache, that’s fine by me, but that mustache never stays for very long before I start plucking out each hair individually. It’ll always happen eventually.
Now that I’m on a regular-ish dose of testosterone, I am getting more facial hair. And I just will not give in and shave. First off, I don’t feel like it! I prefer my methods, even if it ends up taking 10 minutes per day – more or less – to “groom” my face. Secondly, I do think that I believe that old wives’ tale, on some level, about the more you shave, the thicker and darker the hairs will fill in. I do not want to do anything that could potentially promote more facial hair growth.
I do realize this is a little bit counter-intuitive (is that the phrase I’m looking for?) Like, most people who are taking testosterone are embracing the full effect, whatever that means for them. But as someone who is non-binary, it’s a little trickier. Like, I like this effect, but this other thing screams “masculine” a little too loudly, and I’m not really feelin’ it. Something to that effect.
If my facial hair growth ever did start to feel unruly / out of my control, and / or the “grooming” ritual were creeping up toward closer to a half hour per day, something like that, I would not rule out laser hair removal At this time, it just seems a little too extreme, expensive, and unnecessary. But, hey, with this kind of journey, sometimes you never know what is coming up next!
Content note: blood, needles, things that might make you squeamish, self-injury.
Three days ago, I did my 24th shot of T. I started to psych myself out – for some reason, it suddenly seemed super-difficult. The needle looked extra long, and it has been looking that way for a while now. I decided maybe I should stick it in a “meatier” part of my quad muscle. I did, and must have hit a vein – it HURT a LOT and it bled quite a bit. I just felt like, “Damn, I’ve been working myself up about the pain more and more lately. I just wanna do it like a routine, without any glitches!”
It then occurred to me to look up the gauge online and see what was the range. I looked at my zip-lock baggie from the pharmacy, full of my syringes. I suddenly realized that my newer ones were a different shade of green than my older ones. I was looking at 23 gauge versus 21 gauge. In addition, the 21s were 1.5 inches, and the 23s were 1 inch – my fear that I was gonna hit my femur was semi-legit! I need to go back and get more 1 inch needles, pronto!
Needles are scary, right? It makes sense that people would fear needles. They hurt. Also, what about negative associations to getting shots at a doctor’s office, as a small child, vaccines and booster shots, stuff like that.
And then there’s the taking of the blood. Like, say, you have a medical condition that causes you to need regular blood draws to make sure everything is on track. If you are transgender, this is a common best practice.
When I was 17-21, I had to get regular blood work done every 3-6 months, because of a psychotropic drug I was on. I can’t remember the reason why. ( To check liver functioning, and/0r cholesterol? I forget.) It was a hassle, at the very least. But I did start getting very comfortable with it: I was present, it barely hurt – I just looked away so I didn’t have to see the vials filling up with blood.
Because of this, probably, I was intrigued by the idea of donating blood. I did it a handful of times between these ages (17-21), both at my high school and at my college. It was one of the most bizarre things, in my opinion: Here we are, a bunch of us, all laying down on cots. Any one of us might pass out at any time, and that would cause a chain reaction for others to pass out too. There are these nurses hovering over all of us, making sure we can stand up OK as if we are rising from the dead, with these baggies of blood tied to us. They are on hand with cookie packets and juice boxes. We can have as many as we want…
The one reason I stopped doing it was because I had a hard time maintaining the minimum weight requirement during college (110 lb). I didn’t have an eating disorder, per se, I just didn’t have an appetite or desire for much of anything at all. I also struggled with anemia.
And self-injury too. In that case, pain was my friend. I guess I can best describe it as, I would work myself up into such a frenzy that cutting my skin felt like the only thing that would bring me down. I was hyper-ritualistic about it. It was a fairly common occurrence for years, but never “severe.” And I don’t do it anymore.
Testosterone has changed my relationship to pain, for sure. I’ve written about that here:
Differences In How I Experience Pain
Here’s a quick excerpt (I wrote this somewhere around 3 years ago):
Before I started taking testosterone, I had a peculiar, but not really uncommon, relationship to pain. In many cases, I derived pleasure from pain. I would create sensations of pain, within my control, in an effort to calm myself. Also, when I’d hurt myself accidentally like for example, hit my arm on a doorway, I would feel alarm, followed by an adrenaline rush, followed by a pleasant soothing wave.
Now? If I hurt myself, it hurts! If I accidentally ran into a doorway, it would not be pleasant in any way, shape, or form. I remember the first few times I got hurt in little ways, in the first couple of months of being on testosterone; I was so surprised by how much pain was coursing through my body. I just felt like, aaaaaah! I’ve been swearing under my breath and feeling unnerved by how much stuff hurts.
So what am I trying to get at? I guess I just want to acknowledge that sticking yourself with a needle, in an ongoing way, is a really intense thing to do. And it’s totally understandable that some trans-people would just have a hard limit and say, “I’m not doing that.” For myriad reasons. So at least there are other options:
– Gels, patches, and creams (unfortunately, quite costly)
– Sub-cutaneous injections (not as deep)
– Stuff like Nebido that’s injected every 3 months or so
Does anyone have experiences with switching methods?
Doing self-injections feels like a badge of honor, but I’m not quite sure that it feels like an “honorable” thing to do…
I was in the hospital for psychiatric reasons, for a week in mid-May. It went so much smoother than my two other “stays.” (Those occurred in 1999 and 2015). I attribute that smoothness to:
– Having a complete social network around me for the first time in my life
– The fact that even though I had never been to THIS hospital, I was able to draw from my experience in 2015, and use that blueprint to (semi)-successfully navigate my way through, this time around.
– I was already on meds that were working pretty well, for the first time ever. This means that my psychiatrist wasn’t just taking a shot in the dark. She was just tweaking what was already working. (For me, specifically, this meant getting my Seroquel (anti-psychotic) increased from 200mg, to 600mg, dispersed into three 200mg doses throughout the day, and discontinuing the Wellbutrin (anti-depressant), at least for now.*
So, what were my priorities?
1. Getting on an adequate sleep schedule.
2. Eating the hospital food without having too many digestive issues (this included not relying too heavily on food visitors brought me, even though I was so grateful that they were doing this.)
3. Interacting as opposed to shutting down: Unless I was knocked out on meds, I was up and about, talking with people (sometimes shouting at them), pacing the halls (“going for a walk”), coloring with different medias and different methods / trying to do number puzzles (figuring out what was feeling more “right brained / left brained”), marking my turf / territory in ways that may have been specific to me (this, right here, would be a post unto itself… I’ll leave that for another day…
Some peripheral priorities / goals that I tackled / attempted and had some success with was:
1. Watching out for other people, checking in to see if they felt safe.
2. Micromanaging free-dance party / art times.
3. Getting other people condiments and other things they might need / want.
4. Modeling my behavior off of others / acting as a role model.
5. Pushing for Gym Time and Therapy Dog visits.
6. Reinforcing privacy vs. getting help. Also reinforcing quiet hours and other scheduled parts of the day.
7. Taking a shower every day (night) at the same time (10pm).
8. Dispensing important information.
I realize this post is a pretty vague sketch of some important things – this might serve as just an outline for me to fill in more interesting details / experiences / stories…
*I was also administered a shot, which I refer to as a “Haldol Cocktail.” 5 parts Haldol, 2 parts Ativan, 50 parts Benadryl. Plus, of course, my Testosterone shot – 50mg.
Oh, hey, dang, I’ve been absent for a while. I was in the hospital, again because I was manic (the time before that was January, 2015). This time it was a week: from May 15th-22nd. I’m currently out of work until June 19th. I’m sure once I’m feeling up to it, I’ll be writing a lot in the upcoming weeks. For now though, I’m thinking I’ll have a handful of short, somewhat abstract updates to this blog. The first one being:
I am a transgender person and I was hospitalized for mania and my blood was tested, and I was administered my testosterone shot, but my T-levels in my bloodstream were not monitored at any point in time during my stay.
I feel legitimately angry, like, about as angry as I am capable of getting, about this. Because I experienced some really really bizarre symptoms while there, that I would chalk up to hormonal issues, but there’s nothing for me to measure that against.
I was shouting A LOT. Like, I am not a shouter. I was SUPER vocal, the entire time I was there..
My menstrual cycle came back in a super condensed, concentrated form, for about 3 days…
Sex drive?? Zero
I called people out in their shit, in real time (generally something might occur to me later, what I should have said)…
I was actually able to keep my anxiety in check this time…
Smells and tastes were all over the place…
Blah! When will it sink in, that transgender people face different challenges, and these need monitoring too!
Lately, I’ve felt an increased breadth of emotionality, and I’ve been wanting to embrace that and document it. At this point, I’ve been on injections for about 2 months. I’d say I could first recognize this about a month ago – I saw the film, Moonlight, and I felt choked up / on the verge of tears a couple of times. This was no small event: I haven’t cried or even come close for a very very long time.
About two years ago, I was seriously depressed for a year. It’s definitely different for everyone, but whenever I’ve been depressed in that way, I do not cry. I don’t have any emotional experiences, really, other than fear and panic and deadened mental capabilities. And physical pain, but not in the way where I want to cry. Then, after about a year of trying different meds, I got on one that I actually like, for the first time ever. It helps me sleep. It helps me not think in obsessive ways. It helps me absorb new information and changes and take those things in stride. I’ve had some serious high notes, in this past year. This drug has actually helped with that, perplexingly. I’ve also had a couple of anxiety attacks, but they were extremely few and far between, and related to stressful times.
But I had not felt sad, or any of those nuanced pallets / ranges within the emotion called “sadness.” Until I started (again) on testosterone – which is kinda interesting because the more likely narrative is “once I started T, I couldn’t cry anymore.” I have yet to actually cry, but the sensation is there, and I welcome it.
Today, I was listening to a podcast, and I felt overwhelmed with emotion. Like I said, this has been so rare, that I embraced it. It was “This American Life,” the episode called, “Ask the Grown Ups.” Tig Notaro was giving some advice to a teenage girl who’s mom had recently passed away. It was so moving that the world around me changed, temporarily.
Also, I’ve recently been seeking out music that I listened to while I was depressed, 2 years ago. (There’s not much at all to uncover because I listened to so little music. It’s basically 2 albums by Royksopp, something by The Notwist, and, probably a couple more I could track down if I really wanted to dig…) It’s been… interesting. There have also been big changes in my life lately, mostly at work, that has triggered some images of violence to flash before my eyes. I’m all too familiar with this, and in the scheme of things, it’s been super mild. But, yeah, haven’t experienced that in a very long time. Instead of acting on it or obsessing on it though, I just came home, took my pills, and went to bed early. I feel sooooo grateful that that’s all I have to do. And then the next day it is not too bad. What???!!! It’s true!
So, essentially what I’m saying is that I have felt some intense emotions over the past couple of years, but very rarely did that involve any form of sadness. Which, is pretty bizarre if I think about it. And that’s been due to depression and medication. And then, this higher dose of T opens back up a world I have not been able to access. It includes nostalgia and emotional connectedness and feelings associated with the weather and isolation and the season and the environment, etc. etc.
As long as I’m not continuously bawling my eyes out, it’s all good.
This has been my biggest transition goal. For a long time. I always knew I would / could, at some point in the (distant) future, but usually it felt like there’d be no way. I’ve been riding the waves of my legal name change though, and getting in on that as an opportunity to say that there’s more to it than just that I am going to go by a new name now.
Monday – My supervisor had been out of work for 3 weeks, and Monday was her first day back. During her absence, I had received the signed court order from a judge in the mail, and was starting in on some of the bureaucratic processes: going to the DMV, going to my bank, etc. So it was good timing for when she came back – I told her (again) that I was changing my name, and I deferred to her in terms of what she thought I should do. I did not tell her anything beyond the name change, and she expressed concern that she wasn’t going to remember. I also came out to my 2nd co-worker (my one co-worker has been in my corner this whole time.) She was emotional in her responses, but I’m sure she’ll be fine / nothing will change.
Tuesday – Before work, I went to the “third floor” to speak to the benefits lady. I filled out paperwork. She asked me if I had my new Social Security card, and I was like, “uhhhh…” I made a mental note to get on that. She said we could get things started anyway, without it, and I just send over a copy when I get it. While at work, I came out to my favorite teacher. It went well. The reason I like her is because she just seems real. We don’t talk a whole lot, but when we do, she’s always reserved yet super thoughtful in her insights. She shared with me a couple of impressions her 4-year old daughter has had of me (she’s met me a handful of times.) That was nice. I told her the name and the pronoun thing, but I didn’t get as far as “neither male nor female” in this interaction. It was good enough for me right then; she said, “I’m happy for you,” a couple of times.
Wednesday – I gave it a day or two. My supervisor basically seemed to think now I just wait for things to trickle down from the “third floor.” I wasn’t feeling that – I was feeling more proactive than that, but I gave it a day. I In the meantime, I emailed our union president (the benefits lady prompted me to do this) to give him a heads up. We just had an election in November, and my favorite buildings and grounds guy was elected. It’s always a buildings and grounds guy, and if it has to be one, I’m so glad it’s him because I think he can absorb the news and take the lead on it within all those guys – electricians, plumbers, HVAC, maintenance, conservatives, white men, Trump supporters, etc. etc. Hopefully.
Thursday (today) – I talked to my supervisor about when can I change my badge, stuff like that, and she reiterated that I just wait and it’ll all happen. What I was really most concerned about was talking to the principal (again), so that she hears it from me, and so that she hears all of the information. I knew that once I talked to her, she’d take it from there (I’m not sure how she’ll do it, but the whole school will know through her.) My supervisor said she mentioned it to the principal, and I took that as a green light. I came out to three more teachers (one of them told me about a relative, and I was able to get to the part about “not male or female” with her, which felt great!) I was feeling pressure to talk to the principal either today or tomorrow because we’re going into Xmas Recess, and having everyone know when they come back from break would be ideal. So I made it happen. After school but before the admin. assistants leave for the day, I went to the office to see if the principal was available. The assistant principal happened to be with her in her office right then, which worked out perfectly. Kill two birds with one stone! Plus, the dynamic with both of them was so much better. A lot of times, they are like foils to each other. I said the stuff (the name, the pronouns, the “neither male nor female,”) the principal brought up bathrooms (which I have mixed feelings about), the assistant principal brought the energy and excitement, but also brought up how he was not going to be able to remember, and that’s not anything about me. I said yeah yeah I know it’ll be an adjustment period. (In my head, I’m thinking, how long is this adjustment period, exactly???)
Friday (tomorrow) – I have about 5 other people I’d like to tell in person, if I get the chance. If not, no big deal. Everyone’s gonna be focused on Xmas parties and getting ready for domestic family things and cookies and blah blah blah. We’ll see. The best part is there’s really no more pressure!
And so, that’s it! Now I just wait for things to happen around me. Next week, during Xmas Recess, the only people who will be at the school will be me, my two co-workers, my supervisor, and maybe the principal and assistant principal. So, that’s a whole week for the people who say my name the most, to practice. I have a feeling my co-worker / ally will step up and lead it, followed by me correcting everyone every single time.
Then teachers and kids come back. And teachers will have a heads up from the principal one way or another, and then I just start correcting, correcting, correcting. For how long? Not sure.
(I gotta say, I definitely feel good and accomplished, but I don’t feel that “wheeeeeeeee” feeling that often comes with big comings-out. I’m attributing that to my medication, for better and worse. It makes so many things so much easier, but those roller coaster feelings – yeah, I miss the good ones…)
So, I’ve been listening to this one podcast religiously since its beginning in December of 2014… it’s kind of a guilty pleasure; it’s a straight up advice column! It’s called Dear Sugar; the “Sugars” are Cheryl Strayed, of Wild fame – the book, the movie (starring Reese Witherspoon), the attitude, and Steve Almond, who wrote Against Football, among many other books and essays. They also always bring in an “expert,” or someone who can speak from personal experience about the person’s question.
They have fielded numerous letters about relationships, family dynamics, friend betrayals, weddings, lies and secrets, infidelity, personality clashes, (surprisingly, nothing that I can remember about work drama or school issues…) A couple of them have been about lesbian and gay -centric problems: parents who are unsupportive, partners who are still in the closet, etc…
I have been waiting for something that relates to trans-people. Finally, after a year and 9 months, they tackle it!
And… it’s totally underwhelming.
Have a listen, here: I’m a Transgender Man, Seeking Acceptance (For reference, it’s 39 minutes long.)
I mean, I think it’s great for the general population. So, it’s a good start. They read two different trans-men’s letters, and they seem to be at different points in their transitions, so that’s cool.
The first guy is in college, and he’s feeling great about his path and the people around him and everything – everything except for his parents, who just will not get on board. This, I feel, is super common.
The second guy seems to be a little more established, in a career, and he’s navigating the world of dating. He is concerned that since he is short (5’2″), does not have a lucrative career (social worker), and does not have a penis, he may be unlovable. This, too, seems like a pretty common concern.
The “Sugars,” in general, use radical empathy as a basis for starting a dialogue. And, in this case, since they don’t know how it feels to be transgender, they take the angle that,
“The best way to begin to understand an experience very different from your own is to listen to the stories of others. This week, we read the letters of two transgender men who are struggling to find love and acceptance. The Sugars discuss with Cooper Lee Bombardier, a visual artist, writer and transgender man.”
According to his bio, Cooper “has been a construction worker, a cook, a carpenter, a union stagehand, a welder, a shop steward, a dishwasher, a truckdriver, a bouncer, and a housepainter, among other things, for a paycheck.” He’s currently super successful with the writing and the art. He sounds super cool!
Steve Almond starts off talking about the first time he met a trans-woman. It was slightly cringe-inducing, but also definitely a worthwhile story. Then they get into the letters, and introduce Cooper. He, as a guest, is eloquent and upbeat, but he does keep it pretty basic, and seems somewhat detached from his own personal stories. There is a really great moment though where Cooper says he’s been “transitioning” for about 15 years, and when the Sugars ask him how old he was when he started, he says, “in my early 30s.” They sputter about how young he looks and how could this be? And he replies, “I moisturize.” And then later, “It’s the trans-fountain of youth, you know…” and there’s lots of laughing, and Cheryl says, “Sign me up!”
One thing that Cooper says really well in discussing the first letter is,
“We wrestle with these feelings for so long, that by the time we articulate it to somebody, it’s like a bottle bursting open. …And we tell our parents and we expect them to get it, like, tomorrow. Even though we’ve been struggling with it for years and years, right? And so I think that… it’s really hard to be patient when we’ve waited so long to kind of actualize and realize that this is what’s going on for us. But for those relationships that we do want to bring along with us, we do need to offer some patience, even though it’s hard.”
When discussing the second letter, they telescope it out, to bring it to the wider theme of anyone who feels like they are unloveable, and how to change that internal notion. Cheryl says, “This is a universal conundrum. …Am I too fat to be loved? No. Am I too poor to be loved? No. Am I too fill-in-the-blank to be loved? No.” They touch on how his height and his career might factor into this, and no one makes one further mention about the fact that he does not have a penis. Is it because they think it’s not important to talk about? No, I kind of doubt it – I think they are finding it too awkward to address. And/or, in being respectful, they feel that it’s not up to them to talk about a trans-person’s genitalia (or sex life, or surgeries, or…) which is definitely important that we’ve gotten that far, but in this case, it was right there, in the letter, and it just got straight up ignored.
I do really hope they expand the dialogue about what it feels like to be a transgender person. I have been thinking of writing in, for a while now, and I only feel more motivated after listening to this. I’m planning on it; I’ll let you know.
Going into surgery, I was in pretty rough shape. I felt sick (although I didn’t want to say so, specifically, to anyone other than my spouse… I kept saying “slight head cold”) and exhausted. Luckily, my cold symptoms were not too worrisome, medically: no fever, no chest congestion / trouble breathing. Other than the cold, I felt mentally prepared. In retrospect, I totally was. But, not so much prepared for the recovery process…
office/home/guest rooms mansion
Surgery Day: We arrived at 6:15am, surgery was from 7:30-9am, I was sleeping till about 10:30, and we were leaving by 11:30. At which point, I felt a lot better than I had for days – it even felt like my cold magically disappeared.
Everything went smoothly, except for the fact that the surgeon was about to do the wrong procedure. I was afraid this was the case because during the entire process including the consultation, the paperwork continually listed “double incision mastectomy with free nipple grafts.” Even after I called a month ago to verify we were on the same page with the peri-areolar procedure and was assured that we were. So when she came in and said, “Double incision.” I said no, and luckily wasn’t phased by the mix up. She said peri-areolar, I said yes, and she drew circles around my areolas. I talked to her about nipple size, saying I wanted them small. She said, “They’ll be smaller. Your nipples will be nipple-sized.” That was not very reassuring, but after she left, and before the anesthesiologist came back around, my spouse clarified that she had said, “your nipples will be nickle-sized.” That sounded better.
If you want to read a more detailed account of what it’s like, here’s a good one someone wrote just a few days ago: Surgery. It was a lot like that. Back at the guest room, we texted with some people, a Philly friend came and visited for a while, we watched Seinfeld, and we went to sleep early. I was up a lot that night, ravenously eating snacks and just not able to get comfortable. I was sleeping sitting up, at the foot of the bed, a lot.
Day after surgery – The next day, we were driving home. And I was in bed by 6pm. My cold symptoms were back, and I was not feeling so good anymore. I’ll bet that first day, I had a good mix of adrenaline and endorphins flowing, plus whatever they put in the IV. And then I crash.
2 days after surgery – I sat outside for a while. A friend came over, and we chatted for about 30 minutes before my spouse and they went thrift shopping. We listened to some podcasts. I read a book about subway art, written in 1984, a book I had found in the trash at school. We watched 2 episodes of Mad Men.
3 days – Podcasts, Mad Men. I stopped taking the pain meds (Percocet) because they were causing OIC (opioid induced constipation). The pain increased throughout the day, but it’s not like Percocet was all that effective anyway. We went to my spouse’s parents’ house, which did not go so well (I could not bear being social, especially once a family friend came by – I just went and sat outside.) We went to the grocery store on the way home – that was OK.
4 days – Glad to be off Percocet – realized that there are other pain meds (D’uh!) so I took an Alieve. I feel like 95% of the pain now is due to this fucking surgical wrap I have to wear for 7 days. I can only take shallow breaths; I can’t laugh or yawn or cough; it’s digging into my ribs and underarms; it’s way too tight; it just fucking sucks*. There’s a reason I didn’t bind! We went to the movies – nice to get out of the house. Also, one of our cats got suddenly freaked out by my Frankenstein walk (even though I’ve been doing it for days), and she bolted off the table, knocking a bunch of my records onto the floor. It was loud. Also, I had a mini melt down about hating asking for things that are so basic, telling my spouse that I keep doing things because I would rather do them than ask – open and close doors, get ice trays out of the freezer, pour water from our britta, reach up high for a Q-tip, carry my laptop… I gotta stop so I don’t mess up my healing process! She was on it and strategized a bunch of new ways to make things easier!
5 days – My spouse went back to work. Our refrigerator was making a loud noise this morning and stopped working. That was stressful! I called a repair person, then changed my mind because we should just buy a new one because this thing is super old. My spouse’s mom came over to save our freezer items for us, store them at her house. Then the fridge started working again, so it feels like less pressure – we’ll still get a new one, but it doesn’t have to be today. A friend brought over lunch – I liked that! My mom stopped by after work. I felt anxious and lightheaded for a lot of the day. I was feeling really confined/claustrophobic, as if this binding thing were made of plaster of paris, or steel. I had a serious melt down (I got an all-too-real glimpse of what it could feel like, if I lost it right now – I felt in danger of becoming more and more triggered), and told my spouse we need more people around us, helping. She called her parents to make that happen. We talked and I felt a lot better.
6 days – That’s today! I only managed to sleep 3 hrs. I’ll be spending more time with people today. I’m just going to try to relax. I also gotta start preparing for going back down there tomorrow, to get this fucking binding off. Oh, and the drains. I’m going with my mom.
Overall, I’m in more pain than I thought. And I’m way less out of it than I thought (like, I didn’t get to be in a fun pain-killer induced haze, haha). And I don’t like TV that much and I’ve been up and about a lot. I hate not doing things because it reminds me of being depressed.
* Note: this may be the only time I’ve used swear words on this blog (in reference to the surgical binding). It’s that bad. Also, though, I appreciate this thing because it reminds me of where the limits are and also it’s preventing me from coughing stitches open or anything like that.
My spouse and I are leaving shortly, to drive down and arrive by mid-afternoon, to then get ready for surgery in the morning. I hope. I’m saying, “I hope,” because I came down with a cold 3 days ago, and I still feel stuffed up. I’ve searched the internet for, “Can I get surgery if I have a cold?” and there really is no consensus. It’s a good sign that I don’t have a fever, and I don’t have a cough. But ultimately, it’s up to the surgeon. It feels like I have a 50/50 shot here.
And I haven’t been able to get in touch with their office any earlier because of the holiday weekend (I did email a heads up though), so I’m going to have to call while on the road, once their office is open… When I call, I am going to act as though everything is proceeding like normal, just want to let them know about this development. Because I really really really just want this to happen. Tomorrow. And I don’t know what I’m going to feel if I’m told, “Don’t bother coming. …We can schedule you for the last week of June.” Or something like that.
Between this and shingles, it feels like my body is trying to say, “this is not happening.” I’m angry with my body. I was so super careful – eating well, sleeping well, I don’t recall being around anyone who was sick… I wasn’t even feeling stressed or anxious. And this is super strange for me too – I don’t generally get sick often. I used to, but not anymore. I don’t get headaches. I don’t get queezy. I don’t throw up easily. So what’s with the shingles (which have thankfully cleared up in time) and the cold?!?
I currently don’t feel stressed about the surgery. I feel ready. I feel stressed about the cold, but not about the surgery.
So, I guess I’ll know what’s happening within a few hours. Let’s hope next time I write, it’ll be good news!!!