Every year around this time, I revisit the first time I was hospitalized, which was Veteran’s Day weekend in 1999. It used to feel like the worst thing that ever happened to me. And, in terms of fallout, I still think that it was – it just no longer feels that way.
Two years after this hospitalization, I wrote an essay for a class, including every little thing I could remember about the experience. A few months ago, I gave that document to my therapist to read over. I didn’t necessarily want to delve into it or have her probe me about it. I just wanted for her to have read it. And she really only said one thing: “There were always questions about whether you had been in a psychotic state or not. This definitely shows that you were.” And, strangely, I was satisfied with that. As if I could lay to rest whether I needed to be there or not. For the most part…
I’m currently giving my most recent hospitalization (from 6 months ago) the same treatment, as best as I can remember. I’m up to 2,500 words so far, and only about 15% done. I don’t have any plans for it other than just something that I want to do for myself. We’ll see. I feel like there’s not much writing out there that really portrays what can go on in someone’s head while they are in the middle of psychosis. (If anyone has any recommendations, let me know!) That does not mean I have lofty goals for where I could take this writing; it’s just a motivating factor, something that pushes me to try to capture it as best as I can.
Here are the other posts I have made, yearly:
Continuing to work through a specific trauma – Four years ago, I wrote about how I finally gained access to the medical records from my hospital stay, and how I started to process things differently with the help of my therapist.
That specific trauma is still there – Three years ago, I wrote about finally bringing that record into therapy and how it felt to have her go through it. I was starting to realize that maybe I didn’t need to pick it all apart; maybe my perspective was shifting naturally, over time.
That specific trauma is no longer a big deal – Two years ago, I wrote about how much time has changed things, and it no longer felt like a big deal. The fact that I had been hospitalized again, that year, surprisingly helped me find ways to heal, rather than adding more baggage onto the feeling of it.
Anniversaries, traumas, deaths, and name change – Then last year, I wrote about how other things were going on, and I really didn’t have the space or time to reflect. Which was perfectly fine. Between the election results, working on getting my name legally changed, and other emotional markers, it just didn’t come up.
This year, I am thinking about it, but it is more in terms of “one of the times I was hospitalized,” rather than, “a traumatic event – the worst thing that ever happened to me,” etc.
I’ve been thinking of all the little occurrences that go into the bigger story. Like, for example, in that state, my mind was so malleable and adaptable that it seemed like, theoretically, anything could be true and just as easily, not true all at once. Which is one of the reasons I avoided watching any TV. (There were two TVs on the unit – one played music and had legalese constantly scrolling, in both Spanish and English – like a “know your rights” kind of thing. The other TV had a remote and listing of channels, and we could watch whatever we wanted, 24/7.) At one point I did sit down, and there was a documentary on about pineapples. (Er, rather I’m sure the documentary was on something more broad, but I saw the pineapple part. I started yelling about the unlikelihood about these pineapples growing. Don’t pineapples grow on trees like sensible fruits? What were these miniature pineapples growing up from fronds in the dirt?! A patient who knew-all immediately matched the intensity I was spewing, and argued for the realness of these pineapples.
A few months later, my spouse’s aunt was visiting from Hawaii, and sure enough, she grows pineapples on her property and sure enough, she had pics to prove it. I can now accept it fully.
This actually happened a few months ago – she was fired from a nearby college on May 24th. It’s only now hitting larger news outlets because there are now three state-level civil rights complaints, trying to get her re-instated. I read about it in the newspaper while at work, yesterday.
She was treating transgender students who came to her with a previous diagnosis. She was definitely qualified to do so, having gone through many hours of training in trans-health care, attending a conference sponsored by WPATH (World Professional Association for Transgender Health), etc. She was doing this at the college’s expense, which just makes it seem like it was condoned by the college, right?!!
WPATH’s stance is, “With appropriate training, …hormone therapy can be managed by a variety of providers, including nurse practitioners, physician assistants, and primary care physicians.” Apparently, this was outside the scope of what the Student Health Center did, but this was never communicated to her. The termination came from out of the blue.
Hormones are prescribed for other reasons at the health center, with no problem. Birth control, ovarian disease, and low testosterone are all treated regularly.
Interestingly, the information on the Student Health Center’s website changed two months after her firing: While it had said, “comprehensive primary care,” and “continuity of care,” it now says, “basic primary care” and has no mention of continuous care. At least they’re being accurate about the downgrade???
This just angers me to no end because this doctor took it upon herself to step it up and become well versed in an area that, for whatever reason, makes so many medical professionals so squeamish and stand-offish. And if this was something she did of her own volition, and it was well within the standards of care, then back it up! What was the university afraid of? There are standards in this field, despite the fact that the medical professions are grotesquely behind the curve with this, in general. A bunch of transgender students were left in the lurch.
The college’s associate vice president of student wellness was quoted as saying, “We are fortunate to be situated in [city], where there is a strong medical community rich with resources.” As if to say that students can just go elsewhere. I’ve tried “elsewhere” around here, as an adult, and it was a super-frustrating process. If I think back to who I was at age 18 or 19, disrupted care at the on-campus center in this regard would have definitely sent me into a tailspin and/or mental health crisis. I would have felt like I didn’t have the means or psychic energy to find out another path. I would have felt deeply cut, in a personal way, by my institution’s sudden change in policy.
It just seemed like this college was at the forefront – it could have laid the groundwork for other area places of higher education to follow. And then it just took a huge leap back into the wrong direction. One step forward, two steps back sometimes I guess, right?
I had a bunch of problems with getting continuous care. I was first getting hormones from a sketchy-ass doctor. I finally felt so disgusted with his practice that I sought out another path. I went to one specifically because she was listed as being LGBT friendly and knowledgeable. That ended up being wrong basically – she told me she didn’t know how she had gotten on that resource list. I had to have a pretty heated conversation with her – her stance first was that I could come to her for primary care, but I should continue to get my hormone prescriptions through that other doctor. I told her I wasn’t going to do that. She told me this was beyond her scope and if she had a male patient with low-testosterone, she would not even monitor him for that reason.
We finally landed on a compromise. She would continue to prescribe what I was already at, and she would monitor that. If I wanted to make any changes though, I would have to do that through other means.
When I did want to make other changes, I first got on a long waiting list for an LGBT-specific clinic. I kept hearing negative stories about the quality of care there, so I decided to also try another approach: an endocrinologist. I had to get on a long waiting list for that, as well. I’ve been going there since January, and so far, I’m happy because I don’t have to deal with the PCP anymore. Getting an endo was not like adding yet another medical professional and another series of appointments. It was more like, instead. Unless I get like, a rash or something, then I’d go back to my PCP.
All of this was hard enough, and I am an adult who has worked really hard at advocating for myself. Thinking back to who I was as a student I would have withered under this kind of stress. Students need to be able to access trans-specific care on their campuses. Period.
A note about the lack of specifics in this post: I left out the doctor’s name and the name of the college, city, etc. because that’s been the way I’ve always operated with this blog, in order to keep some anonymity. I’m not sure anymore whether it’s all necessary, but I’m not about to try to figure that out here-and-now. If you’d like specifics and the names of the sources I got a lot of this information from, just leave a comment, and I’ll get back to you!
At the school I work at, there are two main sections to be cleaned – upstairs and downstairs. For the vast majority of my time there, I’ve always cleaned the downstairs. The water fountain was better. It was cooler in hot weather. There were more people to interact with. The rooms were cleaner (for the most part). I was closer to things that I needed to access: receiving room with supplies, dumpsters, the custodial office.
About 2 years ago, I cleaned the upstairs for roughly 6 months. It was not my choice – things were rough in a lot of different ways, and this was just one more thing. One more really big thing though, in my head. I was in and out of work a few times, due to a serious depression. When I was up there, it felt as if I could barely do the tasks, and the fact that they were recurring forever and ever was intolerable. I was rushing myself, always feeling like I didn’t have enough time to do everything. I was at a loss as to what to do about all the recycling, which for me is a “must do.” I just felt like I did not belong up there. I was trying to pop in and out of areas before kids were out of school, and then backtracking, which felt totally inefficient but seemed to be the only way to keep busy. Just being felt painful. And the fact that the being was on the second floor made the pain feel compounded so tightly within itself that I was struggling beyond belief.
By about mid-October of 2015, I was told I was switching back to the first floor. Apparently my co-worker wasn’t doing a great job, there were complaints, it was more important to be clean on the first floor than the second floor. ?? Anyway, at that time, I was sooooooo relieved. It was a visceral feeling. All the negativity was left up on the second floor, and although I was still struggling, I fit right back into the first floor. A few months later, I got on a medication that really started working for me, and the next two years went really well for the most part.
Sometimes a little too well: As I’ve mentioned before, I went through a manic episode in May, and I was out for two months, recovering from that. In a good way though – so far so good on the avoidance of a rebound depression. However, I lost my status at work. When I got back, it was clear that the new guy was now the new second-in-command.
In the past, this would have felt devastating, and I would have clung onto whatever control I did have, to the detriment of myself, only, really. I know because I’d already put myself through all that, big time. This time around, I decided to take it all in stride, as best I could. Instead of arguing about how I couldn’t do the second floor or anything like that, I spent time “staking it out,” I guess you could say? Just, spending time up there visualizing this or that and getting accustomed to the idea, before kids came back.
Now that school is back in session, I am IN IT. And it’s not actually bad. So far it has felt preferable, in fact. I’ve made some changes to my routine that really feel like they’re making a difference. Instead of bringing my cart plus mop bucket plus garbage barrel to each and every classroom, I am “sweeping through,” first with the garbage and rags to wipe everything down, then with the vacuum for all the area rugs, and then with the dust mop. I am taking WAY more steps going through multiple times instead of going room-by-room, but it’s feeling good. Feeling faster, even.
And the weather has not been too hot. And there’s a new drinking fountain up there as of a couple months ago – the kind where you can easily fill up a water bottle from, and it says how many plastic bottles you are saving by doing so. I love it! And I like the fact that the teachers clear out early up there, for the most part. And the rooms have been clean thus-far.
Best of all, I have my own “room” to store stuff, up there. That’s new. So while things are kinda turbulent with co-worker dynamics, I am so glad to have all my stuff and activities separate from theirs, more-so than ever before.
All the negative associations I’ve held about the second floor have pretty much melted away. A lot of that has to do with mental health and coming out at work. I don’t feel like I’m trying so hard to get in and out of places. I actually feel like I belong. When I talk with people, I like my voice. When I walk and do all this physical work, more muscle mass is making it feel much more effortless.
The only thing I’m dreading now is “gym use.” Coming soon will be screaming children using the gym for their cheer-leading practice, from 6-8:30pm. And once that’s over, it’ll be basketball all winter-long. We’ll see how well I can adjust…
I have a mild case of trichotillomania. It’s come and gone during different times in my life, and it’s always been specific to the hair on my face, not on my scalp.
Trichotillomania, to paraphrase wikipedia, is an impulse control disorder, also known as “hair pulling.” It’s generally triggered by anxiety and stress, and is usually treated with CBT (cognitive behavioral therapy.)
In the past, I have honed in on eyebrow and eyelash plucking, using my thumbnail and pointer finger-nail as tweezers. It hasn’t been bad over-all, like I still have eyebrows and eyelashes, it’s just that my left eyebrow is a little bit sparse. It’s barely noticeable.
I also would get chin hairs, from time to time, starting in adolescence, and I would pluck those too, with my fingers or tweezers. This was, apparently, “pro-social” behavior, because I was socialized as a female, and therefore, it’s necessary to eradicate any hint of a mustache or “chin whiskers.” ??? I mean, there’s a whole industry just devoted to that – bleaching the “mustache,” laser-hair removal, waxing, etc. Blah!
Still though, I keep pulling those hairs out not as a gendered statement, but rather because I liked the sensation of getting at them from the follicle, that very specific and very minutely visceral feeling of a “pull” away from something rooted underneath some of the layers of the skin. It’s much more satisfying to get them with my fingernails, but I also use tweezers, so I can get ’em all! The reason I’d say it’s within the realm of “trichotillomania” is because I will do this out in public and I can’t seem to get myself to stop. It’s not just in front of my bathroom mirror. It’s during break at work, with people sitting in the same vicinity. It’s during a meeting, because I am bored. It’s during a movie with a stranger sitting two seats away. Etc. Honestly, it doesn’t feel like a big deal. It’s a rough life to be constantly conforming to societal standards, at least in my opinion…
Facial hair, for me, is a hard limit. I do not want a beard. If I have a shadowy mustache, that’s fine by me, but that mustache never stays for very long before I start plucking out each hair individually. It’ll always happen eventually.
Now that I’m on a regular-ish dose of testosterone, I am getting more facial hair. And I just will not give in and shave. First off, I don’t feel like it! I prefer my methods, even if it ends up taking 10 minutes per day – more or less – to “groom” my face. Secondly, I do think that I believe that old wives’ tale, on some level, about the more you shave, the thicker and darker the hairs will fill in. I do not want to do anything that could potentially promote more facial hair growth.
I do realize this is a little bit counter-intuitive (is that the phrase I’m looking for?) Like, most people who are taking testosterone are embracing the full effect, whatever that means for them. But as someone who is non-binary, it’s a little trickier. Like, I like this effect, but this other thing screams “masculine” a little too loudly, and I’m not really feelin’ it. Something to that effect.
If my facial hair growth ever did start to feel unruly / out of my control, and / or the “grooming” ritual were creeping up toward closer to a half hour per day, something like that, I would not rule out laser hair removal At this time, it just seems a little too extreme, expensive, and unnecessary. But, hey, with this kind of journey, sometimes you never know what is coming up next!
Around this time, 16 years ago, I voluntarily admitted myself to a psychiatric unit, but then I got stuck there for 19 days without knowing what was going on. The lack of communication was horrendous. I suffered a psychotic break and left with a diagnosis of bipolar disorder. I accepted this for years, and I internalized that I have a mental illness in some pretty detrimental ways. This has always stayed with me, always felt like something I needed to work through and get past.
Two years ago, I wrote about how I came to finally acquire my medical records from my hospital stay, and how I started to process things differently with the help of my therapist:
Continuing to work through a specific trauma
Last year, I wrote about finally bringing that record into therapy and how it felt to have her go through it. I was starting to realize that maybe I didn’t need to pick it all apart; maybe my perspective was shifting naturally, over time.
That specific trauma is still there
This year, although I’m acknowledging the anniversary, it feels like just the slightest emotional blip on my radar. I talked about it in therapy yesterday. I finally got my hospital records back from my therapist (she had been holding onto them for me for a whole year!) I looked through them again last night – there was always one page I skipped over. It was handwritten by me, explaining what had been going on in my social life that led me to feel like I needed to be hospitalized. I read it and felt OK about it.
Although this seems counter-intuitive, I think it helps that I was hospitalized in January. Where everything went wrong the first time around, everything went right(?) (maybe not right, but it went smoothly) this time around. I can overlay this experience on top of my shitty traumatic experience, and things make more sense.
I resisted the diagnosis of bipolar disorder for a long time, I’d been off all meds for 9 years; I felt relatively stable. When it was re-affirmed that I have bipolar disorder by the psychiatrist I was assigned, (“Once a bipolar, always a bipolar.”) I bristled at that. Actually, I bristled at him in general every step of the way. Appointments with him lasted a mere 2 minutes. He was inflexible and adamant I stay on meds forever. He forgot pertinent information about me. (At one point he told me I needed to stay on meds because I had been hearing voices.) After 6 months, I just stopped making appointments with him. With all his intensity toward me staying on meds, it was surprising how easily he let me just get away. Maybe he didn’t even notice I left.
My therapist helped me find a new psychiatrist; she’s awesome! She’s willing to follow my lead on what I want to do about drugs, and she’s willing to dialogue with me instead of ordering me what to do. I still don’t know what to do about drugs, but at least I have the space to feel supported with whatever I do choose to do. For now, I’m staying on them, but I can’t pinpoint why.
I respect this new psychiatrist. When she (also) told me I fit the criteria for bipolar type I, for the first time in a very long time, I felt like I could accept that. I don’t need to incorporate that in any particular way into my identity; it doesn’t need to mean I view myself differently. Personally, it’s not a core part of who I am. It just is an aspect of me that can just be, and I can leave it at that.
And I can finally integrate the difficult journey toward mental health as parts of myself, rather than things that happened to me.
I have been under a lot of stress lately. Between taking on an acting supervisory role at work for 3-4 months and being hospitalized, I can’t remember the last time I was so stressed out. Probably throughout college, over 10 years ago. And although it sucks, there are some interesting things I’m learning about myself at the same time. Namely, that stress is interacting with the added testosterone in some typical (but surprising-to-me) ways.
I’ve been on testosterone for close to 2 years now. And in that entire time, I did not experience a lot of the negatives you hear about – oilier skin, heightened agitation / quicker temper. Right now, I’m experiencing that. Plus some added hormonal weirdness: I feel hot and then cold and then hot and then cold. I am stress-sweating a lot. I STINK! My skin feels prickly, then I feel light as a feather, then I feel like I’m weighted down, back and forth. I’m getting more hairs on my chin and around my nipples. I am pacing and dancing and taking magnesium and doing a lot of other things to try to counteract these stress symptoms and just calm down. I feel calm right now, as I’m writing this.
Not too long ago, I was planning on increasing my testosterone because I’d like to appear even more androgynous. Now I’m thinking that won’t be anytime soon. There will be a time – it’s just not right now. I’m even considering stopping Androgel for a while, but that’s not something I’d do lightly. For right now, I’m hanging in there, because in my own mind, I’d like to be on it… We’ll see. I’ll probably talk to my therapist about it, first and foremost. She has witnessed a lot of my agitation lately.
Normally when I’m stressed out, I might tend to clench my teeth. I will have trouble sleeping. I will have obsessive ruminations in an extreme sense. Those thoughts can get pretty dark and even turn to uncontrollable visions of violence. I would probably get a cold, due to my immune system being compromised.
Right now? I haven’t been sick all fall/winter. I previously was having a lot of trouble sleeping, but due to my new medication, now I am not. I am clenching my teeth a lot. And my obsessive gauge is going at full throttle for large chunks of time. I’m taking super good care of myself – eating well, showering daily, applying deodorant often and chewing gum, to mask bad bodily smells.
I am really off my game, but I’m hanging in there…
These symptoms due to testosterone (educated guess) are really throwing me for a loop.
Around this time (middle of the night), fifteen years ago, I started a game changing series of events by getting my mom to bring me to the hospital, from which I was admitted (voluntarily) to an adolescent psychiatric unit. Once I was actually there, I didn’t want to be there anymore, but a lot of things were changing, and I ended up having to stay for 19 days. I left with a misdiagnosis of bipolar disorder and prescriptions for Depakote (mood stabilizer), Risperdol (antipsychotic), and Wellbutrin (antidepressant). The medications changed a lot over the years… I’m happy to report I’ve been med-free for about 9 years at this point.
Last year, I wrote about how I came to finally acquire my medical records from my hospital stay, and how I started to process things differently with the help of my therapist:
Continuing to work through a specific trauma
This year, I finally brought this massive document in to therapy with me, despite the fact that I was pretty unsure, er maybe more like totally ambivalent, about what I wanted to get out of talking about it (yet again) exactly.
My therapist started reading through the pages out loud, and simultaneously made comments and processed it in her own way. At first this felt tedious (the thing is 210 pages long!) But I also felt intrigued. It was much more helpful for her to tell me about the content than for me to try to go through it myself (which I hadn’t done since first receiving it, last year). I also started to feel yucky and shut-downy. I finally verbalized, “Let’s take a break.” I was worried this therapy session was really going to have a negative lasting impact on me, but, in fact, I felt fine afterward. Maybe I’m more resilient these days than I think.
I used to always think that if I do this one thing, or if I find out these missing pieces, or if I reflect back in a different way, the pain of that experience will be lifted. If I just keep grinding into it and picking away at it, I’ll one day be free. Now I know that this can’t really happen. And I can accept that it was a shitty thing that probably didn’t actually need to happen. It was traumatic. It was so long ago. I can look at it with a completely different perspective by now, but not because of anything I did – that perspective shift happened naturally, over time and with personal growth.
There is so much I could write about. But I actually really only want to write about one thing right now, as it relates to my hospital experience: while I was there, I wore this one particular hoodie constantly. And once I was released, I never wore it again. But there seems to be no way I can get rid of it. I brought the hoodie in to therapy, along with the document, and told her all about it. When the document felt too overwhelming to keep delving into, I told her she should just hold onto it and go through it on her own time. She asked if she could hold on to the hoodie too. I said, “yeah sure.”
The reason I loved the hoodie so much was because the LA Rams were not a team. (I just looked it up, and they were a team from 1946-1994). I worked at a thrift store and picked up this gem at some point. I liked the incongruousness of it. I do not like football.
Trigger warning: violent imagery (as the title suggests).
Last week, I was in high stress mode. It’s due to an annual drastic change in my work schedule (and really no other reasons, as far as I know about. I mean, I have other stressors going on, but nothing I can’t usually handle.) This happens every single year, and it really affects how I engage with summer. I can always predict it; simultaneously, I always conveniently forget how extreme it gets.
I wrote what follows last week, when I was in the thick of it. And then I just sat on it, because I wasn’t sure if I really wanted to post it. Partially because it’s a departure from what I usually write about. Now that I’m feeling better, I find that, yes, I’ll post it. So, here’s what I wrote, only slightly edited:
My mind’s reaction to long-term stress is terrifying to me. I continue to wonder if this is really just how it is. (Why can’t I just grow out of this???). Some people get stress-induced migraines or upset stomachs or struggle with insomnia. Anything like that is, without a doubt, difficult to deal with. In a big way, I am glad I am not afflicted with those stress-responses. In some way though, a part of me wishes for something like that instead, but only because it’s relate-able and I’d probably feel like I could talk about it with others. “My stomach is in knots thinking about what I have to do.” Or, “I’m losing sleep over this.” These phrases are super common.
When I get stressed out for long enough, it feels like my brain is rotting away. I lose brain functioning (not a figure of speech – my cognitive abilities actually suffer in some big ways.) But more than this: It feels as if my brain has turned against me; I am bombarded by visions – images of violence being inflicted upon me. I do not know what I can do. I can distract myself. I can try stress reduction techniques. I can (and do) follow through with inflicting pain on myself in an attempt to stop the visions. None of these things have ever worked too well when I’m actually in it. When I was younger, I was “in it” on-and-off for years and years and years. It would become intolerable. It’d be beyond intolerable, but, of course, I had to keep waking up and living it, over and over again because there’s no getting away from your own mind.
Often, my brain would feel so rotten that I couldn’t read, I couldn’t make sense of things on TV or in movies. I couldn’t talk to people or follow a conversation. Eventually I couldn’t do any schoolwork at all. (And it wasn’t about concentration, which is a common issue with people who are depressed. It was specifically that synapses seemingly disintegrated.) I made it through because luckily I had a therapist at home and a therapist at school, and they helped advocate for me to get accommodations I needed to not flunk or drop out of college. I felt like dropping out. I “got by” with very high grades, because I couldn’t have lived with myself with anything less. ??? Does this make any sense at all? I was barely functioning, yet I somehow ended up with very high marks. If my grades had ended up slipping, I would have been even more abusive to myself. Maybe the people around me could sense that.
Somehow, I could still write, surprisingly eloquently. Although, it was limited to journal-style writing, not academic-style writing. Like what I’m doing right now. When I can’t seem to do anything else.
I get barraged with images spanning from mild (such as my face being slapped or my skin being cut) to morbid (such as being hacked away at with an axe. Or my head being whacked repeatedly with a 2×4. Or falling and hitting my head so hard that I pass out. Or my neck being held down as I am whipped over and over and over again.) These images are never sexual. They are disturbing and unwanted. I seem to have no control over them.
I have heard of some people struggling with urges to actively do something they do not actually want to do. Like inflicting pain onto someone else. Or stepping off the subway platform in front of a subway. Or driving their car off the road and down a steep ravine. There is an excellent graphic novel I would highly recommend that is largely about this compulsion. It’s called The Nao of Brown. What I’m talking about is so similar, yet strikingly different. I am never the one in control. I’m not harming anyone else or actively harming myself. It is always an anonymous person outside the visual frame, inflicting violence on me. I’m the object; I’m looking at myself.
Last week I told my therapist, “whoever made brains needs to try again.”