I landed back in the hospital

This week has thrown me for a loop, big time. Between Saturday AM and Wednesday AM, I was in the hospital for mental health reasons, on a psychiatric unit. I don’t believe I ever thought I’d be back there; in fact, it was my biggest fear. Scarier than heights, the tallest roller-coasters, the dark, spiders, sharks, germs, etc. etc. (I’m actually not afraid of any of those things.)

Just to summarize my history briefly, when I was a senior in high school, I suffered a psychotic break and subsequent major depressive episode (lasting 4 months, and then on and off throughout college). I was on a mixture of different drugs for about 6 years, and I weened myself off all of them after a certain point. I’d been med-free for roughly 10 years, and pretty proud of that fact.

I’ve written about mental health before…
Here: Depression and taking testosterone
Here: That specific trauma is still there
And here: Continuing to work through a specific trauma
…and also scattered throughout many blog entries.

Although this blog is mainly about taking a low dose of T and working as a janitor, it is undeniably also about mental health and self-care. I slipped up pretty big in the self-care department, slowly and gradually at first, and then fast and unstoppably. I went through a full blown manic episode / psychotic break. A lot of it was so fun it’s kinda indescribable. In fact, I can definitely tell I still haven’t come down completely yet – I’m registering a heightened sensitivity to bodily sensations, both pleasant and annoying, I feel keyed up / antsy, I need to be in control of the stimulation levels or else I feel overwhelmed within seconds, smells and tastes are waaaaay off (not constantly, but sporadically), colors and patterns are popping out, my thinking is still relatively disorganized…

But I’m sleeping well and eating well and engaging in a lot of different things and spending 24/7 with my partner for a few days, and that’s what’s important right now. I was prescribed ziprasidone, which is an atypical antipsychotic approved by the FDA in 2001. Am I happy about it? No. Do I think I’ll be on it indefinitely? A strong NO! But I can accept it for right now.

I’m sure I’ll return to some of what I went through, in an attempt to process things and just share where I’m at (it does feel like it’ll be an arduous rehabilitation process, and I’ll be out of work for roughly 2 weeks). For now though, I want to just write about a strange parallel. It might not mean anything if you haven’t seen Breaking Bad, but I’ll give it a whirl anyway (and there are no real spoilers in what is to follow):

Leading up to what I went through, my partner and I were watching a lot of Breaking Bad.  Not really binge watching it, but watching an episode almost every night. Now we are not. Haha. We only have 4 or 5 episodes left, but we’re putting the show on pause. I suggested we start watching Malcolm in the Middle instead, largely because Bryan Cranston plays the dad in both shows (and I used to watch it as a teenager and thought it would be fun. It is fun). But – we just watched the 5th episode, and the family is getting their house tented and fumigated.  They are in a camper trailer on their front lawn in the meantime. And the parents, at the tail end of the episode, put on gas masks in order to enter the house and get some alone time. I was flipping out. (I mean, my partner was too, but I was shouting and swearing and pacing and called it a night, basically). Haha. I’ll probably be in bed by 9pm.

IMG_2359

breaking bad


The Re-imagination Program

I’ve been using Androgel, daily, for over a year and a half now.  And I’m just now getting a full understanding about how the prescription & insurance industrial complex works as it relates to me continuing to get what I need.  Here are a few experiences that, each taken separately, are small, but as a collection of anecdotes, are kinda mind-boggling:

– My first doctor initially tried to sway me toward a different product, Fortesta, telling me I could save big, and handed me a discount card I could activate.  I went through all the hoops only to learn I was not eligible because I am not male.  When I came back to him with this, he changed my prescription to Androgel without further discussion.

– Although I made clear to him that I was aiming to be on a very low dose, and see what happens from there (like 1-2 pumps), he wrote the script out as 4-6 pumps daily.  This led me to be able to get 2 bottles at one time for $25.  This amount lasted me for 4 months.  At $6.25 per month, I wasn’t about to speak up about the inaccuracy!

– The prescription wording has changed over time (and between two doctors), and I’ve felt confused as to how that equates to how much I’m getting and how much I’m paying.  I’ve paid $25 for 2 bottles together, $50 for two bottles together, and even $50 for only one bottle at one point.  I guess I assumed it fluctuated in price.  I thought I was paying per bottle.

– I’m not paying per bottle.  I’m paying per month.  My payment, I finally found out, should be $25 per month (not too bad!), but somehow I’ve continued to avoid even having to pay that much.  I also have been able to store some bottles in reserves (which helps me feel much more secure since most of my visits to the pharmacy have led to some sort of questioning, calling of my doctor office, etc.  Not for anything personally about me, but because of how the script was written out.)

Basically, while talking to my insurance company (using the pharmacy’s phone) last week, I learned that all that matters is how the script is written.  Testosterone is a controlled substance.  I always have to pick up the prescription at my doctor’s office and show a picture ID.  I can never get a refill (although my doctor has tried!)  If the doctor writes the dose out as 1-2 pumps per day, the higher amount is factored in.  If it’s 4-6 pumps, it’s 6 pumps, even if I’m only actually using one.  No one seems concerned about whether the amount correlates to what I’m doing.  I can get a 30 day supply, a 60 day supply, or a 90 day supply.  I’d prefer the 90 day because it means I don’t have to go as frequently.  But if it’s entered as a 30 day supply, it’s 1/3 of the price.  And no one actually seems concerned with whether that translates into how frequently I go to the pharmacy.  Interestingly, I could pay a whole lot more to get the amount I use, or I could pay a whole lot less to get more than the amount I use.  I don’t understand this logic, but I do finally understand this system.

When I was told I’d be paying $50 for one bottle and would have to come back in 2 months with a new prescription, for my 2nd bottle (due to the wording of the script) last week, I argued with that.  The pharmacist got me on the phone with my insurance (which led to me finally grasping how this works).  I realized the only way around it was to get the script re-written by my doctor.

I asked the pharmacist if I could get a discount card for Androgel.  This is called “The Restoration Program.”  Due to my experience with the Fortesta discount card, I wasn’t holding my breath.  The pharmacist got me started and then handed the phone to me to complete the activation process with an Androgel representative.  He was friendly and smooth.  I was asked a lot of questions:  name, address, email, phone number, etc.  I was asked if I’ve read all the terms and conditions.  Since I had just been handed the booklet with mass amounts of fine print 2 minutes prior, I just said, “yes.”  I was then asked, “Are you MALE?”  He said the word, “male,” in such a harsh, abrasive tone; all customer-serviceness left his voice.  I paused for a good long while.  Repeated the question back to him.  Said, “No.”  Said, “I’m not legally male; if there is any other criteria under which someone could be male, I’m interested in that.”  But his helpfulness was long gone.  I felt mildly humiliated; he just kept grinding it in that he could do nothing further for me.

My jaded brain (during a conversation with my partner’s jaded brain, haha) decided that men are rewarded for using Androgel because the company is trying to promote a specific type of patient for their product.  Rugged, middle-aged, robust and vigorous.  Masculine.  Diagnosed with low testosterone, just needing a boost.  Just take a look at the pics of men on their website:
Androgel website

I am nothing like the men on the website.  However, I am just as worthy of being eligible for a discount program!  I would call it “The Re-imagination Program.”  Testosterone has certainly aided me in re-imagining who I am and what I can do / who I can become.

I told the pharmacist I wasn’t eligible.  He acted surprised, but my jaded brain decided he already knew.  The next day, I called my doctor’s office; asked for the prescription to be written the way it had previously been written.  Got a call back that it was all set; ready for pick-up.  Picked up the prescription, went back to the pharmacy, got my 3 month supply for $50.  Anticipating more hassles in the future…


That specific trauma is still there

Around this time (middle of the night), fifteen years ago, I started a game changing series of events by getting my mom to bring me to the hospital, from which I was admitted (voluntarily) to an adolescent psychiatric unit.  Once I was actually there, I didn’t want to be there anymore, but a lot of things were changing, and I ended up having to stay for 19 days.  I left with a misdiagnosis of bipolar disorder and prescriptions for Depakote (mood stabilizer), Risperdol (antipsychotic), and Wellbutrin (antidepressant).  The medications changed a lot over the years…  I’m happy to report I’ve been med-free for about 9 years at this point.

Last year, I wrote about how I came to finally acquire my medical records from my hospital stay, and how I started to process things differently with the help of my therapist:
Continuing to work through a specific trauma

This year, I finally brought this massive document in to therapy with me, despite the fact that I was pretty unsure, er maybe more like totally ambivalent, about what I wanted to get out of talking about it (yet again) exactly.

My therapist started reading through the pages out loud, and simultaneously made comments and processed it in her own way.  At first this felt tedious (the thing is 210 pages long!)  But I also felt intrigued.  It was much more helpful for her to tell me about the content than for me to try to go through it myself (which I hadn’t done since first receiving it, last year).  I also started to feel yucky and shut-downy.  I finally verbalized, “Let’s take a break.”  I was worried this therapy session was really going to have a negative lasting impact on me, but, in fact, I felt fine afterward.  Maybe I’m more resilient these days than I think.

I used to always think that if I do this one thing, or if I find out these missing pieces, or if I reflect back in a different way, the pain of that experience will be lifted.  If I just keep grinding into it and picking away at it, I’ll one day be free.  Now I know that this can’t really happen.  And I can accept that it was a shitty thing that probably didn’t actually need to happen.  It was traumatic.  It was so long ago.  I can look at it with a completely different perspective by now, but not because of anything I did – that perspective shift happened naturally, over time and with personal growth.

There is so much I could write about.  But I actually really only want to write about one thing right now, as it relates to my hospital experience:  while I was there, I wore this one particular hoodie constantly.  And once I was released, I never wore it again.  But there seems to be no way I can get rid of it.  I brought the hoodie in to therapy, along with the document, and told her all about it.  When the document felt too overwhelming to keep delving into, I told her she should just hold onto it and go through it on her own time.  She asked if she could hold on to the hoodie too.  I said, “yeah sure.”

Los-Angeles-Rams-return-to-Los-Angeles-FOOTBALLPHDS

My hoodie sported this sports logo.

The reason I loved the hoodie so much was because the LA Rams were not a team.  (I just looked it up, and they were a team from 1946-1994).  I worked at a thrift store and picked up this gem at some point.  I liked the incongruousness of it.  I do not like football.


Good doctor news

Three months ago, I finally found a good doctor, but I was unsure if I’d be able to keep her.  I liked her style immediately – ability to communicate, upbeat and straightforward manner, etc.  And I liked her entire office’s professionalism.  However, she had no trans-related experience, and after I told her my reasons for being there, she seemed hesitant to keep me on as a patient.  She said she would look into finding a specialist I could go to, or at the very least, that she could consult with before proceeding.  In my head, I was thinking, “Good luck with finding people locally!  How do you think I ended up here, with you?!!”  Haha.

We had a follow-up appointment yesterday.  Going into it, I wasn’t sure if she was just going to say, “So I’m going to refer you to so-and-so,” and I’d have to start all over again with someone new.  I was nervous; I didn’t want that.  I had convinced myself, to an extent, that that was what was going to happen.

If you’re interested in reading through this epic journey to find a new doctor, here’s where I’ve been, in backwards order:

From 3 months ago, Convincing doctors that hormones are not that complicated
From 5 months ago, The last time I saw my doctor / I like your product
From 6 months ago, Continued quest to find a new doctor (a good fit?)
And from 7 months ago, just simply, I need to get a new doctor

At the appointment, we first discussed the fact that I went to the eye doctor, and that my vitamin D is low and I need to get supplements, and then finally discussed the reasons I’m there.  She said she did find two area specialists (one is an LGBTQ health center I’d rather not go through, and the other is an endocrinologist who focuses on adult health – good to know there is someone local, and that she uncovered him!)  She continued to tell me she does not think it’s necessary for me to go through either of these channels unless I want to, and that she will continue seeing me for low-dose testosterone therapy.  I was super happy but didn’t really let on.  I did tell her I am glad I can keep coming to see her though.  And that I don’t feel like I need to go to these other people unless something comes up.

I wonder what happened within that 3 month time span!  I think she did some research.  Or, in the process of reaching out to specialists, they conveyed to her that it was within her realm and abilities.  And then she did some research.  Something!

We discussed the labs I got done in May.  My T levels were at 68 ng/dl.  This surprised me quite a bit – previously, I was at 102 ng/dl.  I had somehow, without changing a thing, dipped back into a normal female range.  How does that work?

I know I should go by how I’m feeling, and not by numbers.  BUT – is it just a coincidence that I increased my testosterone dosage 2 months ago, just kinda because?  Because I felt like it?  Hmmm.  I’m super curious to know what my levels are now, accounting for the slight increase…  I’ll find out in 3 more months… (More labs.)

Until then, I just wanna revel in the fact that I finally have a primary care physician I would feel comfortable going to for any issue that comes up with my body, trans-related or not.  This is a first!

 


On therapy and gaining access to what we need

Directly from the WPATH-SOC (World Professional Association for Transgender Health Standards of Care), 7th edition, p. 19:

Psychotherapy Is Not an Absolute Requirement for Hormone Therapy and Surgery
A mental health screening and/or assessment […] is needed for referral to hormonal and surgical treatments for gender dysphoria. In contrast, psychotherapy — although highly recommended — is not a requirement.
The SOC [Standards of Care] do not recommend a minimum number of psychotherapy sessions prior to hormone therapy or surgery. The reasons for this are multifaceted (Lev, 2009). First, a minimum number of sessions tends to be construed as a hurdle, which discourages the genuine opportunity for personal growth. Second, mental health professionals can offer important support to clients throughout all phases of exploration of gender identity, gender expression, and possible transition—not just prior to any possible medical interventions.  Third, clients and their psychotherapists differ in their abilities to attain similar goals in a specified time period.

When I was 17 years old, I admitted myself voluntarily to a psychiatric hospital.  I thought I was going to go there for a day or two, be able to finally catch my breath, and then work with those around me to make a plan for what I needed.  This is not what ended up happening.  I still wanted to leave after a day or two – that didn’t change – but suddenly, things were getting really confusing really fast, and lots of people had other plans for me.  Since I was still a minor, I really had no say in what happened.  I was there for 19 days.  I was put on 3 different medications.  I was told I suffered a psychotic break.  I was diagnosed with bipolar disorder (based on how I was behaving – short-term – and things I told them, such as, “I think I am bipolar”).  When I left, I spiraled into a major depressive episode that lasted about 4 months (and I felt highly unstable for years to come).  This helped confirm for me that I was, in fact, bipolar.  Something I believed for about 6 more years.

I am most definitely not bipolar.  I did go through a psychotic break, but in retrospect, I believe this could have been prevented had I not been hospitalized.  I think, ultimately, I just had an extended panic attack.  And having no idea what that was or felt like, I thought going to the hospital was the only thing I could do to help myself in the moment.

For the next 6 or so years, I complied with my mental health care.  I took all my medications every day, as they were prescribed (and those meds and dosages changed a lot over the years).  I went to all my appointments I was supposed to go to.  I talked to therapists, psychiatric nurse practitioners, psychiatrists.  I didn’t seem to be improving.  In a lot of ways, my mental state was getting worse.  I just followed along with the treatment plan because I didn’t know what else I could do.  In fact though, I couldn’t really tell you what the treatment plan was.  Was there a plan?  I don’t recall that being a conversation.

All of these experiences have greatly shaped who I am, and also my attitudes toward health care providers.  I’ll say right now, I am definitely biased and wary.  Once I decided I wasn’t going to take medications that didn’t seem to help, and I wasn’t going to listen to ideas that didn’t seem to make sense for me, there really was no going back.  Pretty much dropped out completely (except for going to a dentist and a chiropractor, haha) for a very long time.

Until I decided I wanted to access testosterone.  I thought I was going to need “The Letter” from a therapist, but in the end, the doctor I went to didn’t care about formalities like that.  (He’s also a sketchy doctor though.)

I feel very adamant that I should be able to easily access testosterone for the rest of my life.  Testosterone is doing for me what antidepressants, mood stabilizers, and antipsychotics never quite did.  And more.  I don’t want to go through hassles to be able to get it.  I’d go as far as to say that being challenged about it by a health care professional is highly triggering for me.  Because when I was younger, I was told what would be best for me for so long, and I followed.  And it was shitty.  So now the dynamic is going to be the other way around.  I know that’s extreme and reactionary, but I do feel that strongly at this point in time.  I hope that as I age, I will mellow out about it.  I’m sure there will be times that I’ll need help and I won’t know what is going on with my body, and I will be grateful for doctors’ and specialists’ expertise.  As for now though, I’m not there yet.

Although my experiences with mental health professionals have been shaky at best, I believe strongly in the therapeutic effects of… well, therapy (haha).  Without having been in therapy through those toughest years, I would not be where I am today, no question.  I learned how to talk and communicate from therapists.  I learned how to stop being so hard on myself.  I learned to let go of my past.  I learned that I cannot save others from their pain.  I learned what things really matter in life, and what things I am spending wasted energy on.  It was the slowest imaginable process.  None of these gems felt like they were working for me at the time, but in returning to therapy over these past 2 years, it all started to suddenly sink in, and I’ve made some real leaps and bounds.  I feel grateful for that groundwork I started in my late teens and early twenties, through therapy, even though I could not feel the benefits whatsoever at the time.

Two years ago, I attended a workshop at the Philadelphia Trans-Health Conference called, Who Needs Therapy?  Some Thoughts on Mental Health and Gender Variance.  It was largely an open discussion format, with a mix of mental health professionals, people with experience being in therapy, mental health survivors, and others.  Toward the end I had worked up the courage to ask the group, “What if I really connect with my therapist, but it is clear she is not knowledgeable about trans* issues?  Is it worth it to continue working with her if I want to explore this?  Is it up to me to attempt to point her to resources if I want to keep working with her?”

Everyone who responded to me was very adamant that it was not up to me, and if she does not do the work on her own, I should find someone who is knowledgeable or who is immediately and clearly willing to do the work.  It turned into a very impassioned discussion with a lot of people saying the same things.  I left feeling really confused.

It had been very hard for me to find a therapist I click with.  I’d gone to a few in my mid/late-twenties, and felt really dispirited.  A couple of them were specifically gender therapists.  In the end, I returned to the main therapist I saw through some of my toughest years.  It was amazing to me she is still around and I could find her.  Re-connecting with her again after 8 years was mind-boggling in the best way possible.  Despite the feedback I got at that workshop, I wasn’t about to let go of her so easily.  Nor did I feel like educating her myself, or even asking directly what she did know and what she did not know.  I just continued to tell her how I feel, and I didn’t ever get the impression that she didn’t understand or wasn’t going to work with me on that.  However, when I asked her if she’d write me a letter for HRT if need be, she said, “No.  I don’t feel like I have that expertise.”  And I appreciated that.  It is all working incredibly well.

When going to my new doctor, I could have possibly had an easier time if I was forthcoming with the fact that I’m in therapy for gender issues (although I’m not in therapy with a gender therapist).  But I didn’t feel like I should have to.  So I didn’t mention it.  When the doctor asked me who is in my support network, I said my partner and my parents and friends.  I left out my therapist.  When she told me she would like to collaborate with the gender identity youth clinic in making a plan for me, I could have saved some time and hassles by saying, “My therapist already talked with them, and they won’t see me because of my age.  So the plan B is this.”  But I didn’t.  I just said, that’d be great and let my doctor make the phone calls and come to that same conclusion on her own.

Why?  Because I think that therapy is an important part of my well-being.  And I think that getting the best medical care possible, for what I need, will also be an important part of my well-being.  And I don’t feel like the two necessarily need to have much to do with each other.  Specifically, I don’t want to suddenly be taken more seriously and be given what I need, gender-wise, because I am in therapy.  I want what I say to be enough.  I want to access hormones without it being known I’m in therapy, if I can.

I am deliberately attempting to lay some of the groundwork, saying that this is perfectly acceptable.  Not all of us live within access to clinics or doctors who offer the Informed Consent model.  But I feel like I am in a position where I can work to change that.

 


Convincing doctors that hormones are not that complicated

I just got back from my first appointment with a new doctor at a women’s health group (unintentional!)  This has been an ongoing saga, and although it’s not a perfect fit, it’s good enough, at least for now.  Looking for more backstory?

Back in January, I decided I was fed up with my doctor, and that I could do better.
By the end of February, I’d found a promising candidate, only to realize she’s part of a women’s health group.
My last appointment with my doctor, at the end of March, was an absurdist performance piece.

It has been challenging to find appropriate health care where I live, but I’ve plowed ahead anyway because:  1)I know what I am trying to get, and 2)I don’t see any reason why I should not get it.  This new doctor has no expertise in trans* identities, and I knew that going in.  But I did find her through the local gay alliance’s resource page, so that was a start.  When I told her that this is how I came to be here, she replied, “Well… yes, I am LGBT friendly, but I don’t know how I got on that list.”  What does that mean???

When I told her the reason I’m here is to get more Androgel, she replied that she does not feel qualified to prescribe hormones.  That was the start of the discussion, but by the end, she was giving me a prescription for exactly what I said I’ve been on for over a year already, and she was changing her tune to, “I suppose I could for the time being, but the long-term health risks are too great, and it’s not my area of expertise.”

I told her I’ve been going to the one trans* specific doctor in the area who treats adults (that I know about), and I want to switch because I do not like him.  She used her laptop to confirm she knew of no local doctors, aside from the clinic that treats adolescents and young adults.  She suggested I could use her as my PCP and still go to my other doctor for the hormones.  I told her I was not going to do this.  She then suggested she might be able to get me in at the adolescent clinic for a one-time visit, so that she can then be advised by them about my care.  I told her that would be amazing.  She will be following up with me on this, and I would be happy to go.

I told her how I perceive my gender identity, why I’m taking testosterone, and that it does not involve much health risk for me personally.  She said, even so, she did not know enough about it.  I asked her, “What if a woman wanted to take testosterone to address issues with a low sex-drive?”  (Women do this.)  She said that she would not use testosterone as a treatment.  It’s not been proven to be effective.  She continued on to say that she does have some male patients (husbands, sons, etc. of patients, who want to come here), and some have low testosterone levels, and she’s not the one to prescribe them testosterone.  I found this difficult to believe.

I showed her a copy of my latest blood tests, and this is when the tables started to turn.  I saw her open up.  I illustrated what I knew by telling her what “normal” female and male ranges were, and where I fall within that.  I told her that risks such as increased blood pressure, red-blood cell count, cholesterol, etc., are real concerns that can be monitored through blood work, but I believe I counteract those risks anyway with my lifestyle (vegetarian diet, active profession, don’t smoke, drink only moderately.)

I told her, bluntly, “It’s not that complicated.”

And, in the end, she seemed OK with it.  She was asking me what diagnosis I would like her to put for insurance purposes.  I told her that Gender Identity Disorder is in the DSM – “I don’t like it, but it’s there.”  She responded with, “What about ‘hormone treatment for transgender patients?’  Well, you don’t identify as transgender…”  I told her that I do, that “transgender” is an umbrella term, and that diagnosis works OK.

I went by this new name I’m trying out, at the doctor’s office.  I figured this is a compartmentalized atmosphere, and a good place to see what it feels like.  I gotta say, it didn’t feel great.  I’m not sure what that’s about yet.  If that means this just isn’t the name for me, or if I’d actually feel this way about any new name, because any and all would feel foreign at first.  I’m sure my gut will tell me.  And time.  Time will tell me.  I also told her I’d like to go by male pronouns.  She said, “We can do our best with this.  You’ll probably have to remind us, but we’ll try.”  Her body language while she said this conveyed, “I don’t get it.  I’m not really going to try, but feel free to try to get us to try.”

And this is where things are.

 


The last time I saw my doctor / I like your product

I went to my doctor’s office one last time a few weeks ago, to get another prescription for testosterone.  During this past year of seeing him multiple times (in the beginning, it was so many times), our values and expectations were not at all lining up.  My goals and values include communication, follow-through, trust, and respect.  As far as I could gather, his values involved maximizing appointment frequency ($$$$$), minimizing face-time, being the expert, and using aggression to barrel through mistakes.

Because of all these clashes, I got myself a new doctor for a couple of months from now.  Plus, I have a plan B if that doesn’t pan out.  I feel a huge amount of relief to never have to see my previous doctor again!  Here is an anecdote from that last visit:

I called on a Friday to ask if I could come in and pick up a prescription the following week.  (Because testosterone is a controlled substance, I can never get refills or prescriptions faxed to pharmacies, apparently?  So even though I only need to see the doctor / get blood work every 6 months, I have to go every 3 months just to get a new script.)  The receptionist asked when I’d want to make the appointment, and I had to repeatedly be clear this is not an appt.  I am not due for an appointment at this time.  I told her I’d like to come in Thursday to just pick up a prescription.  I asked, “Should I call ahead that morning to make sure?”  “Yes, that would be good.”

I called Thursday morning to ask if the script was ready.  She replied that oh, no it’s still in his messages box.  She told me he’d do it once I arrived at the office.  I said OK.  Once I got there, I waited a while to speak with the receptionist.  She and a patient were in the middle of an argument about outstanding bills.

The woman asked how had she been able to see the doctor without paying?  There has never been a time he has seen her unless she pays first.  This is why she’s not able to see him right now – she hasn’t paid first.  So how could she have a debt if he won’t ever see her before she pays?  She asked the receptionist to ask him, since she can’t go ask because he won’t talk to her unless she’s paid, at any point in time.  She can never talk to him.  There was a question about the dates of these alleged appointments, and the receptionist just kept replying that she does not know anything because she’s not the billing department.  This circular back-and-forth was making me feel dizzy (I was rooting for her in this standoff, anyway).  There were other nonsensical details, but I can’t recall everything.  I was focused on myself and getting out as quickly as possible.

The woman stepped aside to call the billing department, so I approached the receptionist just to be like, “Hey, remember me?  I’m here now.”  Haha.  I sat back down and waited for a while.  The doctor brushed past the entrance to the waiting room and mumbled my name (maybe?) and for me to step into room 4.  My heart started racing.  I knew I was about to be bullied into an appointment, and I was prepping to fight back.

I stood up and tentatively walked toward the corridor (because I wasn’t even sure he had been addressing me!)  He came back through and directed me to a room.  I said, “OK, just to be clear, this is not an appointment.  I am just here for the prescription.”  “I know, but we have to get you a new blood work form, so it is [an appointment.]”  He essentially yelled this as he rushed down the hall to his office.  I stood in the room to wait for him, but did not sit down or take off my coat.  Once he came in, I asserted, “I had my blood work done in December.  So it is not due, and I do not need an appointment at this time.”
He replied, “Oh, it was December?  I thought it was June.  OK then, you’re right.  Well, take this form anyway since I already filled it out.  What prescription do you need?”
“Androgel.”
“The Androgel rep is here right now.  Go ahead and go back to the waiting room and tell him how much you like it.”
“OK.”  ???

I went back out to wait for him to get me my prescription.  A young man in a suit and black wool pea coat, with a briefcase, sat kiddie-corner to me.  I thought to myself, Oh, what the hell?  I like his product 100X more than I’ve liked anything else I’ve ever been prescribed.  I guess I’ll tell him…
“Hey, I like your product,” I said, nodding my chin his way.
“Oh, you like it?  Great.  It’s a good product.”
I sat there feeling smug and tough, for some reason.  I guess because everything was feeling increasingly surreal, and instead of shutting-down to it, I participated in the absurdity.

The doctor finally came out and gave me my prescription.  He said, “Did you tell him how much you like it?”
“I did.”

And then I finally got to walk out the door.


I need to get a new doctor

I got a doctor last February so that I could get on testosterone.  He has been fulfilling that need, but I am realizing that I want a doctor to also fill other roles.  For example, I’m sick right now (I’m slowly realizing maybe I have the flu a really bad cold.), but there’s really no way I would go to my doctor about that, or something like it.  I would avoid my doctor unless it were really an emergency, or unless I need more testosterone (which, not having testosterone would totally feel like an emergency!).  And I’m starting to find myself wanting a doctor who A) is nice, B) will answer my questions C) will spend an adequate amount of time with me.  I’m pretty sure that’s not too much to ask.

I do not like having to have a doctor.  If if weren’t for the T, I probably would continue not having a doctor.  I have not really had a doctor since I was 18 and under.  I’ve gone to some health centers, and I’ve had psychiatrists, but I’m pretty turned off to the whole thing.  My therapist has slowly been convincing me that I could find someone I connect with and could go to for medical concerns as I age.  I understand how this might be beneficial.  She’s even in the process of looking into someone who is trans-knowledgeable for me, and I’d be super grateful if it works out.

I got referred to my current doctor by a therapist I wasn’t really liking.  But I went to him because he apparently treats trans* people.  There are a couple of good things about him.  Mainly, he doesn’t seem to give a fuck.  This has worked in my favor in some ways.  He’s leaving it totally up to me how much Androgel I wanna take, basically.  He doesn’t care that I don’t want to physically transition or that I don’t identify as FTM, exactly.  On the first prescription he wrote me, he checked off both the boxes for M and F.  I liked that a lot!  (But the pharmacy did not, and basically every trip to the pharmacy has resulted in calls back to his office, issues with the way he wrote something out, etc.)  He first tried to get me on a different topical testosterone which would be an amazing deal, like ridiculously low monthly costs.  The fine print, however, stated this was only for men 18+, and he failed to catch that, resulting in more hassles at the pharmacy.  Currently, he’s writing the script in such a vague way (dosage-wise) that I’m getting a really good deal (Like $6.25 per month) and I’m able to stockpile a supply (which I don’t think he knows about).  But, again, it caused issues at the pharmacy.

I would trade all that in (my thriftbrain is not in control of me!) in order to go to someone I could talk to and who would answer my questions.  My doctor is gruff and impatient, he apparently has no time for me (visits have been 97% waiting, 3% face-time), and he seems to want to place blame on me for his lack of caring and follow through.  For example, I know I should care about my blood tests, but I don’t.  So I don’t take the initiative in making sure I get them done at regular intervals.  Should I?  I’m pretty sure that’s his job.  When I was most recently there he asked when my last blood-work was done, and I said I didn’t know.  He glanced at my chart and said, “April?!!  You have to get these done every couple of months!”  I just shrugged and said, “I don’t know these things!”  I felt as exasperated as he seemed.  It may not be totally fair, but his attitude dictates my attitude, essentially.  If I had a doctor who seemed to genuinely want my blood-work and to then talk to me about it, I’m pretty sure I would be motivated to get the blood work done.  It’s pretty simple.  It’s kinda how a doctor-patient relationship works.

Especially if the patient isn’t a big fan of doctors to begin with.  I’m ready to be convinced they can actually be OK.