4 weeks till top surgery
Posted: May 4, 2016 Filed under: top surgery | Tags: doctors, emotions, genderqueer, lgbtq, medical treatment, non-binary, psychosomatic, queer, shingles, therapy, top surgery, trans, transgender 24 CommentsAbout 10 days ago, my breast tissue started to feel inflamed and tender. It wasn’t in line with my menstrual cycle, and it hurt way more than that would, anyway. As it got worse and not better, I wondered if it was some strange manifestation of a psychological reaction to my upcoming surgery. I wasn’t feeling stressed or anxious about it, but was this psychosomatic? Then a patch of skin below my left armpit started to really burn and sting, as well as the skin around my shoulder blade.
Then 3 days ago, I broke out into a rash in those areas… and my boooobs still hurt a lot. I was able to get in to see my doctor yesterday, and… it’s shingles. She said that would also be causing the breast tenderness, because of where it is. Shingles flare up along a line of nerves starting at your spinal cord, and wrapping around to the front of your body – so that you only get it on one side, within a range of area. It’s like chicken pox, redux. Everyone I’ve mentioned this to says, “You’re too young to get shingles!” All I know about it really is that Carrie Brownstein got shingles while on tour (from reading her memoir, Hunger Makes Me A Modern Girl,) so I guess I’m in good company.
I got 2 prescriptions to help with the pain and the duration. We’ll see – it should start clearing up within a week… I’ll be going back in 2 weeks for my doctor to take a look. If this had happened close enough to my surgery, it would have had to have been postponed. That would have made me really upset! According to this timeline, I should be OK. It’s just so mind bogglingly coincidental that this suuuper painful inflamation occurred right in the area I’ll be having surgery. I’ll let you know which ends up being more painful – this or surgery!
Other than that, I feel relatively prepared. I just had my pre-op appointment via phone call a week ago, and that has put things into motion for getting everything ready. I got a huge packet in the mail of things to sign (informed consent), directions for when to do what, etc. I made a checklist to make it easier.
Pay surgeon – I still have to do this. I exhausted all info about my insurance plan, and there is no way insurance would pay for any of it. I expected as much all along, so, no big blow there…
Get parking permit – In process. My spouse and I will be in Ardmore, PA for close to 48 hours, and we need a temporary parking permit to park in the municipal lots.
Get therapist letter – In process. My therapist just sent me her draft last night, and it looked good to me, so she should be faxing it at some point today.
Get prescriptions filled – Done. This could be done well in advance, so your meds are ready for you when you need them. I needed to get a pain med and an antibiotic.
Get lab work – Done. I did it yesterday morning.
Go through a pre-op appt. with primary care physician – Done. I did it yesterday morning. I killed 2 birds with one stone – this plus shingles diagnosis all in one. She will be filling out a form to clear me, despite the shingles, and faxing it in.
Send in consent forms and everything else that needs a signature by me – I gotta get this together. I think I need to re-print certain pages and figure out what I still need to read through.
Take photos of chest – I did this for the surgeon already, but I might want to re-do it. Not while I have these shingles though!
I feel ready for surgery, mentally. Emotionally, I’m wondering if something is going on (shingles are brought on by stress, which I’m not actually feeling). I set up an appointment to see my therapist (who I haven’t been seeing lately), just to cover all my bases. It can’t hurt!
That specific trauma is no longer a big deal
Posted: November 11, 2015 Filed under: mental health | Tags: anniversary, anxiety, bipolar disorder, depression, emotions, medical treatment, mental health, psychiatric hospital, psychiatrists, psychotic break, stress, therapy, trauma 6 CommentsAround this time, 16 years ago, I voluntarily admitted myself to a psychiatric unit, but then I got stuck there for 19 days without knowing what was going on. The lack of communication was horrendous. I suffered a psychotic break and left with a diagnosis of bipolar disorder. I accepted this for years, and I internalized that I have a mental illness in some pretty detrimental ways. This has always stayed with me, always felt like something I needed to work through and get past.
Two years ago, I wrote about how I came to finally acquire my medical records from my hospital stay, and how I started to process things differently with the help of my therapist:
Continuing to work through a specific trauma
Last year, I wrote about finally bringing that record into therapy and how it felt to have her go through it. I was starting to realize that maybe I didn’t need to pick it all apart; maybe my perspective was shifting naturally, over time.
That specific trauma is still there
This year, although I’m acknowledging the anniversary, it feels like just the slightest emotional blip on my radar. I talked about it in therapy yesterday. I finally got my hospital records back from my therapist (she had been holding onto them for me for a whole year!) I looked through them again last night – there was always one page I skipped over. It was handwritten by me, explaining what had been going on in my social life that led me to feel like I needed to be hospitalized. I read it and felt OK about it.
Although this seems counter-intuitive, I think it helps that I was hospitalized in January. Where everything went wrong the first time around, everything went right(?) (maybe not right, but it went smoothly) this time around. I can overlay this experience on top of my shitty traumatic experience, and things make more sense.
I resisted the diagnosis of bipolar disorder for a long time, I’d been off all meds for 9 years; I felt relatively stable. When it was re-affirmed that I have bipolar disorder by the psychiatrist I was assigned, (“Once a bipolar, always a bipolar.”) I bristled at that. Actually, I bristled at him in general every step of the way. Appointments with him lasted a mere 2 minutes. He was inflexible and adamant I stay on meds forever. He forgot pertinent information about me. (At one point he told me I needed to stay on meds because I had been hearing voices.) After 6 months, I just stopped making appointments with him. With all his intensity toward me staying on meds, it was surprising how easily he let me just get away. Maybe he didn’t even notice I left.
My therapist helped me find a new psychiatrist; she’s awesome! She’s willing to follow my lead on what I want to do about drugs, and she’s willing to dialogue with me instead of ordering me what to do. I still don’t know what to do about drugs, but at least I have the space to feel supported with whatever I do choose to do. For now, I’m staying on them, but I can’t pinpoint why.
I respect this new psychiatrist. When she (also) told me I fit the criteria for bipolar type I, for the first time in a very long time, I felt like I could accept that. I don’t need to incorporate that in any particular way into my identity; it doesn’t need to mean I view myself differently. Personally, it’s not a core part of who I am. It just is an aspect of me that can just be, and I can leave it at that.
And I can finally integrate the difficult journey toward mental health as parts of myself, rather than things that happened to me.
Thoughts and feelings just passing through
Posted: September 11, 2015 Filed under: mental health | Tags: depression, emotions, feelings, mental health, suicide, suicide prevention, therapy, thoughts 12 CommentsYesterday was World Suicide Prevention Day. I didn’t know this till today, but looking back on yesterday, unknowingly, I was thinking a lot about the idea of suicide – something I don’t think a lot about. It’s been an annual day on September 10, since 2003; this year’s theme is Preventing Suicide: Reaching Out and Saving Lives.
I’ve been thinking about this book that Kate Bornstein wrote called, Hello Cruel World: 101 Alternatives to Suicide for Teens, Freaks, and Other Outlaws. I haven’t read this book in its entirety, but the gist is that there are so many things you can do other than suicide – some of them might be extreme, some might be unhealthy, some might be even self-destructive. But if it gets you through the moment, and you’re still here, that is good enough for the the time being. I think that’s a great message. Sometimes when someone is in so much psychological pain, nothing sounds appealing. But if you just try something different, something way out there, it might be enough to even just temporarily jump-start you out of the mode you’re in.
When I was in high school, one day I heard an after-school announcement for a “yellow ribbon club.” I really wasn’t doing well, and I decided to see what it was about. It was run by school psychologists, and there were maybe 5 students who showed up. We went around the room stating why we came. I basically said I came because I was worried I might attempt suicide; I came to get help. The other students had come for other reasons – either they had been affected by the suicide of someone they knew, or they just wanted to help. After I said why I was here, one of the psychologists reiterated what I had said. I remember feeling embarrassed and selfish. I didn’t go back to any more meetings. No one ever followed up with me. I did not end up attempting suicide, but things did get worse, and I ended up in the hospital not that much later on. I partially blame the psychologists for never checking back in with me.
This is a hard post to write because suicide is such a loaded subject. I’ve never attempted suicide or had an actual plan or had serious suicidal ideations. But there’s another way to feel suicidal – just kind of vaguely feeling like you cannot go on. Like you cannot keep living your life. Like you want to just stop existing, or just sleep forever. I’ve definitely felt that. With all the rough mental health – related stuff I’ve been through lately, I’ve felt that even recently. It’s a dull, nebulous, insidious, recurring, empty heavy veil, a lens to see the world through – a hindrance for sure, because there’s not much to be able to see, through all those layers. I don’t really know how to address it, other than to hope it will pass.
I think that what I’m learning is that rather than fighting those types of thoughts and feelings or trying to distract or re-route, it is possible to just give them less emphasis, to live with them, and to just focus on doing what you want to do, despite them. Just let them cycle through your brain, acknowledge them, but don’t give them any more power than what they are – just thoughts and feelings that come and go…
Kinda easier said than done, but I am trying to adopt this practice…
A manic episode
Posted: June 25, 2015 Filed under: mental health, Writing | Tags: anxiety, bipolar, bipolar disorder, depression, emotions, hospitalization, mania, medical treatment, mental health, therapy 7 CommentsI could easily write a 5,000 word essay on this topic; maybe one day I will. This is an abbreviated version:
Over night, my brain became a frenzied jumble of free associations. Every system I could imagine (friendships, technology, routines) opened up, and I was in the center of all of it, connecting all the dots.
I thought that Leelah Alcorn, the trans-teen from Ohio who committed suicide, was an elaborately staged message created by a group of people on Tumblr. Meaning, I thought she was not a real person – more of a call to action, one more thing to add to “The Transgender Tipping Point,” and finally really make some changes happen.
But I thought a lot of things right around this time period, for a couple of days. I believed I’d been chosen for amazing things, I was choosing my own adventure, and the further I could get before running into a dead-end setback, the more rewards I would gain. If I made it to my therapist’s office, she was going to give me this new phone I’ve had my eye on. If I made it through the entire day, I’d be going to a party thrown by everyone I know. I briefly had the thought, “My partner wouldn’t like that; that’s too much.” So my logic led me to believe I shouldn’t make it through the day at this rate. I should definitely get the new phone, but I should see what my therapist thought after that. Maybe.
Some things were already in motion, and there was no stopping me! My social media outlets were blowing up! My blog was going to get huge at this rate, and I was going to get a book deal out of it. Should I quit my job? I kinda like working there, as a janitor, so I’ll keep my job. I better write a note so that everyone will know I wanna go back to work. I pulled out one of those Mr. Sketch scented markers – it was Blue Raspberry – and scrawled out really big and doodle-y on a piece of artist’s paper, “I will want to go back to work.” It was barely legible. When I showed my therapist a few hours later, in fact, she couldn’t read it, so I just had to tell her I want to go back to work. I wouldn’t want to be someone who sits around all day, writing their book. I would get bored!
I called my therapist at 2AM and asked her, “Can you just come over?” I called her again at 7AM, just to see if she’d drop by instead of me meeting her at her office at 9. I was making some really cool displays in the house, and I wanted her to come check them out. I was playing a record – The Days of Wine and Roses by The Dream Syndicate, and everything was clicking into place. (Actually, the record is still on my turntable, untouched 4 months later – I’m playing it right now.) The lyrics were making perfect sense and informing me of things I should write down. “You say it’s a waste / not to learn from mistakes.” “Textbook case.” “It’s Halloween.” “She remembers what she said.” These messages were of utmost importance. This record was THE record to end all records.
By 8AM I was so bored and fidgety from doing stuff all night long, that I decided to take off for my therapy appointment early. I had everything I needed packed – My toothbrush and toothpaste, notes from work, and 6 bottles of hoarded Androgel (my prescription allows me to get more than I need, so I just collect them). I had no clue what would be happening next or how long I’d be gone after therapy (I might be put up in a hotel!), but I could figure out clothes and other stuff later.
Driving was a bit tricky. I was relying on intuitive cues, more than the rules of the road. Fortunately, my gut was telling me to slow way down and put my hazard lights on, rather than try to drive at the speed my mind was racing. I still got there early; when I arrived, I slammed my backpack into the corner of the waiting room, above the door. To alert the security cameras that I knew all about it. A man briskly walked past me and out the door. He was planted there to exit when I arrived. I proceeded to be loud and messy. I dumped out a bin of toys. I knocked over a chair. I said, “I’m borrrred!” I talked loudly about a Mazda advertisement on the back cover of a magazine. I finally understood how advertising worked – they weren’t fooling me! In fact, this whole magazine was rigged. I should just take it with me – I’ll need it later. I stuffed it into my backpack. One other therapist was there (this was a Saturday) and she tried to gently corral me until my therapist got there. She picked up the toys. She said she’d call my therapist for me. She talked to me in a steady and soothing voice. She wasn’t patronizing me.
Finally, my therapist arrived. We engaged in a delicate dance around each other. I knew on some level that I was going to the hospital. But I also knew that wasn’t necessary, and she was totally going to come over and check out my displays and then I’d be reunited with my partner to proceed with the most fun day ever! In reality, my partner was on her way to North Carolina with family (I’d successfully convinced her everything was fine / I believed she was just out with friends and I’d see her in a couple hours.) My therapist started calling hospitals for availability, and I conveniently went to the bathroom to shield myself from that stuff. I came back and dumped out all the contents of my backpack. This would be more fun. She immediately sorted things into piles to make sense of it. She called my partner and left a message. She asked me what my best friend’s phone number was and I told her. I left the room again while she talked on the phone. Before I knew it, my best friend was there! Magic! Everything was going my way.
I talked to my friend about the displays and we played Rubix cube. Suddenly we were all leaving. They led the way, and I went into the bathroom again. I wasn’t so sure anymore. I yelled out, “I set some things in motion, and I don’t know if I want it to go this far.” We were still just going to my house, right? My therapist replied, with forced enthusiasm, “Come on!”
I got in the car with her; my best friend went separately. I curled up into a ball and shielded my eyes from the world. I started to feel sad; I verbalized what I thought about Leelah Alcorn. I said, “I don’t know much about it. I know her name, where she’s from, and that’s about it.” She had been on the news. That was big. What I was trying to convey was that no one knew much about it. If everyone just saw her picture, her name, and her suicide note, maybe she wasn’t real. And maybe this kind of stuff happens all the time. What is real in the media? Scattered thoughts breaking down. My therapist said, “I don’t actually know where you live.” I replied, desperately, “Yeah, but you can find out.” She had a smart phone. People with smart phones seamlessly glean information all the time.
We weren’t going to my house. When we stopped and I uncurled myself, we were at the hospital. But it still wasn’t too late. If I just told her this is where it ends, and we go to my house from here, everything could still be OK. I looked her straight in the eye; I put my face two inches from her face. I said, “This is where it ends.” This had worked with my partner a few hours earlier. I looked her straight in the eye and said, “Everything’s going to be OK.” I gave her the green light to go on her trip. This time was different. My therapist probably interpreted that as, “The journey ends here, at the hospital.” I meant here in the car. Still though, I complied and followed her. After all, my best friend showed up here too, so it probably was all OK.
Five hours later, I was on the psych ward. I’d been in the emergency department. My mom had shown up. I had talked to my partner on the phone – it finally sunk in she was 6 hours away, and she and her family were turning straight around. My best friend had been with me. My therapist had left at some point. I’d peed in a cup. I’d gotten blood drawn. I’d signed some papers by drawing big loops over the entire page, not knowing what I was signing, exactly. But now, it was just me, and suddenly my choose your own adventure had come to a dead halt. There was no more choosing. I started yelling, panicking. “I NEED MY VITAMIN D PILL AND ELDERBERRY SUPPLEMENT!” I needed to maintain my body’s delicate homeostatic state. I was given a pill and took it; it was Haldol. It knocked me out for 18 hours. Before I faded out, the nurse was talking to me really sternly. She was really butch. “Do not start shouting on my unit – we don’t do that.” “I know I know it’s not like me at all…” “Also, you smell really strongly bad so I’m going to shut your door.” Then she started yelling. “He gets whatever he wants!” And I was out.
Still struggling / We got cats
Posted: April 17, 2015 Filed under: Uncategorized | Tags: anxiety, cats, depression, emotions, insomnia, mental health, pets, sleeping, therapy 35 CommentsIt’s been three months now since I was hospitalized. I was out of work initially for 2 weeks, then I went back for about a month before being out for another 2 weeks. I started to feel like things were improving – it was starting to be spring, time was on my side, and I would have moments where the crushing depression was lifting.
Then I had a really rough few days last week. I had 2 nights of disturbed sleeping in a row, and that really made the difference in whether I was OK enough or not OK. I called into work one of the days, but that started to not feel like enough. Things at work were starting to really trigger my anxiety, and this just got worse and worse over the weekend.
I had an idea about the trajectory of my recovery, but my brain is not following along. I thought, “OK, I just went through a manic episode with delusional thinking. This was followed by about 2 weeks of hypomania and then some mixed symptoms. I thought I could get away without sinking into depression, but it caught up to me. I should be in this depression for a few weeks and then things will start to lift and I’ll feel like myself again.”
Those few weeks have been stretching into 2 months so far. Like I said, a couple weeks ago, it started to feel like things were improving a little bit, but then I fell again, fast and hard. That wasn’t part of the plan. My therapist suggested going out of work for even longer, to give myself some time to heal. So, I am currently out of work for a month. It feels like defeat/relief. I started taking Celexa in the hopes that it will help.
Some of those nights when I haven’t been sleeping well have been agony. There were nights where I didn’t actually sleep at all – just kind of dozed only to be pulled out of it by some thought attached to an anxiety-reaction, over and over and over again. Does anyone else go through periods of insomnia? I kept trying to go to sleep in the guest bed, then switch to the couch, then back to our bed, then the guest bed, the couch, our bed, the guest bed… The night stretched out to infinity. I started getting agitated. Pacing. Swearing at myself. Punching a soft chair. I could have done worse, so I’m glad it was just that.
I’m at a new low. When I thought recovery was on the horizon, I sunk lower. In my past, I have been more depressed than I am right now, but who’s comparing? This feels pretty fucking bad.
When my feelings were so bad I didn’t think I could even be with myself, my partner helped me arrange to spend the day with her mom. We went to the bank, got coffee, ran an errand at the mall, she brought me to my therapy appointment, and then we had lunch at her house. That helped.
When it wasn’t any better 2 days later, I called a friend and she picked me up on her way to doing a bunch of deliveries for work. We ate lunch at an Indian buffet. That helped.
When I couldn’t imagine being home alone anymore, I went to yoga with my partner. That helped.
When I couldn’t fathom what I would do with these unstructured days, I looked into a place called the Creative Wellness Center. They have a bunch of art workshops and support groups, and it’s all free. I went to a jewelery making workshop just because that was what was being offered when I got there, and I went to a support group. That helped, momentarily, but I would have to say the social element was super taxing, and I’m not sure if I will go back.
When I expressed extreme despondency in therapy today, she suggested a partial hospitalization program. She looked into it and they do currently have openings. It runs weekdays from 9:30-3:15. I think this is what I need right now. She is going to fill out the paperwork and get back to me – I may be able to start next week.
In brighter news, my partner and I adopted 2 cats two weeks ago. Their names are Joan (after Joan Jett) and Jarboe (singer in a band called Swans). Normally, getting new pets would probably be exciting and fun. There are elements that are nice – it’s fun to watch them play together, and I like when they are cuddly. But to be honest, it has been stressful, just because of the state I am in. They are cats, doing their cat things. They get into stuff and knock things over. They eat things they shouldn’t. We’re containing them to the first floor right now, and Joan keeps getting through to go to the upstairs or basement. They are a whirlwind of motion; they are creatures being alive.
I keep hoping that they will save me from what I am feeling, but the best they can do is distract me momentarily. That’s a lot of pressure I’m putting on them!
Am I bipolar?
Posted: March 30, 2015 Filed under: Uncategorized | Tags: bipolar, bipolar disorder, depression, emotions, hypomania, mania, medical treatment, medications, mental health, SSRIs, therapy 11 CommentsToday is the 2nd annual World Bipolar Day, an event that strives to educate the public about bipolar disorder and encourages an open discussion to end the stigma associated with brain illness. There’s a facebook page where people can share stories, and there’s lots of links to different organizations. It was chosen to fall on this day because it’s Vincent Van Gogh’s birthday. He is said to have suffered from bipolar disorder, and he committed suicide at age 37. Bipolar disorder is fairly rare – roughly 1% – 2% of the population are bipolar. Some estimates say up to 5%, but there is this sense that it’s over-diagnosed. When I have questioned in therapy whether I am bipolar, she has replied something to the effect of, “That was a very popular diagnosis then. A lot of teens were being diagnosed.” Sometimes people think they have it because their moods are extreme; really something else might be going on.
I thought I’d take a minute to reflect today about whether I am bipolar or not. I mean, I did just go through a delusional manic episode 2.5 months ago, no doubt about it. And I am currently sinking through a rebound depression – definitely a clinical level depression. But I strongly do not think I am bipolar. It’s been 15 years in between episodes, and I’ve only ever had 2 episodes. Much of that time I’ve been off all medications. I can accept that I have bipolar-like tendencies (and I’m hyper-sensitive to stress levels), but I don’t think I fit the criteria, nor do I think I need to be medicated long term. In fact, I plan to go off my medications in a couple of months once this passes and I feel like myself again.
My new psychiatrist told my partner, “Once a bipolar, always a bipolar.” Meaning, I’d been (mis?)diagnosed already (at age 17), and there’s no taking that back. ??? He thinks I need to be medicated forever. He doesn’t get that I’ve been stable and have managed issues in my life in other ways for a long time. I’m pretty sure someone who is really bipolar doesn’t get to do that.
I can’t imagine what it would be like to actually be bipolar. To have to balance a medication cocktail indefinitely or suffer the consequences. Because when you’re actually bipolar, you can have an upswing or downturn without much prompting, if you’re un-medicated or if the medications are not right for you. If I was pretty sure I would be going through more mania and more depression in the near future, I would be living in fear of that. I honestly do believe I am prone to going through mania and depression again, but to a much lesser extent than someone who actually has bipolar disorder. And that’s scary enough.
One other factor that makes me think I have bipolar-like tendencies has been my reaction to SSRIs. I took Paxil for a few weeks about 13 years ago, and it caused me to feel super agitated and become hypomanic. Apparently this will happen if people with bipolar disorder take SSRIs. I do take this seriously, but ultimately I’d have to say I do not have bipolar disorder. Today I’m thinking about everyone who actually does.
Feeling trapped in by medications
Posted: March 6, 2015 Filed under: Uncategorized | Tags: antipsychotics, anxiety, depression, doctors, medical treatment, medications, mental health, side effects, sleeplessness, therapy 7 CommentsI’m on a 2 week leave from work again right now. I was basically planning to just push through depression and just go through with obligations and routines. That’s what I tend to do. But I was switching medications, and I really hit a wall. I had been on Geodon, and was switching to Latuda (both atypical antipsychotics). The Geodon was causing some strange hormonal side effects, so for 2 weeks, I was on a half dose of that and a half dose of this new one. That was working out OK. Switching to a full dose of the Latuda really set things off though. I couldn’t sleep and was starting to feel agitated. Depression plummeted and anxiety skyrocketed. Last night, I threw up an hour after taking the pills.
I had a therapy appointment yesterday, and going out of work again was her idea. As soon as she said it, it sounded like a good idea. Why didn’t I think of that? Haha. I have plenty of sick time; might as well use it when I actually need it.
I really do not know what I’ll do for two weeks. (OK, I do have some ideas – I can get my car recalls taken care of, I can start thank you cards from our party last summer, I can give my friend a hair cut, I can try doing some writing, I can just take it easy.) I feel relief.
I just feel trapped in by medications right now (side effects are weird! I’m a small person and I feel the dosing has just been way too high!), and by my psychiatrist because it’s all his call. I thought the Geodon could be OK if I were on less of it. He decided we’re not going to lower it, we’re going to switch drugs instead. Now I have to call him and tell him that’s not working out. I really just want to be on Geodon, just less of it. I really hope he listens.
A more complete picture of where I’m at
Posted: February 11, 2015 Filed under: Testosterone | Tags: emotions, gender identity, genderqueer, hormone replacement therapy, lgbtq, medication, mental health, non-binary, queer, testosterone, therapy, trans, transgender, work 5 CommentsLast week, I wrote about some highy unpleasant sensations I was experiencing, that I’d deduced were from testosterone for me right now. Then I thought some more about it. I thought about how testosterone has never been anything but a good thing for me. I also got some insightful comments and talked things through with my partner and my therapist. The testosterone bit may be playing a part, but most likely it’s this new medication I’m on, being all wonky with my hormones.
Another big factor it took me a moment to think through is: my menstrual cycle. Although I’ve been on T for close to 2 years, the dose is low enough that I still get my period. Do I like that? No. But I haven’t been wanting to increase the T enough so that it will cease. Maybe one day I will get a hysto. That’s way down the line though. For now, my menstrual cycle is mild enough that I can deal with it. Until the addition of this atypical antipsychotic (Geodon), that is. While premenstrual, I was experiencing hot flashes and cold sweats. I stunk all around (feet, underarms, breath). I could not be around too much light or too much noise or too many people. (My partner and I call it TMS for Too Much Stimulation.) I was making it through the work day but had no energy for anything else. Or, conversely, I had too much pent up energy I needed to expend by dancing wildly or pacing.
Another piece of the puzzle, that my therapist filled in, was the idea that I’m still coming down from a manic jag. It was acute and short-lived, but the brain takes time to rebound from something so extreme. She told me that, essentially, agitation and “feelings of flying/fun” are two sides of the same coin, neurologically speaking. That made a ton of sense. I was still having fun when I was kicking back at home, on a leave from work. As soon as I returned to work, the stress shot through the roof. Makes sense.
Now that I have the pieces to make sense of all that, and now that my menstrual flow is dwindling, I’m finally feeling like myself again. Even better, actually, I’m feeling like I did when I first got on testosterone. All warm & fuzzy, all cozy and peaceful and grounded in my body. I know my brain <–> body connection still has some sorting out to do, and I know I’m going to get off this drug as soon as it is safe to / I feel like it. Right now though, I am so glad I’m out of the woods on this one.
(It makes sense too, because 12 years ago, I was on Risperdal, a different atypical antipsychotic. I was having really wonky hormonal side effects on that too. Some things don’t change much.)
From whimsical musings to invasive ruminations on transitioning, Pt. 2
Posted: January 29, 2015 Filed under: Testosterone | Tags: coming out, gender identity, genderqueer, hormone replacement therapy, lgbtq, non-binary, queer, testosterone, therapy, trans, transgender, transition, writing 7 CommentsSince I have a lot of extra time on my hands right now, I thought I’d read through some of my old blog entries. I came across a couple of pretty good ones that didn’t get read by many people, because I was just starting out. It takes time and energy to build a readership. I thought it’d be fun (and self-indulgent, which I could use right now) to “re-blog” one of my first posts (and edit it lightly). See if it still holds up; maybe make a commentary at the end. This one in particular was my 10th blog post, and it’s from a year and a half ago. I had been on T for 6 months at that point. It got 4 views. I think it’s of interest to more people than that!
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For over a decade, I had been going back and forth thousands of times in my head about whether transitioning, or partial transition, was right for me or not. At some point not that long ago, I seemed to come to the conclusion that no, I wasn’t going to move forward because if I were, I would have done something about it by now. And I haven’t, so I’m not. I must be lacking some internal drive, so it must not be something that I need to do. I settled on identifying as genderqueer and trans* but not planning on medically transitioning in any way. But I was not quite satisfied, not at all actually. Because it was still on my mind. Sometimes just as whimsical musings in the back of my brain. Other times as pervasive/invasive body-dysphoric consistent ruminations.
I thought it had to be all or nothing. I thought I had to have a case ready about how I need to transition, in order to access testosterone. But I don’t need to transition, and I really don’t like to lie. I thought I would need a letter from a therapist, and to jump through all these hoops, to access testosterone, at least in my town, locally. And I wasn’t even sure I wanted it! Eventually I reached a point where I just knew that I needed to try it, just so that I could know. So that at the very least, I could think about it differently or think about it less often, as it relates to a decision about something I should or should not do.
I have this awesome therapist. She doesn’t know much about trans* identities. I’m fairly certain she had not previously had a trans* client before, although I could be wrong. I’d been talking to her about this stuff, and she’d been following along, more or less, in stride. When I would say I need to try this out, she would say, “then why not!” I asked her if she’d write me a letter if need be, and she said she wouldn’t be comfortable doing that; she doesn’t have enough knowledge about it. Still operating under the assumption that I would need a letter, I started also seeing another therapist, basically for the purpose of getting a letter.
This second therapist gave me the name of a doctor during our first session. Turns out that, apparently, I didn’t need a letter! Turns out I didn’t need to convince anyone at any point that I wanted to transition medically. I never once had to lie to get my hands on testosterone. And once I did get my hands on it, I was given the freedom to experiment with the dosing, basically use as much or as little as I wanted. Turns out I want to use as little as possible. Turns out I might be able to stay on it for the rest of my life without looking any more masculine than I currently do (this has yet to be proven, but it’s been 6 months now, and so far, so good). And the internal effects, with this super low dose, are significant and pretty much better than I could have even hoped for.
Basically, for all those years of wondering and second-guessing and processing and feeling anxious and obsessing and daydreaming and doubting myself and ultimately sort of concluding by default that I wouldn’t take any steps forward, actually doing something about it has been one of the best decisions I’ve ever made.
And in retrospect, it isn’t like there’s no turning back, to some extent. Testosterone is a slow-moving substance in terms of long-term changes… I’m really enjoying the internal forward momentum though.
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Now that it’s been close to two years on testosterone, I am at a new normal. I have used the gel every single day, and the benefits have been astronomical. BUT, I forget now; I forget what I used to feel like. I can feel myself approaching a new stage, a stage where I look like someone in between, more so than I already am. This new stage might involve shaving (or plucking chin hairs at a faster pace than I currently do.) It might involve a lot more explaining and coming out. It might involve top surgery and a name change. This is my transition, in process.
Depression and taking testosterone
Posted: December 8, 2014 Filed under: Testosterone | Tags: antidepressants, anxiety, depression, gender identity, genderqueer, hormone replacement therapy, lgbtqia, mental health, non-binary, queer, testosterone, therapy, trans, transgender 4 CommentsA reader asked me,
I have been researching going on T and got approved for top surgery this past summer. I too struggle with depression and am on medication for it. I have been trying to find information on it but, were you on antidepressants when you started T and if so, did it affect how the T was processed? I am curious if the T counteracts negatively in any way with depression meds. Thank you for your posts and i look forward to hearing from you!
And since I don’t have any direct experience with this, I thought I’d post here and see if others might have some helpful thoughts / advice.
I was on antidepressants for around 6 years, from 2000-2006. I didn’t start testosterone till 2013, so I’m very far from there having been any overlap. I haven’t heard of someone having an adverse reaction to being on both at the same time, or there being any issue with how the T is being processed by the body. Everything is an adjustment though, and T is a potent hormone to throw into the mix.
For me, T has acted as a pretty effective anti-anxiety substance and antidepressant. I would recommend it to anyone who is depressed or anxious (That’s a joke. Kinda, haha.)
I don’t know whether I would ever take a synthesized antidepressant medication again. I’ve been on quite a few, and they were all either not really doing much of anything, or they were flattening me out into a walking zombie. They definitely do work wonders for some people though. Testosterone has been much more effective, for me, and I don’t just mean in terms of addressing body dysphoria. I mean that it has lifted me into a new level of living, basically. I wanna say that it’s been taking testosterone + being in therapy simultaneously that’s gotten me here (a powerful combination.)
I definitely am prone to low moods still. Just this past week / weekend is a very clear, recent example. I wasn’t sleeping well, my appetite was poor, I was obsessing about things I can’t change, I had little motivation for anything beyond basic functioning level. But something is very different about these dips than where I used to be at: I know they are not going to last. I know I’ll be naturally coming out of it at any point, and once I do, I don’t need to live in constant fear of the next time I start to feel low. Because, that’s all it is – feeling low. It’s no longer body + soul crushing depression, which I’ve been all too familiar with for most of my teenaged years and young adulthood…
Has anyone been on antidepressants when they started testosterone? Did you notice anything about how the two substances might have possibly interacted with each other? What has been your experience with antidepressants?



