Depression and taking testosterone pt. 2

A couple of months ago, I wrote about my aversion to antidepressants and how I’ve felt like testosterone has been acting well, in that way for me.  A reader had asked if I have experiences with being on antidepressants while starting T, and since I hadn’t, I asked for thoughts from others.  That post is here:

Depression and taking testosterone

I’m going to elaborate on some of those thoughts now because I am currently depressed.  I’ve been feeling this way for close to two weeks now, and I acknowledge that it might be a little while before I really pull out of it.  It’s not all that surprising or hard to swallow.  I suffered from a break from reality and a manic episode 6 weeks ago, and then I spent some time (weeks) in a hypomanic and slightly agitated state.  Usually what follows naturally is a rebound depressive episode.  My brain is still sorting itself out.

I’ve been spending a lot of my free time sitting and thinking.  Or laying down and thinking.  Or sleeping.  The thinking isn’t doing me any good / getting me anywhere.  It’s a lot of dead ends and connecting things to fear responses.  But it feels like all I can do at times.  Reading has been challenging.  Socializing has been challenging.  Feeling like doing anything extra has been challenging.  Writing (surprisingly) is doable, and always has been when I’m depressed (as long as it’s personal writing as opposed to fiction or academic writing).  I’ve been feeling forgetful, and like it’s tough to grasp the details of what is going on around me.

I’m trying to go easy on myself – not berate myself for sleeping 10-12 hours a night.  Accepting help from my partner and telling her how much it’s appreciated.  Letting myself off the hook for not conversing with others the way I’d like to be, or not doing the things I should really get around to doing…

Things that are sad are even sadder than they’d normally feel.  I haven’t been crying; instead I feel a sinking numbness.  Things that should be joyful and exciting are just things that happened.  Hopefully I’ll feel the joy and excitement later on, like a delayed response once I’m past this?  Like I’m storing up the joy for later?  Because some good things have been happening; I’m just not feeling it.

There is a bright side though, and that’s what I wanna focus on.  I still do think that testosterone is acting as an effective antidepressant.  Not so much on my mind / thinking, but definitely on my body / energy.  Although I’ve been oversleeping, when I’m awake, I feel good.  I don’t feel drained of energy or crushing physical pain, which is so common with depression.  It’s not hard to go through the motions of living, even though I really am just dragging my brain along for the ride right now.  That feels like a win.

My psychiatrist keeps asking, “How is your depression,” and saying, “If you’re depressed, we’ll add an antidepressant.”  And I keep saying (so far) that my depression is fine.  I don’t want to add more pills.*  I know this is stubborn thinking, and if it goes on too long, I hope I’ll have the wits to just gracefully change my tune.  But I really feel like this is a blip, and within a month, I’ll be feeling more like my usual self.

And that’s another win – a lot of times, that depressed feeling is accompanied by a conviction that it will never lift.  I don’t feel that.  I feel like I’ll be out from under this in no time.

And my brain and I might be friends again before I know it.

 

*I had been on Geodon, an atypical antipsychotic that was causing some strange hormonal side effects for me.  I’m currently switching to Latuda, another atypical antispychotic that has been approved in the US for about a year now.  I’m hoping this will go better.


100th post / We just paid off our house!

This is a 2 for 1 celebratory post – the title says it all!

I started this blog a year and a half ago, largely inspired by Micah’s blog, Neutrois Nonsense to start writing my own story.  When I started testosterone, I was overly concerned with the physical changes, and I couldn’t find an answer to my question anywhere.  That question:  is it possible to be on T long-term, at a dose high enough to make a difference yet low enough to not induce physical changes?

The answer, I’ve found out through personal experience, is YES.  Of course everyone is different, but this is a great option for non-binary people who feel more-or-less OK with their appearance yet feel like something is off, something about their world might be improvable.  Testosterone could be that thing that makes a world of difference.  It was for me.

To celebrate my 100th post, here’s an excerpt of some jottings-down I did before starting this blog:
“I wanna start a blog.  I already have a name for it and an address on WordPress.  But I have yet to make my first entry.  I suppose I’m unsure of how to approach it.  I want it to be attractive and interesting to others.  I want it to be long lasting.  I wanna keep coming up with things to say, but as of now, I can’t envision that.  It’s just one step at a time though – I shouldn’t worry about mapping the entire project out…”

And that’s how it’s been.  I don’t have a backlog of ideas or drafts started.  I just take it week by week, and see what’s out there (or just in my head) to write about.  So far this has worked out for me.  There is very little pre-planning.  I don’t think it’d be sustainable, personally, if there were.  I am obsessive by nature, and this is one of the few things that I’m not stressing out about.  That’s why it works.

Like the title suggests, I’m also celebrating having paid off our mortgage!  I bought this house we live in 8 years ago, and now we own own it.  Feels good!  How did we do this on two working-class salaries?  It wasn’t through help from anyone or an inheritance or lottery win.  It was through prioritizing, saving, and strategizing.

1.  We live in a city with a low cost of living:  One of the reasons I like where I live is that things are affordable.  I don’t make much money, but it feels like my money goes far.

2.  I am a cheapskate:  This is, honestly, the biggest factor in having been able to save so much, and it’s just part of my nature.  I don’t tend to buy a lot of new stuff.  I get clothes from thrift stores, mostly.  We don’t go out to eat a whole lot – my partner mainly cooks at home.  We don’t go out to bars or coffee shops all that much, unless it’s to socialize.  Socializing at other peoples’ homes is so much better anyway!  Coffee, tea, beer, etc. is so much cheaper in-house.  You can, in fact have really high quality coffee, tea, beer, etc. at home if you avoid stopping at Dunkin’ Donuts daily.

3.  We lived with housemates for years:  From the time I bought the house, to just a year ago, we always lived with 2 other people.  Those people changed over the years; it really helped aid in a sense of community with others, and also financially.  We would have group outings and dinners once in a while.  We did a holiday photo and newsletter every year.  We hosted a Kraftnite every Sunday evening.  I wouldn’t trade in those experiences for anything.  At the same time though, it’d be so tough to go back!  Now that it’s been just my partner and me for a year, I feel spoiled.  It’s nice to feel like we have the house to ourselves.  It helped us pay down the mortgage all that much quicker.

In addition, my partner is learning how to drive, and she just purchased a car.  We are entering “adulthood” like never before, lately.  I cannot wait to be a passenger in her car!  (I kinda dislike driving.)


Stress symptoms due to testosterone

I have been under a lot of stress lately.  Between taking on an acting supervisory role at work for 3-4 months and being hospitalized, I can’t remember the last time I was so stressed out.  Probably throughout college, over 10 years ago.  And although it sucks, there are some interesting things I’m learning about myself at the same time.  Namely, that stress is interacting with the added testosterone in some typical (but surprising-to-me) ways.

I’ve been on testosterone for close to 2 years now.  And in that entire time, I did not experience a lot of the negatives you hear about – oilier skin, heightened agitation / quicker temper.  Right now, I’m experiencing that.  Plus some added hormonal weirdness:  I feel hot and then cold and then hot and then cold.  I am stress-sweating a lot.  I STINK!  My skin feels prickly, then I feel light as a feather, then I feel like I’m weighted down, back and forth.  I’m getting more hairs on my chin and around my nipples.  I am pacing and dancing and taking magnesium and doing a lot of other things to try to counteract these stress symptoms and just calm down.  I feel calm right now, as I’m writing this.

Not too long ago, I was planning on increasing my testosterone because I’d like to appear even more androgynous.  Now I’m thinking that won’t be anytime soon.  There will be a time – it’s just not right now.  I’m even considering stopping Androgel for a while, but that’s not something I’d do lightly.  For right now, I’m hanging in there, because in my own mind, I’d like to be on it…  We’ll see.  I’ll probably talk to my therapist about it, first and foremost.  She has witnessed a lot of my agitation lately.

Normally when I’m stressed out, I might tend to clench my teeth.  I will have trouble sleeping.  I will have obsessive ruminations in an extreme sense.  Those thoughts can get pretty dark and even turn to uncontrollable visions of violence.  I would probably get a cold, due to my immune system being compromised.

Right now?  I haven’t been sick all fall/winter.  I previously was having a lot of trouble sleeping, but due to my new medication, now I am not.  I am clenching my teeth a lot.  And my obsessive gauge is going at full throttle for large chunks of time.  I’m taking super good care of myself – eating well, showering daily, applying deodorant often and chewing gum, to mask bad bodily smells.

I am really off my game, but I’m hanging in there…

These symptoms due to testosterone (educated guess) are really throwing me for a loop.


A story about what it feels like to be bigender

The other day, my partner alerted me of a really cool podcast story, and we listened to it together (for her, she listened a 2nd time).  It’s about a subset of trans-people, and a subset of non-binary people even: people who identify as bigender.  I’ve heard this term before but didn’t have a clear grasp on the experience of bigender people, largely just equating and blending it in with people who identify as “genderfluid,” in my mind.  The two terms definitely overlap, and the podcast didn’t mention “genderfluid” as an identity, but it told a very gripping and personal story of someone who is bigender.

I’m just going to summarize this person’s story, but if you have a half hour, listening to this podcast would be a half hour well spent!  Here is the link:

Invisibilia Story About Paige (Go ahead and skip the first 2 minutes – it’s just podcast producers doing introductions and general banter.)

Paige is in her 30s and lives in San Diego.  Her story is not a common one, even within the trans-community.  She grew up MAAB (male assigned at birth) and was largely fine with that, didn’t think twice about it.  She had fleeting feelings maybe she was supposed to be a girl, but they were very rare, and she didn’t dwell on them.  She joined the Navy and enjoyed it.  She got married; got a job, a car, a house – everything most people hope to do.  When she was 30, still living full time as a man, her body mysteriously stopped producing testosterone.  She got put on testosterone replacement therapy, and that’s when things started getting strange.  Those fleeting feelings of being female returned full force and with more frequency.  She began to feel a really strong split between “guy mode” and “girl mode,” and she had no control over when or where it might happen.  When in “girl mode,” she began to feel repulsed by her body, even to the point of vomiting from disgust.

She talked to her wife, and decided to stop taking testosterone and start taking estrogen instead.  The disgust started to wane as her body changed, but at this point, she was aiming for androgyny so that she could feel comfortable in both guy and girl mode, something she kept flipping between, often multiple times within a day.  There were certain things that changed for her depending on which mode she was in, perception-wise and personality-wise.

It’s been confirmed through psychological tests on a small sample of people who are bigender that there are in fact some differences going on.  This research is really in its infancy, and nothing has been conclusive on a large scale thus far.  But, well… makes sense!  (I am far from saying men are from Mars and women from Venus or anything like that, haha.)

Parts of her story are really sad.  Her marriage didn’t make it.  She spent a long time feeling like an alien, hiding her true nature, etc.  A lot of things a lot of people can relate to…

The interesting thing comes in the conclusion though.  It seems that the longer she was on estrogen, the more she “settled into” being female, on a psychic level.  She has stopped “flipping” uncontrollably, for the most part.  It does still happen, and it’s super jarring, but she is living close to 100% in “girl mode” these days.

This is super fascinating to me – although I am really in neither “guy mode” nor “girl mode” ever, my gender identity is static.  I can’t imagine what it would feel like to go back and forth, uncontrollably, at inopportune times.

More than just a few people experience this though.  Something like 8% of MAAB trans-people, and 3% of FAAB trans-people.


Kids have strong opinions about my gender

Yesterday, my partner and I met up with my childhood best friend and her family; they were in town for the holidays.  They have two kids, ages 6 and 3, and the three year old was overwhelmingly interested in me.  I’ve never had this experience before – usually kids stay their distance, giving me sideways glances or staring and staring and staring.  I’ve been interacting with kids more at school (while I’m working) a little more lately, realizing that although I’m a janitor, I am also an authority figure they see regularly, who can help point them to preferable behaviors.  (No running, no going down steps sideways, no slamming and throwing your garbage in the general area of the garbage barrel at lunch, etc.)

This was a very different dynamic though.  We were hanging out at a nearby public greenhouse and plant conservatory, and the three-year-old daughter took any opportunity to climb all over me, instruct me to pick her up and throw her up in the air, and get right in my face.  She was overhearing everyone use male pronouns for me, and she yelled, 2 inches away from my face, “you’re a girl!”  And then again.  And again.  “You’re a girl!”  We all laughed.  It was funny.  Because she’s three.  It was also the most jarring thing I have experienced in a very long time.  Her mom went ahead and explained very simply and directly that I get to say who I am, not her, and everyone has their own feelings about who they are, and only they get to say.  She tested this with, “you’re a boy!” but then went on to state, “I’ve never seen a boy who sounds like a girl.”  “I’ve never seen a boy who looks like a girl.”  And again.  And again.  Holy cow, kids love repetition!!!

She also declared many times that I am her mama.  Whoa.  (She later clarified that she was making a joke.)  Again, all of this is funny and easy to let slide because she is a three year old, but I gotta admit it was actually hitting my psyche a little bit. It helped that her mom (my friend), let us know she often does this.  She’s super outgoing, and she’ll hone in on one adult of a group she’s with, and that person is 9 times out of 10 the most handsome adult male of the group.  I’ll take it!

I have been considering what might happen if I increased my testosterone levels.  And these exchanges really sunk in, as one more thing, in a way that makes me feel motivated to move in that direction where I appear and sound more masculine.  I am still positive that I do not want to live my life as a visible male, but how cool would it be if people had some serious trouble knowing?  I would love that (as long as they were respectful in the not-knowing).

This kid’s reaction was interesting, because usually it’s kids more than anyone else, who are not quite sure whether I am a girl or a boy.  If I am asked this question, it’s coming from a child.  I’m usually not told, strongly and forcefully, by someone making eye contact, two inches away from my face!  Haha.


1.75 years on T without noticeable masculinizing changes

A couple of days ago, I hit my big 1.75 year milestone!  (Haha.)  I’ve been doing quarterly updates about changes on testosterone, and I’ll probably just continue at that pace.

Changes:  There are none to report.  Nothing new at least.  I had increased my dose from 1 pump of 1% (Androgel) to 2 pumps of 1%, from roughly August through November.  I did this because my blood work had come back with low levels.  Er, by “low levels,” I mean back into a normal female range (I believe I was at 64 ng/dl).  So after increasing and having more bloodwork done, I saw my doctor in November, and she told me my levels were at 210 ng/dl.  I was surprised by this – not because it’s bad; just because it did not feel like I was up in that range at all.  (A female range is roughly 14-75; a male range is between 300 and 800).  I had been aiming for roughly 100 ng/dl; to find out I’d more than tripled my level felt hard to believe.

I hadn’t been experiencing a drop in my voice.  Or more hair on my body.  Or an increase in sex drive or appetite.  To clarify, I have experienced some changes over time – just nothing new in a long time.  Here are some past posts about it, if you’re interested:

One and a half years
One and a quarter years
One whole year
Eight months on T

My doctor wanted me to decrease the dosage a little bit.  I strongly feel that I am going to do what I want to do and not what my doctor wants, in this regard.  BUT, I’m super curious to see what the lab work will come back as, with a slight decrease.  Because so far, the amount I’m taking has not appeared to correspond directly with the amount in my blood stream.  Not in a sensical way, at least.  So, for now, I’m using 1 pump of 1.62%, daily.

Like I said, there’s nothing new to report.  So I’m going to just riff off of one thing I’ve really been enjoying.  Feeling warm!!!  It’s not so great in the summer, but right now I’m reveling in it big time.  I’m typing right now wearing jeans and a t-shirt.  This would not have been possible in winter months before taking testosterone!  (Because we keep our house pretty chilly, to try to save $$$.)  I can step out of the shower and not feel like I am shaking and shriveling until the point I have all my long johns and sweatshirts on.  I can just kind of step out of the shower and take my time getting dressed.  I can walk around with damp hair, and it’s not intolerable.  My partner reports that sometimes it is too hot when we’re sleeping and I’m spooning her, in the dead of winter, even up in our uninsulated attic (which is where we sleep).  Never heard that complaint before taking testosterone.

I love feeling warm when it is cold!!!

And finally, a couple of pictures of my face, to illustrate that it is possible to take testosterone for this long and still look pretty much the same (if that’s what you’re trying to going for – I am…)

OLYMPUS DIGITAL CAMERA

1.75 years on testosterone

 

 

 

 

 

 

 

1.5 years on testosterone

1.5 years on testosterone

 

 

 

 

 

 

 

one year on testosterone

one year on testosterone

 


The Re-imagination Program

I’ve been using Androgel, daily, for over a year and a half now.  And I’m just now getting a full understanding about how the prescription & insurance industrial complex works as it relates to me continuing to get what I need.  Here are a few experiences that, each taken separately, are small, but as a collection of anecdotes, are kinda mind-boggling:

– My first doctor initially tried to sway me toward a different product, Fortesta, telling me I could save big, and handed me a discount card I could activate.  I went through all the hoops only to learn I was not eligible because I am not male.  When I came back to him with this, he changed my prescription to Androgel without further discussion.

– Although I made clear to him that I was aiming to be on a very low dose, and see what happens from there (like 1-2 pumps), he wrote the script out as 4-6 pumps daily.  This led me to be able to get 2 bottles at one time for $25.  This amount lasted me for 4 months.  At $6.25 per month, I wasn’t about to speak up about the inaccuracy!

– The prescription wording has changed over time (and between two doctors), and I’ve felt confused as to how that equates to how much I’m getting and how much I’m paying.  I’ve paid $25 for 2 bottles together, $50 for two bottles together, and even $50 for only one bottle at one point.  I guess I assumed it fluctuated in price.  I thought I was paying per bottle.

– I’m not paying per bottle.  I’m paying per month.  My payment, I finally found out, should be $25 per month (not too bad!), but somehow I’ve continued to avoid even having to pay that much.  I also have been able to store some bottles in reserves (which helps me feel much more secure since most of my visits to the pharmacy have led to some sort of questioning, calling of my doctor office, etc.  Not for anything personally about me, but because of how the script was written out.)

Basically, while talking to my insurance company (using the pharmacy’s phone) last week, I learned that all that matters is how the script is written.  Testosterone is a controlled substance.  I always have to pick up the prescription at my doctor’s office and show a picture ID.  I can never get a refill (although my doctor has tried!)  If the doctor writes the dose out as 1-2 pumps per day, the higher amount is factored in.  If it’s 4-6 pumps, it’s 6 pumps, even if I’m only actually using one.  No one seems concerned about whether the amount correlates to what I’m doing.  I can get a 30 day supply, a 60 day supply, or a 90 day supply.  I’d prefer the 90 day because it means I don’t have to go as frequently.  But if it’s entered as a 30 day supply, it’s 1/3 of the price.  And no one actually seems concerned with whether that translates into how frequently I go to the pharmacy.  Interestingly, I could pay a whole lot more to get the amount I use, or I could pay a whole lot less to get more than the amount I use.  I don’t understand this logic, but I do finally understand this system.

When I was told I’d be paying $50 for one bottle and would have to come back in 2 months with a new prescription, for my 2nd bottle (due to the wording of the script) last week, I argued with that.  The pharmacist got me on the phone with my insurance (which led to me finally grasping how this works).  I realized the only way around it was to get the script re-written by my doctor.

I asked the pharmacist if I could get a discount card for Androgel.  This is called “The Restoration Program.”  Due to my experience with the Fortesta discount card, I wasn’t holding my breath.  The pharmacist got me started and then handed the phone to me to complete the activation process with an Androgel representative.  He was friendly and smooth.  I was asked a lot of questions:  name, address, email, phone number, etc.  I was asked if I’ve read all the terms and conditions.  Since I had just been handed the booklet with mass amounts of fine print 2 minutes prior, I just said, “yes.”  I was then asked, “Are you MALE?”  He said the word, “male,” in such a harsh, abrasive tone; all customer-serviceness left his voice.  I paused for a good long while.  Repeated the question back to him.  Said, “No.”  Said, “I’m not legally male; if there is any other criteria under which someone could be male, I’m interested in that.”  But his helpfulness was long gone.  I felt mildly humiliated; he just kept grinding it in that he could do nothing further for me.

My jaded brain (during a conversation with my partner’s jaded brain, haha) decided that men are rewarded for using Androgel because the company is trying to promote a specific type of patient for their product.  Rugged, middle-aged, robust and vigorous.  Masculine.  Diagnosed with low testosterone, just needing a boost.  Just take a look at the pics of men on their website:
Androgel website

I am nothing like the men on the website.  However, I am just as worthy of being eligible for a discount program!  I would call it “The Re-imagination Program.”  Testosterone has certainly aided me in re-imagining who I am and what I can do / who I can become.

I told the pharmacist I wasn’t eligible.  He acted surprised, but my jaded brain decided he already knew.  The next day, I called my doctor’s office; asked for the prescription to be written the way it had previously been written.  Got a call back that it was all set; ready for pick-up.  Picked up the prescription, went back to the pharmacy, got my 3 month supply for $50.  Anticipating more hassles in the future…


Gender specific toys: advice column Q&A

I came across a question and answer from a nationally syndicated advice column the other day.  I read this in my local newspaper and got such a kick out of it I brought it home to share with my partner:

My 7-year-old daughter loves playing with her 13-year-old brother’s toys.  She has her own toys, but she does not play with them because she said that boys’ toys are “way cooler.”  I don’t know what “way cooler” means, but I would prefer my girl to play with her toys.  Do you think I am wrong for thinking this way, or should I find “cooler” girl toys for my daughter to play with?
-Daddy’s Little Girl, West Orange, NJ

Your son’s toys will be fascinating to your daughter no matter what they are, because they belong to her big brother.  Her desire to play with them shows her interest in connecting with him.  Chances are, if you bought her duplicates of all of his toys, she would still choose to play with his.  This could be extremely annoying to your teenage son, who is probably doing his best to grow up and be independent.

Suggest to your son that he devote some of his time playing with his sister.  Enjoying a bit of her brother’s attention should help her to become less obsessive about his toys.  Suggest that your son let her play with one of his toys on a regular basis as long as she agrees that she will not touch any of his other toys without his permission.  Negotiating playtime and boundaries should help them to find a comfort zone.

When I read this, it felt like a tiny victory.  This parent was, essentially asking what to do about the gender-anxiety-inducing situation of her offspring playing with the wrong type of toys.  Should she find cooler girl toys so her daughter will be more drawn to the right ones?  She wants her girl to play with girl toys.

Normally, I’d be miffed that the advice columnist didn’t address the question / concerns.  But in this case, it’s so refreshing that gendered toys was not touched on whatsoever.  Rightly so – seems like a non-issue.  Also ignored was the impulse to buy more toys and control the daughter’s desires.  Instead, the columnists focused on cultivating a good relationship between the brother and sister based around spending time together and creating boundaries.  And also pointing out how the 13-year-old must feel about all of this.

It’s not about girls’ toys and boys’ toys.  It’s about family dynamics and finding what’s best for everyone.  The columnist gets it!  Spread the sentiment!


The Transcending Gender Project Opening Exhibition

My partner and I attended the opening exhibition for this ongoing project that has been really gaining momentum in the last few months.  Rhys Harper launched an indiegogo campaign to raise funds for a cross-country road trip this summer, photographing trans and gender-non-conforming people along the way.  The results are beautiful 24X36 inch black and white portraits, along with brief bios of each subject, to illustrate who they are as people, beyond their gender identities.

To learn more about this project, (and find out how to get involved!) here is the website:  The Transcending Gender Project and also a Huffington Post article and interview.

transcending gender

I first heard about the project in May and donated immediately to the campaign.  We exchanged a few emails and then I met Rhys in person at the Philadelphia Trans-Health Conference.  When he asked if I’d like to get my photo taken by him, I said, “yes, definitely.”  Not realizing he was taking photos right there at the conference!  (I think.)  I said it more as, yes, let’s set that up!  D’oh, haha.  Since then, we’ve been messaging further, and I’m very much hoping to be a part of this ever expanding collection of photographs which are gaining visibility and audiences!

My partner and I made a trip of it this weekend – we went to a vegan restaurant, book store, art museum, Mediterranean restaurant, and then to the event.  It was a blast; nice to get out of town.  The art museum portion of the day was totally bizarre and surreal.  The docent seemed surprised we wanted to pay the full $5 each suggested donation.  No one else was in the museum except for her and a very friendly (and bored?) security guard.  Or so we thought, until we headed toward the stairway to the bottom floor – there were loud banging noises and the sounds of screaming children en masse.  I just kept visualizing a stampede of school-aged children horsing around and slamming into the glass cases housing invaluable ceramics.  I wasn’t too far off – it was indeed a stampede of children, but they were contained within a “play area.”

priceless ceramic piece #1

priceless ceramic piece #1

priceless ceramic piece #2

priceless ceramic piece #2

We wandered around for a solid 2 hours, and were trailed by the guard for much of that time.  She made sure to let us know we could take photos of the ceramics, as long as we didn’t use flash.  She pointed out some specific ones to us, commenting, “this one fools a lot of people,” etc.  She asked us if we’ve ever heard a player piano before (part of one of the exhibits) and we felt obligated to follow her back into a room we’d already been in, because the piano was rolling out the music.  I asked her how many times the piano kicks on per day.  She said, “three or four.”  There was an A/V exhibit where you could record a 10 second digital video of yourself, while manipulating special effects.  So, we went ahead and did that, and playback mode shows what you just recorded, followed by everyone else’s segments…  Our block was followed by 10 seconds of the guard, pacing the room at a slight distance, all pixelated and swooping (she must have recorded herself earlier in the day).  It was a distorted version of our real life experience, at the art museum.  It was a moment.

The gallery event was incredible.  Very well attended.  Lots of snacks and drinks (I usually make a bee-line for the free snacks at these kinds of things).  Seeing these images (many of which I’ve seen online) on these white walls, in person, felt really powerful.  There’s an Episcopal nun.  A fire fighter.  An ex-military person.  A cat rescuer.  A MMA fighter.  A DJ.  And so many more.  I think Rhys’s project is going to go far.  He’s already going far!  He recognized me right away, and we talked further about my being photographed in the future.  We also talked about being introverts and stuff like that.  He invited us to an after-party outing which was super nice, but we politely declined (since my partner and I are such introverts.  Haha.)

me and Rhys!

me and Rhys!

The opening was a joint effort with Gavin Rouille, a conceptual and graphic artist living in Minneapolis. gavinlaurencerouille.wordpress.com.  If you go to his website and click on “personal” (personal work), you’ll come upon a lot of really cool visual stuff.

lots of interactive and take-away materials!

lots of interactive and take-away materials!  (apologies for the blurriness – this stuff is all on his website as well.)

The text on the card reads:  “Dear friend, I am a boy.  I am sure you did not realize this when you called me, ‘lady, girl, miss, she, her, or ma’am.’  In the past I have attempted to alert people of my gender identity in advance.  Unfortunately, this causes them to react to me as pushy, or socially inappropriate.  Therefore, my policy is to assume people don’t make these assumptions about me, and to distribute this card when they do.  I regret any discomfort my presence is causing you just as I am sure you regret the discomfort your assumptions are causing me.”

Edit:  I JUST saw this: this article about Rhys’s photos was published 2 hours ago in Cosmo.  (!!!)
Cosmopolitan article:  14 Beautiful Photos That Will Change How You See Gender Forever


Thoughts on getting a diagnosis

Last week in therapy, I talked briefly about planning ahead for top surgery one day.  I said that I might want to do this, maybe as early as this coming summer.  That’s the most concrete thing I’ve ever said about the subject.  She asked what some first steps would be, and I replied, “look into whether it would be covered by my insurance.”  That’s kinda something that would really help frame it in my mind, the answer to that…  She asked me how I’d do that, and I really floundered with the actual words I would use if I were for real making a phone call to insurance people.

It’s too sensitive and too hypothetical in my mind still, and I could barely even say, “female to male chest reconstruction surgery” out loud, just to her.  She got it and said, “what you could do is find out the code for that type of surgery, and when you make the call, you can just ask about the code as opposed to using the words.”  I said, ok, yes, I think I could do that.  She said she would look it up for me and email me the code.

She ended up finding out a ton more info than just the code, on her own.  She said certain info led to more questions and she ended up just calling.  Basically, she got all the information for me, for which I am so grateful because it would have felt too emotional for me to do on my own, at this time.  It is NOT covered by insurance.  I’m not surprised.  I told her that doesn’t change much – I’m still considering it.

We briefly talked about it again this week, and about gender identity in general.  She said that some surgeons require a diagnosis of gender dysphoria for X amount of time in advance (glad she is doing the relevant research!), and should she be diagnosing me with that?  This turned into a heated discussion (on my end), with the conclusion that I do not care about that, but I am OK with that, if it’s in order to help along a process.  And that, again, I don’t really care to know what she is doing in that regard.

The idea of being diagnosed with a mental health label is contentious in my mind, and she knows this.  She gets it.  I’ll be writing about this further in my next blog post, probably next week.  A teaser for what is to come:  I was misdiagnosed with bipolar disorder at the age of 17, and held onto that belief strongly for about 6 or so years.  That’s a heavy duty label to be grappling with, unnecessarily.

My therapist is not a gender therapist, but she is doing right by me more than any other therapist I’ve ever had (and some have been gender therapists).  There was a time where I thought – we both thought – I would need to go to a different therapist in order to progress with any medical transition steps (I did this in order to access testosterone, kinda unnecessarily in the end).  I don’t think that anymore.  Why can’t she be that person?  I think she is getting on board with, she can be that person.  We concluded recently that a big goal for therapy is to make some progress with transgender-related issues and decisions, and I said I would send her some more general information to get her started.  I sent her the following resources:

Genderqueers, Gender Rebels, and OtherWise in the National Transgender Discrimination Survey

Trans Research Blog – a compilation of what is out there

Trans Bodies, Trans Selves – a great book to have on hand

Anyone have other essential resources?

More than once, she has said, where is the data?  Where is the research that says this and this and this are best practices?  And I just keep responding, There needs to be more research.  And I just keep shrugging.  IT DOES NOT EXIST.  (Yet.)  I don’t know whether she believed me initially, but she may be starting to realize it by now.  It’s maddening how little is out there.

Do I think that I have gender dysphoria?  Whoa.  That is going to take way too long to pull apart right now.  That’s probably for a future post!  Do I mind being diagnosed with that for the purposes of having a wider selection of surgeons to choose from if I do decide to move forward with top surgery?  Not at all!  It’s close enough.  (Although I do strongly, strongly wish more surgeons would get on board with the informed consent model.)

Edit:  Now that I think about it, I’m sure I’ve already been diagnosed with gender dysphoria by my primary care physician (for my testosterone prescription) and probably at least one other therapist.  To me, it all feels so arbitrary.