6 days post top surgery

Going into surgery, I was in pretty rough shape.  I felt sick (although I didn’t want to say so, specifically, to anyone other than my spouse… I kept saying “slight head cold”) and exhausted.  Luckily, my cold symptoms were not too worrisome, medically:  no fever, no chest congestion / trouble breathing.  Other than the cold, I felt mentally prepared.  In retrospect, I totally was. But, not so much prepared for the recovery process…

office / home / guest rooms mansion

office/home/guest rooms mansion

Surgery Day:  We arrived at 6:15am, surgery was from 7:30-9am, I was sleeping till about 10:30, and we were leaving by 11:30.  At which point, I felt a lot better than I had for days – it even felt like my cold magically disappeared.

Everything went smoothly, except for the fact that the surgeon was about to do the wrong procedure.  I was afraid this was the case because during the entire process including the consultation, the paperwork continually listed “double incision mastectomy with free nipple grafts.”  Even after I called a month ago to verify we were on the same page with the peri-areolar procedure and was assured that we were.  So when she came in and said, “Double incision.”  I said no, and luckily wasn’t phased by the mix up.   She said peri-areolar, I said yes, and she drew circles around my areolas.  I talked to her about nipple size, saying I wanted them small.  She said, “They’ll be smaller.  Your nipples will be nipple-sized.”  That was not very reassuring, but after she left, and before the anesthesiologist came back around, my spouse clarified that she had said, “your nipples will be nickle-sized.”  That sounded better.

If you want to read a more detailed account of what it’s like, here’s a good one someone wrote just a few days ago:  Surgery.  It was a lot like that. Back at the guest room, we texted with some people, a Philly friend came and visited for a while, we watched Seinfeld, and we went to sleep early.  I was up a lot that night, ravenously eating snacks and just not able to get comfortable.  I was sleeping sitting up, at the foot of the bed, a lot.

Day after surgery – The next day, we were driving home.  And I was in bed by 6pm.  My cold symptoms were back, and I was not feeling so good anymore.  I’ll bet that first day, I had a good mix of adrenaline and endorphins flowing, plus whatever they put in the IV.  And then I crash.

2 days after surgery – I sat outside for a while.  A friend came over, and we chatted for about 30 minutes before my spouse and they went thrift shopping.  We listened to some podcasts.  I read a book about subway art, written in 1984, a book I had found in the trash at school.  We watched 2 episodes of Mad Men.

drinking water

Drinking water.  Feeling pretty good.

drinking water. I did not plan on wearing this Hawaiian shirt. Turns out I don't have that many short sleeved button down shirts that will comfortably fit over the drains I have in!

Drinking water. (I did not plan on wearing this Hawaiian shirt. Turns out I don’t have that many short sleeved button down shirts that will comfortably fit over the drains!)

 

 

 

 

 

 

 

 

 

 

 

3 days – Podcasts, Mad Men.  I stopped taking the pain meds (Percocet) because they were causing OIC (opioid induced constipation).  The pain increased throughout the day, but it’s not like Percocet was all that effective anyway.  We went to my spouse’s parents’ house, which did not go so well (I could not bear being social, especially once a family friend came by – I just went and sat outside.)  We went to the grocery store on the way home – that was OK.

4 days – Glad to be off Percocet – realized that there are other pain meds (D’uh!) so I took an Alieve.  I feel like 95% of the pain now is due to this fucking surgical wrap I have to wear for 7 days.  I can only take shallow breaths; I can’t laugh or yawn or cough; it’s digging into my ribs and underarms; it’s way too tight; it just fucking sucks*.  There’s a reason I didn’t bind!  We went to the movies – nice to get out of the house.  Also, one of our cats got suddenly freaked out by my Frankenstein walk (even though I’ve been doing it for days), and she bolted off the table, knocking a bunch of my records onto the floor.  It was loud.  Also, I had a mini melt down about hating asking for things that are so basic, telling my spouse that I keep doing things because I would rather do them than ask – open and close doors, get ice trays out of the freezer, pour water from our britta, reach up high for a Q-tip, carry my laptop…  I gotta stop so I don’t mess up my healing process!  She was on it and strategized a bunch of new ways to make things easier!

5 days – My spouse went back to work.  Our refrigerator was making a loud noise this morning and stopped working.  That was stressful!  I called a repair person, then changed my mind because we should just buy a new one because this thing is super old.  My spouse’s mom came over to save our freezer items for us, store them at her house.  Then the fridge started working again, so it feels like less pressure – we’ll still get a new one, but it doesn’t have to be today.  A friend brought over lunch – I liked that!  My mom stopped by after work.  I felt anxious and lightheaded for a lot of the day.  I was feeling really confined/claustrophobic, as if this binding thing were made of plaster of paris, or steel.  I had a serious melt down (I got an all-too-real glimpse of what it could feel like, if I lost it right now – I felt in danger of becoming more and more triggered), and told my spouse we need more people around us, helping.  She called her parents to make that happen.  We talked and I felt a lot better.

6 days – That’s today!  I only managed to sleep 3 hrs.  I’ll be spending more time with people today.  I’m just going to try to relax.  I also gotta start preparing for going back down there tomorrow, to get this fucking binding off.  Oh, and the drains.  I’m going with my mom.

Overall, I’m in more pain than I thought.  And I’m way less out of it than I thought (like, I didn’t get to be in a fun pain-killer induced haze, haha).  And I don’t like TV that much and I’ve been up and about a lot.  I hate not doing things because it reminds me of being depressed.

*  Note:  this may be the only time I’ve used swear words on this blog (in reference to the surgical binding).  It’s that bad.  Also, though, I appreciate this thing because it reminds me of where the limits are and also it’s preventing me from coughing stitches open or anything like that.


(Would have been) 3 years on testosterone

Three years ago today, I took a huge leap, not at all sure this was what I wanted to be doing, but fully positive I needed to try just to find out.  Even though I’m not currently on T, this date is still a really big deal for me.

When I started, I felt, almost immediately. that this was the right decision, and that I could have benefited from testosterone way sooner, if I hadn’t been so unsure I could just take a low-dose to see what it felt like.  Those first few weeks, I wrote a lot in my journal, things to the effect of:  “feel hungrier, more energized, had to get up at 5AM because I was doing overtime [Saturday morning].  Buzzed through the 8-hour area, as if I didn’t lose any sleep and am in fact on speed.  Floated through the rest of the day in a cozy, mellow cocoon.”

About 4 months later, I stopped writing just privately, and decided to start this blog!
First post:  low-dose testosterone for the rest of my life

At the time, I thought about testosterone and it’s effects all the time.  I was hyper-aware of any physical changes (mostly not wanting anything to change) and also my internal states.  It’s impossible to inhabit that way of being, long-term, of course, and other life events happened, causing roller-coaster-like mental states.  And I started to wonder what testosterone was doing for me anymore.

I had been treating testosterone like a psychotropic drug, in my mind.  And, in a way, it kind of is (a naturally occurring one).  I wasn’t on any medications, and I kind of saw it as the solution to my mental health issues.  Until it wasn’t.  (But it did feel like it was for quite a while.)

When I did go back on medications (a little over a year ago), the purpose of taking testosterone started to feel like it was getting diluted.  And the reason to stay on it became, “I need to keep as much as I can the same, right now, so that I can stabilize” rather than, “Testosterone is stabilizing me.”

Right around the end of December, I finally switched to a medication that seemed to be working (maybe for the first time ever, for me).  And right around that same time, I decided to stop taking testosterone.  Was the timing coincidental?  No.  It felt like I found a substitute, actually.  And I’m still feeling really really good.

I’m still undecided about how much more masculine I would like to look and sound, and if I would want to use testosterone to get me there.  It’d be awesome if I could pick and choose… (probably most trans-people wish this).  I would pick a moderately lower voice, a little more muscle mass, and a higher sex-drive.  I would toss the facial hair and balding, the acne, the feeling too hot, and the other body hair.

This will probably be my last update in this series “___ years on testosterone without noticeable masculinizing changes,” since I’m not currently on testosterone.  It doesn’t make sense!  Most definitely I’ll start it right back up if I decide to go back on.  And I imagine, where I am right now, that my reasons will be different.  Less of, “what would testosterone feel like?,” and more of “how much do I want my body to change?”

From my experience, I kind of feel like, if you’re on the fence about hormones, and you’re not sure about how you feel, gender-wise, it’s worth a try (if you can get access).  It might take you to a new place on your journey.  It might jump-start something inside you.  It did for me.  Or, on the other hand, it could help you rule something out.  I know someone who was unsure about starting estrogen, but they kept obsessing over it.  Once they went through the steps, and had the estrogen on hand, they suddenly strongly felt they did not want to continue to pursue that path (after taking only one day’s worth of the hormone.)  So, either way, you may learn something about yourself…

Here are some past posts in this series, for reference:
Five months on T
One year on T
Two years on T
Two point seven-five years on T (Two weeks off)


A full year later / making major changes

Right around this time of day one year ago, I was just getting out of the hospital.  I remember the out-take process was long / we had to wait on meeting with certain people first.  I was so antsy to go, that once we finished something at the front console, I went to open the door to leave.  I didn’t think about the fact that you had to be buzzed out!  Oh yeah, no coming and going as we please – I forgot…

I got coffee at a snack bar on the way out, and we went home.  I was super up and psyched to be out of there.  It wasn’t till later that I got depressed.  For a full year, more or less.

Within the past month, I’ve made some major changes that are impacting my mental health.  I currently feel better than my baseline.  We’ll see if this lasts.

I changed medications:  I had been on Geodon, Wellbutrin, and Klonopin (for sleeping).  I didn’t think the drugs were doing anything; I still felt shitty, and in December, it was getting worse again.  I was having vague suicidal thoughts and was having trouble making it through my daily routine.  I talked about this in therapy, and my therapist asked if I would talk to my new psychiatrist about it.  I said, “Yeah, but what can she do?  What else is there to try?”  It seemed hopeless – I’ve been on so many drugs, and overall nothing had ever worked out long-term.  My therapist just said that she might have some ideas.  So at my next appointment, I did talk to her, and she suggested switching off of the Geodon onto something else.  She listed a few, told me about what they work best for and what side effects accompany them, and left it up to me to pick one, basically.  I said Seroquel, but I couldn’t really tell you why.  I didn’t have much faith.  I did the tapering off /ramping up thing, and surprisingly, right when I hit a certain dose of the Seroquel, my day got way way better.  And then the next day.  And the next.  And now it’s been 23 straight days where I have felt free of crippling anxiety and vague suicidal thoughts.  I feel present in my body, and I am looking forward to simple things that make my day more interesting / better.  Like listening to a radio show, or going to get a bagel, or just, anything that previously would not have brought me any extra joy.  I’m kind of floored by this.  I’ve never had this experience with a drug before.  We’ll see if it lasts…

I went off testosterone:  I had been increasing my dose for a while, but it was a fine line between looking for more masculinizing changes and worrying about my hairline receding.  (It had started to.)  I found myself obsessing about my hairline and feeling negatively about testosterone.  I felt stuck and stressed.  Eventually, I decided, why don’t I just go off it for now and stop all the worrying.  I have my whole life to figure out if I want to look more masculine or not – it doesn’t have to happen right now.  So I stopped, and I felt better.  I worried I might hate feeling colder or having less energy or having more aches and pains or experiencing a drop in mood.  But none of those things happened.  I haven’t been looking for anything to be different, and as a result (partly) nothing feels different.  (I’ve been reading this book about expectations and beliefs and how much our judgement gets clouded – maybe testosterone hadn’t been doing much for me if I hadn’t been looking at what I thought it was doing.  This is convoluted, and of course there’s more to it – it’s a powerful hormone! – but so far, so good.)

I stopped going to therapy:  I have been going to therapy consistently for 4 years.  Much of that time was weekly, sometimes we scaled back to every 2 or 3 weeks.  The past few times recently, I didn’t know what we were doing / didn’t know what to talk about / we were going in circles.  All of a sudden, it occurred to me that maybe I didn’t need to go.  And instead of that thought freaking me out, it settled in and felt right.  So on Tuesday, I talked to my therapist about it, and she said it sounded like a great idea.  We wrapped some things up for now, with little fanfare, and she made sure the door was open if I ever want to go back.  I imagine I probably will, but for now, I had just been spinning my wheels, and it feels good to put an end to that.  Maybe I can focus more on other areas of my life…

Considering how unstable I’ve been for a long time, these are some pretty huge changes.  And I am finally starting to look forward to what’s ahead!


Year end / I scheduled top surgery

2015 has been one of the hardest years of my life.  I was majorly depressed for 4 months of it.  I was moderately depressed for the vast majority of the rest of it.  I was out of work for a total of 2 months due to mental health issues.  I was in the hospital, and I was also in a partial hospitalization program.  I did do some fun things (like camping, going to Pittsburgh, marching in the pride parade, adopting 2 cats, going to the beach 3 weekends in a row, becoming a radio DJ, seeing Sleater-Kinney) but they failed to feel like much fun.  I’m only now starting to feel like myself for extended periods of time.  For example, today and yesterday (but not the day before), I felt like a person in a normal mood, and that felt great.  I hope tomorrow feels like that too!  I started on a new medication 2 weeks ago, and I’m really hoping something clicks…

I wrote a similar post last year, and I summed up gender-related stuff this way:
“I continued to settle into a new and improved place with hormone therapy and talk therapy, but I’m finding I still have a LONG way to go until I really am where I see myself.  I want to be out as non-binary in all areas of my life.  I want to go by a different name.  I want all the people who know me to use male pronouns in reference to me, not just most of the people…  I might want top surgery…”

I made some pretty big strides – I started to go by a different name, and now all my friends and about half of my family use that name.  It’s still growing on me – it feels about equally as strange as my former name feels, now, but that is actually progress.  Currently it feels like neither name really is my name, but I think that’ll shift with more time.

This year I went from feeling like I might want top surgery to scheduling a date!  This feels like my biggest accomplishment, based on the amount of mental headspace this topic has been taking up.  I’ll be going to Dr. Rumer on June 1st.  I chose this date because I purposefully want to miss certain things by being out of work.  I really do not like working in the summers, and I especially have a hard time with the transition from school-year to summer.  I have a lot of sick time accrued, and I plan to use a lot.  Often, people can be back at a desk job 2 weeks after surgery, but since my job is so physical, I plan on being out for 8 weeks, as of now.  Why not?!  That’ll allow me to miss the last 3 weeks of school plus half of the summer.  That would be really amazing.

So if I were to sum up gender-related stuff now, a year later, it’d look like this:  I want to be out as non-binary in all areas of my life (still).  I want to come out at work, so that pretty much everyone will be using my new name and male pronouns in reference to me.  No more dual identities.  I want to get through the ordeal of surgery without too much psychic pain (physical pain is fine).  I want to wear t-shirts!  I want to make up my mind about testosterone – take more?  take less?  go off of it?  I want to legally change my name at some point…

These are not resolutions, but it will be neat to go back and see if I made more progress or not.

Other things I’d like to focus on in the coming year:
– Getting back to being more social.  Being social this year was too difficult, so I didn’t push it.  I’ve been a little more talkative with teachers at work lately, and I’d like to re-connect with some people, both locally and through writing letters to far-away friends.
– Enjoying the summer.  I never enjoy the summer – I usually get depressed.  But since I’ll be most likely out of work for half of it, maybe I’ll feel it more.  I’d like to do a road trip, more time at the beach for sure, maybe some backyard fires, weatherproof our picnic table and actually use it, and go on walks.
– Taking more photos.  My dad gave me a new camera for my birthday/xmas, and I want to use it!
– Giving myself a break.  I’ve been pretty hard on myself, and I’m going to try not to be (as much).


That specific trauma is no longer a big deal

Around this time, 16 years ago, I voluntarily admitted myself to a psychiatric unit, but then I got stuck there for 19 days without knowing what was going on.  The lack of communication was horrendous.  I suffered a psychotic break and left with a diagnosis of bipolar disorder.  I accepted this for years, and I internalized that I have a mental illness in some pretty detrimental ways.  This has always stayed with me, always felt like something I needed to work through and get past.

Two years ago, I wrote about how I came to finally acquire my medical records from my hospital stay, and how I started to process things differently with the help of my therapist:
Continuing to work through a specific trauma

Last year, I wrote about finally bringing that record into therapy and how it felt to have her go through it.  I was starting to realize that maybe I didn’t need to pick it all apart; maybe my perspective was shifting naturally, over time.
That specific trauma is still there

This year, although I’m acknowledging the anniversary, it feels like just the slightest emotional blip on my radar.  I talked about it in therapy yesterday.  I finally got my hospital records back from my therapist (she had been holding onto them for me for a whole year!)  I looked through them again last night – there was always one page I skipped over.  It was handwritten by me, explaining what had been going on in my social life that led me to feel like I needed to be hospitalized.  I read it and felt OK about it.

Although this seems counter-intuitive, I think it helps that I was hospitalized in January.  Where everything went wrong the first time around, everything went right(?) (maybe not right, but it went smoothly) this time around.  I can overlay this experience on top of my shitty traumatic experience, and things make more sense.

I resisted the diagnosis of bipolar disorder for a long time,  I’d been off all meds for 9 years; I felt relatively stable.  When it was re-affirmed that I have bipolar disorder by the psychiatrist I was assigned, (“Once a bipolar, always a bipolar.”) I bristled at that.  Actually, I bristled at him in general every step of the way.  Appointments with him lasted a mere 2 minutes.  He was inflexible and adamant I stay on meds forever.  He forgot pertinent information about me.  (At one point he told me I needed to stay on meds because I had been hearing voices.)  After 6 months, I just stopped making appointments with him.  With all his intensity toward me staying on meds, it was surprising how easily he let me just get away.  Maybe he didn’t even notice I left.

My therapist helped me find a new psychiatrist; she’s awesome!  She’s willing to follow my lead on what I want to do about drugs, and she’s willing to dialogue with me instead of ordering me what to do.  I still don’t know what to do about drugs, but at least I have the space to feel supported with whatever I do choose to do.  For now, I’m staying on them, but I can’t pinpoint why.

I respect this new psychiatrist.  When she (also) told me I fit the criteria for bipolar type I, for the first time in a very long time, I felt like I could accept that.  I don’t need to incorporate that in any particular way into my identity; it doesn’t need to mean I view myself differently.  Personally, it’s not a core part of who I am.  It just is an aspect of me that can just be, and I can leave it at that.

And I can finally integrate the difficult journey toward mental health as parts of myself, rather than things that happened to me.


Thoughts and feelings just passing through

Yesterday was World Suicide Prevention Day.  I didn’t know this till today, but looking back on yesterday, unknowingly, I was thinking a lot about the idea of suicide – something I don’t think a lot about.  It’s been an annual day on September 10, since 2003; this year’s theme is Preventing Suicide: Reaching Out and Saving Lives.

I’ve been thinking about this book that Kate Bornstein wrote called, Hello Cruel World: 101 Alternatives to Suicide for Teens, Freaks, and Other Outlaws.  I haven’t read this book in its entirety, but the gist is that there are so many things you can do other than suicide – some of them might be extreme, some might be unhealthy, some might be even self-destructive.  But if it gets you through the moment, and you’re still here, that is good enough for the the time being.  I think that’s a great message.  Sometimes when someone is in so much psychological pain, nothing sounds appealing.  But if you just try something different, something way out there, it might be enough to even just temporarily jump-start you out of the mode you’re in.

When I was in high school, one day I heard an after-school announcement for a “yellow ribbon club.”  I really wasn’t doing well, and I decided to see what it was about.  It was run by school psychologists, and there were maybe 5 students who showed up.  We went around the room stating why we came.  I basically said I came because I was worried I might attempt suicide; I came to get help.  The other students had come for other reasons – either they had been affected by the suicide of someone they knew, or they just wanted to help.  After I said why I was here, one of the psychologists reiterated what I had said.  I remember feeling embarrassed and selfish.  I didn’t go back to any more meetings.  No one ever followed up with me.  I did not end up attempting suicide, but things did get worse, and I ended up in the hospital not that much later on.  I partially blame the psychologists for never checking back in with me.

This is a hard post to write because suicide is such a loaded subject.  I’ve never attempted suicide or had an actual plan or had serious suicidal ideations.  But there’s another way to feel suicidal – just kind of vaguely feeling like you cannot go on.  Like you cannot keep living your life.  Like you want to just stop existing, or just sleep forever.  I’ve definitely felt that.  With all the rough mental health – related stuff I’ve been through lately, I’ve felt that even recently.  It’s a dull, nebulous, insidious, recurring, empty heavy veil, a lens to see the world through – a hindrance for sure, because there’s not much to be able to see, through all those layers.  I don’t really know how to address it, other than to hope it will pass.

I think that what I’m learning is that rather than fighting those types of thoughts and feelings or trying to distract or re-route, it is possible to just give them less emphasis, to live with them, and to just focus on doing what you want to do, despite them.  Just let them cycle through your brain, acknowledge them, but don’t give them any more power than what they are – just thoughts and feelings that come and go…

Kinda easier said than done, but I am trying to adopt this practice…


The implications of “back to school”*

*Back to school is in quotations because as a janitor, I didn’t actually leave school.  We’re just gearing up for everyone else coming back.

I spent this summer waking up at 5:20AM every day, working to get the school ready for students and teachers.  We are winding down from that (we’ve been wound down for a while – we started out really fast and got done early).  I’m back to late nights (2-10:30PM) without much to do other than dump the trash of the few teachers who have been coming in to set up every day.  It’s been nice that the cleanliness of the school is at a standstill.  We can just look around and say, “we got all that done.”  And we don’t yet have to work to maintain it.  Kids start back on Wednesday, so that will all change in a couple days.

While we were busy though, we were rushing through things.  We scrubbed every desk and chair.  We cleaned surfaces in the rooms, shined the sinks, dusted.  We scrubbed the old wax up off the floors.  I single-handedly waxed every floor.  3 times over.  I’d like to know how many square feet that was.  Tens of thousands?  Maybe even a hundred thousand?  Or a lot more?

It has been a relief to drop back to the later shift and not feel like I’m stumbling, half-awake, in the mornings, just to come home and start dreading about waking up early again.  I had been going to bed at 8:30PM!  My mental health has been better overall, but not great.  I’ve been mildly depressed all summer.

Going back to late nights has been lonely, and strangely, a lot of my worries have centered around what to eat before work.  I need to fit in breakfast and lunch.  I don’t know what to eat.  I also don’t really know what to do, all by myself, other than oversleeping.  I’m forcing myself to do some things I don’t really feel like doing, as of now.  I guess the hope is I will grow into it; I will like it once I’m doing it.  I’m going to be a radio DJ starting pretty soon.  I’m also going to take a writing class.

I’ve been realizing that I’m living with a lot of dread lately.  Whether that’s residual from mental health issues earlier in the year, or whether that’s just me being me, I can’t really figure out.  It’s been helpful to notice it while it’s happening though, and just focus on the here-and-now.  Remind myself that I’m actually fine in whatever I am doing presently, so just be more involved in that, rather than thinking about all the perceived horribleness ahead.

For example, I’m dreading going back to doing the exact same thing, at work, every day.  But, it really is what I make it, from moment to moment.  Unlike most jobs, I don’t have unpredictable things pop up daily, or new challenges to tackle, or people to deal with.  It’s just me, in my head.  I need to remember that it’s important to change what’s on my iPod frequently – new music, new podcasts…  And to talk to people on the phone.  And although I don’t believe her, my therapist keeps telling me that I’m actually in control of my own thoughts.  So I can choose to keep obsessing about something negative, or I can move on to more interesting topics.  In my mind, I am powerless to whatever my brain ends up dwelling on, and I get stuck feeling whatever feelings those thoughts conjure up.  I should work on that…


Camping trip during Christmas in July

This post has nothing to do with being queer and trans; it’s not about janitors or mental health.  I think I need a short break from that stuff…

My partner and I went camping this past weekend, and it was exactly the sort of thing I needed.  Things had been feeling heavily monotonous and mundane, even on weekends.  I hadn’t been getting much enjoyment out of things that are usually fun.

Leading up to going away, I had an anxiety meltdown about it – about all the planning and packing.  Mostly, it was about the prospect of being away all weekend and not having enough time to regroup for the work week.  It didn’t occur to me that being away could be rejuvenating in a way that doing things at home, worrying about work and mentally preparing for work, never could.  Huh!

We left Friday right after work and drove for about 2 hours to our destination.  We stopped at a farm stand along the way to buy firewood, and we got some golden plums too.  We had wanted to camp at a state park, but all the ones near where we were headed were booked up already, so we had to resort ahead of time to a privately owned “campground.”  It was actually an RV park with over 150 trailer sites and only 9 tent sites.  Everyone was right on top of each other.  Quite a few were blasting country music or classic rock music, and people were rowdy with the fires and the drinking till late into the night.  We got the sense that some of these people had been there a while, and a lot of them seemed to know each other.  (Other than the noise and the overcrowding), we had a great time!  We didn’t spend all that much time at the site anyway – basically just making a fire both nights, making food over the fire, drinking some beers, and sleeping.

During the day, we did a bunch of stuff at the nearby town.  We went to the very impressive (and very busy) local farmers’ market, then went to a craft supply store and a book store and a clothing store.  For lunch we went to a (also very busy) brewery, where they had beet greens on their pizza and salads made of baby kale, tat soi, beets, candied peanuts, and grilled blackened tofu.  Yum.  We then went for a hike on a gorge trail and waded in the cold creek.

Back at the campsite, it was Christmas in July (7/25).  Some trailers had gone all out with the decorations – it was pretty entertaining to see.  Events included a hayride with Santa at 6, cookies with Santa at 7, and a Christmas movie in the field at 8:30.  We’re not sure but we think at least the movie got rained out.  Yep, it started raining, but we were prepared.  We’d already made a fire and eaten quickly, as the sky darkened, and we spent some time reading books in the tent that night.

Before the rain started, we got a chance to make use of the campground’s pool.  This monstrous pit was nothing like I’d ever seen before.  It was huge, and it was 7 feet deep at its deepest, but there was no drop-off edge of the pool.  So there was no way to jump into the pool – it just gradually got deeper from the edges, like a lake would.  There was a rickety slide with one of the railings duck-taped at the top.  My partner and I slid down it about 5 times each – that was the best part!  It seemed to be not heavily chlorinated; algae was growing at the bottom of the “deep end.”  Another great factor was that it was “swim at your own risk.”  No lifeguard!  And there was a bin for returnables (full of beer cans and bottles) near the gate where you sign in and enter.

So many people had golf carts!  We saw people taking golf carts to the bathrooms, to the playground, to the camp store.  People just driving around on them.  Dogs looking regal in the passenger seats.  Do people pack golf carts into campers and bring them?  I’d never seen this.  Do they rent them from the campground?  I have no idea.

Sometimes when things have been rough, and options don’t seem possible because of mental energy or anxiety or difficulty initiating, mixing it up and going out of comfort zones is the best thing for the mind.  We have a couple more trips planned for this summer.  Trips I’ve been anxious about.  I hope I can just remember how much fun going camping was, and harness that feeling as I get ready to go on vacations!


Medications orbiting my head

 

 

 

 

 

 

 

 

 

 

I drew this picture to illustrate the jumble I feel is going on.  Just to recap, 6 months ago, had a manic episode and was hospitalized.  I previously was not on any medications, but suddenly I was thrown back into all of that – psychiatric visits, side effects, adjusting dosages, trying different drugs.  I’d definitely say the hardest part of the past 6 months was being depressed for a good chunk of that time.  But almost equally hard, just in a different way, is the long term.

Early on, I was cavalier.  I was sure that I’d get off of all these medications within 6 months – just go back to the way things had been.  I was even reluctant to add an antidepressant – things had to get really bad for me to go there.  Now that it’s been 6 months, I can easily say that time frame was way too short.  And I’m also not so sure anymore:  Which drugs are helping?  Which side effects can I tolerate?  How long will I be seeing this psychiatrist?  Do I potentially want to stay on any of these long term?  (That last question scares me – it’s almost as if being med-free has been a part of my identity…)

Some of this journey has felt crazy.  I was having hot flashes and cold sweats, my mouth tasted metallic, I threw up a few times (and I have a stomach of steel).  At one point, I went on a drug called Cogentin.  Its purpose was not to help with symptoms, but rather to help with side effects.  One of the other drugs, Geodon, typically causes hand tremors and a stiffening of facial muscles.  When a nurse practitioner asked if I was experiencing these things, I said, “I guess so.”  So she prescribed yet another thing to add to the mix.  After 3 days of taking it, my nearsighted vision became blurry.  Overnight.  One day was fine, the next day, I couldn’t read the computer screen.  I wasn’t reading books at the time, so that wasn’t an issue, but I remember eating food and not being able to see it and just feeling enormous sadness on top of depression.  I didn’t put the pieces together, but luckily I had an appointment with my psychiatrist 2 days later, and when I mentioned the blurry vision, he said, “Oh, that’s common with Cogentin.”  What?

I also cycled through 4 different antidepressants within a short amount of time.  Celexa, Zoloft, and Lexapro were making me feel famished all the time, which was just making me feel anxious.  I got on Wellbutrin, and luckily that’s been side effect – free as far as I can tell.

Ideally, I don’t want to be medicated.  And it was so easy when it felt like that wasn’t on my radar.  But now I am faced with all these decisions and timelines.  And although there is strong input from other people (mostly my psychiatrist, who thinks I need to be on at least something for forever), it’s all ultimately up to me.

For now, I just advocated for myself to lower the amount of Geodon (mood stabilizer / antipsychotic) that I’m taking.  I feel really happy about that.  I have plans to tackle Klonopin (anti-anxiety medication that I’m using as a sleep aid) next.  As for Wellbutrin (antidepressant), I’m not quite decided.  I’m just going to take these things one step at a time.


A manic episode

I could easily write a 5,000 word essay on this topic; maybe one day I will.  This is an abbreviated version:

Over night, my brain became a frenzied jumble of free associations.  Every system I could imagine (friendships, technology, routines) opened up, and I was in the center of all of it, connecting all the dots.

I thought that Leelah Alcorn, the trans-teen from Ohio who committed suicide, was an elaborately staged message created by a group of people on Tumblr.  Meaning, I thought she was not a real person – more of a call to action, one more thing to add to “The Transgender Tipping Point,” and finally really make some changes happen.

But I thought a lot of things right around this time period, for a couple of days.  I believed I’d been chosen for amazing things, I was choosing my own adventure, and the further I could get before running into a dead-end setback, the more rewards I would gain.  If I made it to my therapist’s office, she was going to give me this new phone I’ve had my eye on.  If I made it through the entire day, I’d be going to a party thrown by everyone I know.  I briefly had the thought, “My partner wouldn’t like that; that’s too much.”  So my logic led me to believe I shouldn’t make it through the day at this rate.  I should definitely get the new phone, but I should see what my therapist thought after that.  Maybe.

Some things were already in motion, and there was no stopping me!  My social media outlets were blowing up!  My blog was going to get huge at this rate, and I was going to get a book deal out of it.  Should I quit my job?  I kinda like working there, as a janitor, so I’ll keep my job.  I better write a note so that everyone will know I wanna go back to work.  I pulled out one of those Mr. Sketch scented markers – it was Blue Raspberry – and scrawled out really big and doodle-y on a piece of artist’s paper, “I will want to go back to work.”  It was barely legible.  When I showed my therapist a few hours later, in fact, she couldn’t read it, so I just had to tell her I want to go back to work.  I wouldn’t want to be someone who sits around all day, writing their book.  I would get bored!

I called my therapist at 2AM and asked her, “Can you just come over?”  I called her again at 7AM, just to see if she’d drop by instead of me meeting her at her office at 9.  I was making some really cool displays in the house, and I wanted her to come check them out.  I was playing a record – The Days of Wine and Roses by The Dream Syndicate, and everything was clicking into place.  (Actually, the record is still on my turntable, untouched 4 months later – I’m playing it right now.)  The lyrics were making perfect sense and informing me of things I should write down.  “You say it’s a waste / not to learn from mistakes.”  “Textbook case.”  “It’s Halloween.”  “She remembers what she said.”  These messages were of utmost importance.  This record was THE record to end all records.

By 8AM I was so bored and fidgety from doing stuff all night long, that I decided to take off for my therapy appointment early.  I had everything I needed packed – My toothbrush and toothpaste, notes from work, and 6 bottles of hoarded Androgel (my prescription allows me to get more than I need, so I just collect them).  I had no clue what would be happening next or how long I’d be gone after therapy (I might be put up in a hotel!), but I could figure out clothes and other stuff later.

Driving was a bit tricky.  I was relying on intuitive cues, more than the rules of the road.  Fortunately, my gut was telling me to slow way down and put my hazard lights on, rather than try to drive at the speed my mind was racing.  I still got there early; when I arrived, I slammed my backpack into the corner of the waiting room, above the door.  To alert the security cameras that I knew all about it.  A man briskly walked past me and out the door.  He was planted there to exit when I arrived.  I proceeded to be loud and messy.  I dumped out a bin of toys.  I knocked over a chair.  I said, “I’m borrrred!”  I talked loudly about a Mazda advertisement on the back cover of a magazine.  I finally understood how advertising worked – they weren’t fooling me!  In fact, this whole magazine was rigged.  I should just take it with me – I’ll need it later.  I stuffed it into my backpack.  One other therapist was there (this was a Saturday) and she tried to gently corral me until my therapist got there.  She picked up the toys.  She said she’d call my therapist for me.  She talked to me in a steady and soothing voice.  She wasn’t patronizing me.

Finally, my therapist arrived.  We engaged in a delicate dance around each other.  I knew on some level that I was going to the hospital.  But I also knew that wasn’t necessary, and she was totally going to come over and check out my displays and then I’d be reunited with my partner to proceed with the most fun day ever!  In reality, my partner was on her way to North Carolina with family (I’d successfully convinced her everything was fine / I believed she was just out with friends and I’d see her in a couple hours.)  My therapist started calling hospitals for availability, and I conveniently went to the bathroom to shield myself from that stuff.  I came back and dumped out all the contents of my backpack.  This would be more fun.  She immediately sorted things into piles to make sense of it.  She called my partner and left a message.  She asked me what my best friend’s phone number was and I told her.  I left the room again while she talked on the phone.  Before I knew it, my best friend was there!  Magic!  Everything was going my way.

I talked to my friend about the displays and we played Rubix cube.  Suddenly we were all leaving.  They led the way, and I went into the bathroom again.  I wasn’t so sure anymore.  I yelled out, “I set some things in motion, and I don’t know if I want it to go this far.”  We were still just going to my house, right?  My therapist replied, with forced enthusiasm, “Come on!”

I got in the car with her; my best friend went separately.  I curled up into a ball and shielded my eyes from the world.  I started to feel sad; I verbalized what I thought about Leelah Alcorn.  I said, “I don’t know much about it.  I know her name, where she’s from, and that’s about it.”  She had been on the news.  That was big.  What I was trying to convey was that no one knew much about it.  If everyone just saw her picture, her name, and her suicide note, maybe she wasn’t real.  And maybe this kind of stuff happens all the time.  What is real in the media?  Scattered thoughts breaking down.  My therapist said, “I don’t actually know where you live.”  I replied, desperately, “Yeah, but you can find out.”  She had a smart phone.  People with smart phones seamlessly glean information all the time.

We weren’t going to my house.  When we stopped and I uncurled myself, we were at the hospital.  But it still wasn’t too late.  If I just told her this is where it ends, and we go to my house from here, everything could still be OK.  I looked her straight in the eye; I put my face two inches from her face.  I said, “This is where it ends.”  This had worked with my partner a few hours earlier.  I looked her straight in the eye and said, “Everything’s going to be OK.”  I gave her the green light to go on her trip.  This time was different.  My therapist probably interpreted that as, “The journey ends here, at the hospital.”  I meant here in the car.  Still though, I complied and followed her.  After all, my best friend showed up here too, so it probably was all OK.

Five hours later, I was on the psych ward.  I’d been in the emergency department.  My mom had shown up.  I had talked to my partner on the phone – it finally sunk in she was 6 hours away, and she and her family were turning straight around.  My best friend had been with me.  My therapist had left at some point.  I’d peed in a cup.  I’d gotten blood drawn.  I’d signed some papers by drawing big loops over the entire page, not knowing what I was signing, exactly.  But now, it was just me, and suddenly my choose your own adventure had come to a dead halt.  There was no more choosing.  I started yelling, panicking.  “I NEED MY VITAMIN D PILL AND ELDERBERRY SUPPLEMENT!”  I needed to maintain my body’s delicate homeostatic state.  I was given a pill and took it; it was Haldol.  It knocked me out for 18 hours.  Before I faded out, the nurse was talking to me really sternly.  She was really butch.  “Do not start shouting on my unit – we don’t do that.”  “I know I know it’s not like me at all…”  “Also, you smell really strongly bad so I’m going to shut your door.”  Then she started yelling.  “He gets whatever he wants!”  And I was out.